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I have been on minocycline since may 5th (did zpak first) am doing minocycline twice a day m/w/f. It may 17th I feel nausea and dizzy I have had two flares with joints swelling I had a two day spell I slept almost around the clock and right now I feel very emotional and so…..tired of being sick I am also trying hard to stay off of prednisone I only take 5 mg and I finished a metrology dose pack right before starting back on minocycline may 5 th. I am having trouble focusing. AM tired of the medical community being so stupid so utterly stupid about auto immune disease (I say this tongue in cheek because I have been an R.N. for over 20 years) I am venting I am ok will be fine I just need to get this off my chest. I live in constant fear that if I move my joints the wrong way I might trigger a flare in that joint. I know certain foods trigger pain in my joints and it is those same foods I crave. I don’t eat fried foods at all because it triggers swelling in my joints but….at work they had fried chicken to celebrate nurses week and I just had to have a piece and it didn’t bother me for several hours then I had to take a prednisone I have been off of them for a week or so Why did I do that to myself I know better I cook for a hobbie and know ten different ways I could have made that chicken good for me. I know I sound like I am having a pity party I am normally a very positive person and am the one that cheers up others but I feel low today can’t wait for tomorrow . Thanks for listening.
Just read your post — and I can tell you I am so sorry to hear you have to deal with it again after so long.
I think it’s sad that somehow because you are/were an RN that you shouldn’t feel like any normal human being who is affected by a chronic illness and it’s symptoms and in a way seem to be apologising for venting. Personally I have never understood why that is; nurses, doctors and medical professionals from all areas can feel powerless and vulnerable when things like this happen . It’s my view the perfect place to vent is here at the Roadback. There is always someone here who you can talk to, people who are willing to hold your hand if necessary whilst you travel down this path again. Medicine is not an exact science and there are many specialists, doctors and health professionals who seem to forget that fact. The worst of them have what I call ‘the God complex’ ie I am a specialist you are just the patient, how dare you question my opinion and there are many of those the world over.
However, that said, there is good news & that is that you actually remembered AP !! So once again you are starting your journey to feeling better and you did it before you can certainly do it again.
Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)All off days Probiotics
It’s not sad, we all feel frustrated every now and then. Especially Registered Nurses. And it’s a good thing, it lets us know we are human. Venting is one of the best ways to deal with these kinds of feelings. 🙂
That being said, Tlpitts, I think you know you’re going through various herxes and flares. The flares can seem unbearable, the herxes drain you and make you feel like you’re never gonna move again. You have to detox. You know what you need? A nice Epsom salt bath and to soak for a good 30 minutes. It’ll get some magnesium back into your system.. Also, Magnesium is supposedly a very good natural muscle relaxer.
I don’t know was the zpack or what ever it’s called but I do know that it’s usual to start with 50 mg m-w-f and build up to 100mg m-w-f it all sounds too fast going to me also if you’ve been off preds for only a week and you aren’t taking any other anti-inflammatory’s or pain killers your bound to be ill and hurting.
If it was me I woul take 50mg m-w-f with the preds and slowly build up. Unless you’re having a reaction to comming off take anti-inflammatory’s if your GP will allow
Good luck your not on your ownRosemary
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