Home Forums General Discussion MTHFR

Viewing 11 posts - 1 through 11 (of 11 total)
  • Author
    Posts
  • #465407
    Lynne G.SD
    Participant
    #465408
    Lynne G.SD
    Participant

    I.v had a hard time getting this posted as it looked great when I sent it but it never registered on the site.My sister now has brain cancer,the absolute worst one that is Glioblastoma.Both her oncologist and ND think it was because she either supplemented too much or the vitamins she was taking were not correctly labled.I also have an MTHFR disregulation but only supplement when I think of it which is not very often.

    #465409
    Maz
    Keymaster

    So sorry to hear about your sister, Lynne. Has she looked into supporting her treatment with repurposed therapies? Interesting that disulfiram and artemisinin are both suggested here and others in various combinations:

    A conceptually new treatment approach for relapsed glioblastoma: Coordinated undermining of survival paths with nine repurposed drugs (CUSP9) by the International Initiative for Accelerated Improvement of Glioblastoma Care

    Glad you were finally able to post your link! We are still working on it, as another old-timer had this issue recently. It could be a software update that had a kink in it…hopefully now resolved. These things happen, but thanks for your patience.

    #465410
    Lynne G.SD
    Participant

    Hi Maz;
    Sue is on green cannabis juice as well as a modified form of AP that includes an anti fungal(not Diflucan) along with a statin and so far,so good.I will send you the info as soon as I have time,hopefully tonight as I have to go hunting for it,will read the link later also..I was able to post by dropping the .html at the end of the link

    #465415
    Linda L
    Participant

    How interesting that food can have methylation nutrients in it. Do you think that your sister has overdosed the supplements?

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #465416
    Maz
    Keymaster

    ..I was able to post by dropping the .html at the end of the link

    Helpful feedback, Lynne. I’ll mention this to our tech volunteer who is looking into the issue.

    #465420
    Lynne G.SD
    Participant

    Well,it looks like the links I just posted did not register,will try again.Here is a really good bit of info on Mino for cancer
    https://www.tandfonline.com/doi/pdf/10.4161/auto.7.2.14043

    #465423
    Lynne G.SD
    Participant

    There was an HTML on the first link,removed it and it did not work this time GRRRRR

    https://careoncology.com/coc-glioblastoma-treatment/

    #465426
    Spiffy1
    Moderator

    I find it interesting they would blame the vitamins and supplements. How do they know they didn’t keep her in remission longer? That is truly an opinion because no one is going to know how or why. I am very sorry to here this. Has she thought about LDN?

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #465427
    Lynne G.SD
    Participant

    Hi Spiffy;
    Sue has been on LDN for years for her MCTD?Lupus.Docs are not sure but suspect the vitamins as she is hyper methylated

    #465428
    Spiffy1
    Moderator

    I tell you they are powerful things. I just tried to start b12 again after being off for months and it wigged me out. When I get brave again I will
    Go low and slow. Please keep us posted on your sister. I wish stem cells could help?

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

Viewing 11 posts - 1 through 11 (of 11 total)

You must be logged in to reply to this topic.