Home › Forums › General Discussion › What do you do for joint pain?

Viewing 8 posts - 1 through 8 (of 8 total)
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  • October 30, 2019 at 7:46 pm #464982
    niteowl
    Participant

    Hi to all,
    I recently stopped prednisone after having been on it for two years. I am of course having some pretty good joint pain as result. I was ordered Percocet which kinda helps for 5 hours. Then I developed an allergic reaction – rash. Went in to the Drs to get something else, but due to the opioid hysteria, it is too soon (order written over a month ago). I will have to return to the Drs next week to get something else. I just need something to get me through the rough stretch for now. Any suggestions will be appreciated.

    Diagnosed with RA in 2012
    Fifth Disease in '03
    Lyme? in 2000?
    Had radioactive ablation of hyperactive thyroid in 1997
    autoimmune thrombocytopenia resolved
    Anemia resolved with treatment of RA with Minocycline
    Blood type: B neg

    Meds:
    Minocycline 50mg once a week
    Levothyroxine .88mg
    Liothyronine 5mg
    Methotrexate 20 mg once a week

    Folic acid
    B12
    B6
    Vit D
    Biotin
    Biosil
    Cbd balm
    Flexaril as needed
    Aspirin
    Benedryl
    Ventolin inhaler
    Lactibiane probiotic

    October 30, 2019 at 8:45 pm #464983
    Linda L
    Participant

    I would try LDN. It helps with pain in 30-50%.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    October 30, 2019 at 8:48 pm #464984
    niteowl
    Participant

    Hi Linda L.
    I’ve tried LDN but got extremely depressed actually suicidal. Thank you for your response!

    Diagnosed with RA in 2012
    Fifth Disease in '03
    Lyme? in 2000?
    Had radioactive ablation of hyperactive thyroid in 1997
    autoimmune thrombocytopenia resolved
    Anemia resolved with treatment of RA with Minocycline
    Blood type: B neg

    Meds:
    Minocycline 50mg once a week
    Levothyroxine .88mg
    Liothyronine 5mg
    Methotrexate 20 mg once a week

    Folic acid
    B12
    B6
    Vit D
    Biotin
    Biosil
    Cbd balm
    Flexaril as needed
    Aspirin
    Benedryl
    Ventolin inhaler
    Lactibiane probiotic

    October 31, 2019 at 8:52 am #464986
    vinny
    Participant

    I have psoriatic arthritis and the NSAID Diclofenac worked best for me after Prednisone

    Psoriatic Arthritis: 100mg Minoz Minocycline TABLET daily; twice daily 400mg Pentoxifylline;125mcg Levotyroxine: Have been using some level of Minocycline since 2008

    October 31, 2019 at 6:54 pm #464988
    cosmo
    Participant

    Do you have an AP doc? Your dosage of mino is pretty low. Maybe an increase would help long term.

    October 31, 2019 at 7:28 pm #464991
    Linda L
    Participant

    Nite owl, you are vegan. I am curious how you control your anemia.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    October 31, 2019 at 9:12 pm #464992
    monmar
    Participant

    Hey there,

    I use Advil on really bad days to reduce the inflammation and pain and also a hemp oil that also helps primarily with pain and mood! I hope that helps at all!

    November 3, 2019 at 10:35 am #464999
    Jae
    Participant

    Sorry about your pain. You might get some relief with topical CBD cream, reapplied frequently. Some people have tried CBD oil sublingually that helps them a lot.

    2000 dx’d Systemic Scleroderma & Raynaud’s
    9/2016 dx’d Polymyalgia Rheumatica (PMR) (maybe RA?)
    12/2018 stopped Minocycline (100 mgs) (skin turning blue)
    Lyme disease testing – indeterminate | Slow progression memory loss
    Prednisone: 3 mgs | Azithromycin: 250 mgs | Sildenafil | Synthroid

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