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I feel bad because I didn’t reply to a personal message sent 4 months ago from someone in England. The message alert on the corner of this page is too small.
Us Brits don’t have a lot of options here in the UK, so I’m a bit pee’d off I didn’t see the message.
Rant over. Peace…….Hi Lemons,
Sorry you didn’t see your PM from Maddie for so long. I visit the forum frequently, so didn’t even realize there were options for receiving automated PMs till someone asked a while back and I went hunting to see what all the bell and whistles on the software offered.
It’s easy to get emailed automated PM notifications, as follows:
Go to your PM Inbox, then click Settings at the top, then click the “email” tab. It gives you options to opt in/out of PM automated notifications.
Hope this helps sort this out for you. Happy to send a test PM after you change your settings if you let me know.
So complicated ! I don’t come on here often because I’m getting on with my life thanks to you and Gillie. When you’re no longer in “shoot me now agony” and can’t even lift the duvet cover when lying in death like pain in bed, you forget the forum that saved your life. But then sometimes you come back to see how thing’s are progressing xx
And, there’s a new cancer clinic in London “Care Oncology” that’s using an antibiotic in part of their treatment plan.
Wow, lemons! That’s amazing – both that you feel so great and that an oncology clinic is using AP – for cancer or rheumatic diseases?
It’s great when you pop by! I love seeing the “old faces” check in.
No, the clinic treats cancer not rheumatic diseases. However, I think it’s interesting that they use a combination of drugs and supplements that are often used in AP for RA and Lyme.
Doxcycline being one of them, Metmorfin, similar to berberine and an anti parasitic medication.
Unfortunately I discovered the place due to a couple of my friends recently being diagnosed.
N xHi Lemons
Don’t feel bad, honestly!
It’s great that we are emailing each other now. I’m still amazed that we only live four miles from each other. That’s nuts!
Maddie x
No official diagnosis yet but probably some type sero-negative, symmetrical inflammatory arthritis.
Started AP treatment December 2018. 200mg Minocin MR Mon/Wed/Fri.I am glad to know this too. For some reason I get no notification. I just try to remember to check it when I am on. When I get my head together I will try to turn this on in settings. It used to alert me and then it stopped. Thank you for this information.
Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWF
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