I’m going to see Dr. F in Riverside tomorrow for a followup visit, and to keep things less pricey at his office my LLMD (who accepts our insurance) ran a bunch of bloodwork for me to take to the appt.

I got my results back today and unfortunately, the labs seem to indicate that my autoimmune problems are getting a little worse and not better. My thyroid, which had stabilized back in August, is once again trending hypo and the TPO antibodies are once again off the charts >1000s. I had a lot of success with my Hashimoto’s three years ago when I went gluten free and started taking D3, fish oils, folate and Moducare daily. I got the antibodies to drop from 880 to 15 on that regimen, and to stay low for over two years until my third pregnancy. A year ago the TPO attack began again and shot into the 1000s, which is when all of my other health problems started.

Since I’ve been on my new lyme regimen and also using the LDN, I haven’t been taking any D3 or folate and I have added in a lot of new stuff. I don’t really know what *isn’t* working, but something isn’t. I’m wondering if perhaps it is the LDN. My antibodies which had dropped back into the 800s are once again in the 1000s and my TSH is at its highest ever level.

I’m not ready to try any T3 again. The last time I was put on 1.5mcg of slow release T3 it caused me to go hyperthyroid very fast and caused a lot of other problems systemically. My husband said it was like living with a person on speed, and my endo took me right off. If I need to go back on thyroid replacement I will definitely choose T4 at least to start with.

Anyway, all of this makes me concerned that Dr. F will be finding signs of scleroderma progression when he sees me tomorrow and checks my nail beds… since clearly my antibodies are being produced in high numbers. I’m sort of bummed about that. I hope that he will be able to point me in the right way. It isn’t a great feeling to be trying so very hard to get well and somehow going in the wrong direction.

I know a lot of people on the board have Hashimoto’s or thyroid problems along with everything else… do you have any advice about thyroid replacement types or helpful supplements? I’d be really grateful for any tips you can pass along.

I’ll keep you posted about my checkup with Dr. F. Still praying for good news.
A

p.s. I forgot to mention, my Vitamin D3 levels have plunged from the mid-50s to 39. Despite the fact that magnesium stearate supposedly creates biofilms for the lyme to hide behind, I’m going to begin taking D3 again. I think it is important.