Stopped abx for 3 weeks is that ok?

[worldofme]

So I stopped doxy and I started getting knee arthritis few days after horrible pain that is not control by any strong pain killer. Doxy kept it in controll.

In my last effort to culture whatever the bug I have I decided to go off abx for 3 weeks to get proper culture.

Is this safe? Living in pain for 3 weeks?

Still taking humira but do plan on stopping that drug.

Next drug I will take will be doxy plus rifampin to kill bug at intracellular phase.

I got feeling I have mycoplasma.

2 years later still having reactive arthritis symptoms and not controll by humira?

perhaps my life will depend on doxy plus Flagyl and few immune supersson drugs….anyways will 3 week cause significant join damage?

[richie]

So now your pain is back because you made a decision to stop doxy —who is this doctor who is handling the culture –seems to me you are making all these moves on your own —-I dont follow very much here -You say two years on Humira and no improvement ??? Who is the doctor who is giving you this for two years with no improvement –he or she shouldnt be a doctor !!!!!!!!!!!! Sounds to me that you have Carte Blanche to take any medicine you want –now rifampin –Certainly not the most common drug in the world !!!! I am having difficulty following what you are saying !!!

[Calida]

Ben, you’re asking complex treatment questions here that only a physician is qualified to answer and we are just patients. A good LLMD can easily test you for mycoplasma and many other infections and you wouldn’t have to guess. LLMDs are mixed infectious disease specialists. You need a doctor who understands infections, autoimmune disease, antibiotics protocols, and who orders labs regularly to monitor the infection’s response to treatment. That would be an LLMD and that is why you keep getting the same response to your questions.

Please stop attempting to treat the disease on your own. You’re obviously intelligent but that is not enough. A truly intelligent person realizes when the situation calls for an expert and you need an expert.

You said you “have a full desk with Abx, Doxy, Mino, Azithro, Tindamax, Flagyl, TMP, Humira….” and now you want to add rifampin? I am not a doctor but I’ve been in the medical world for almost 30 years and I’ll be very clear – if you have all these meds and you are self-treating, this is a recipe for disaster. If there is one doctor prescribing these meds for you to experiment with, he should have his license revoked.

I know of a very experienced LLMD who is highly respected and he will not try to sell you vitamins or supplements. However, you may have to travel 2-3 hours to see him. Please send a private message if you’d like the information.

Kelly

Dx: Diffuse Systemic Sclerosis/SLE overlap, Raynaud's June 2013, Lyme August 2013
AP: Azithromycin (Teva) 250mg BID, May 2014, Clindamycin 600mg every 8 hours for 2 weeks July 27, 2015 - Aug 10, 2015
Minocycline (Teva generic) 100mg BID November 20, 2014
Meds: LDN 3.5 mg, Prednisone 5 mg (discontinued), Aspirin 81mg, Liposomal Artimisinin 50mg QID x 3 weeks, 4th week off, rotating (discontinued May 2015, restarted 2016 7 days per month), Daily Nystatin, 2 tabs BID, as a preventative measure
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