October 14, 2011 at 3:06 am #306074Forum AdminKeymaster
Please join the Road Back Foundation in welcoming Gay (user name: GayG) to the discussion forum volunteer team. Gay brings a wealth of personal experience to share as she has journeyed back to wellness using AP for scleroderma in the past several years. The Foundation is grateful that Gay has very kindly accepted the invitation to join the forum volunteer team to extend her personal experience and knowledge of this approach to treatment with forum visitors.
Thanks, Gay, and a warm welcome from the RBFV team!October 14, 2011 at 9:00 am #359700dianne-sunshinecoastParticipant
hi gayg, welcome as a volanteer to the forum . 🙂 ..kind regards..di.October 14, 2011 at 5:05 pm #359701Patricia.AnnParticipant
The volunteers are so kind and supportive to us – brilliant that we have another one of you!!! 😉
Patricia xOctober 14, 2011 at 6:00 pm #359702nspikerParticipant
I am so glad that you’ve accepted the position to volunteer 😀 ! We really need wonderful success stories like yours.
You were such a big help to me when my MIL was diagnosed, and I so appreciate you talking with my SIL recently. She thought your story was inspirational, and felt you should hold webinars to talk about your success. After speaking with you, she cannot understand why AP has not been accepted and touted within the medical community. You may have made a believer out of her…
nancyOctober 14, 2011 at 6:17 pm #359703Jan Lucinda1Participant
Welcome to you!
JanOctober 14, 2011 at 9:10 pm #359704ParisaParticipant
Thank you for accepting to be a volunteer. You have much to offer us with your experience and wisdom. Welcome!October 14, 2011 at 10:27 pm #359705TrudiParticipant
Wonderful to hear that you will be a volunteer. I have always enjoyed reading your posts!
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?October 14, 2011 at 11:35 pm #359706Joe RAParticipant
Hi: Gay, WELLCOME from all of us
😀 🙂 😉 🙁 😮 😯 😕 😎 😆 😡 😛 😳
😥 👿 😈 🙄 ❗ ❓ 💡 ➡
😐 :geek: :ugeek: and me too
This forum flourishes with VOLUNTEERS like you,
past and present, it is not a choice you all made,
it’s a RESPONSIBILITY and thank you for it.
Ghandi, said: The best way to find yourself, is to
to lose yourself in the service of others.
Thanks again to you and all the “volunteers, who are love in motion”.
….Joe RA….October 14, 2011 at 11:41 pm #359707lynnie_sydneyParticipant
Gay – how could I possibly top Joe’s post? Welcome, it’s great to have you.
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
abx from Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg. Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg. Topical bio-identical estradiol, DHEA +October 15, 2011 at 2:59 pm #359708KrysParticipant
So wonderful that you agreed to become a volunteer. You are in lovely company here: all volunteers on RBF are so inspiring, kind, supportive, encouraging, knowledgeable, generous, uplifting… = a lovely group of angels! 😀 🙂 😉
Thank you and welcome!October 16, 2011 at 3:53 pm #359709caroline123Participant
Gay – Thank you for becoming a Forum Volunteer. I’ve found the volunteers to be the heart of Road Back, without whom I would not (and undoubtedly many others) be traveling “the road back” to a functioning life. Thank you.October 31, 2011 at 1:30 pm #359710mikanaParticipant
I am most honored to welcome Gay. It was thru speaking with her at the “support group” (and I use that term loosely) that my husband and I made the decision to visit her doctor Dr. K and it was the best decision we have made on this journey, next to choosing AP.
His recovery is going so well at times we forget he was ever sick except for his hands. But a small price to pay for where we started.
Gay’s experience and information was most helpful and she is an absolutely incredible woman. so…..
WELCOME GAY 😀 😀 😀
hugs from Mike and LanaNovember 1, 2011 at 5:09 pm #359711GayGParticipant
Thank you everyone!…I’m back from a short vacation and just finished waiding through around 700 work emails!…….I hope to be able to be here several times each week, possibly more often during the times that work and life slow down a bit (it happens occasionally)….Love and Blessings! GayNovember 6, 2011 at 6:21 am #359712cavalierParticipant
Gay looking forward to knowing more of your story – I have SD – diffuse in the lungs primarily inside & alot of spread scar tissue though out the body. I have lost my left lung scar tissue took down my phrenic nerve. Inside the lungs too & is starting in the right lung so need to kick this back.
Have started minocycline 2 times a day & plaquenil.
Am going to Dr S end of nov for IV’s. Did you ever do IV’s or only oral? How long for any signs of reversal? Sorry – probably many know your story already – anything else you did? – best – Jill
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