Home Forums General Discussion Please welcome GayG to the Forum Volunteer Team

This topic contains 13 replies, has 14 voices, and was last updated by  cavalier 6 years, 11 months ago.

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  • #306074
    Forum Admin
    Keymaster

    Please join the Road Back Foundation in welcoming Gay (user name: GayG) to the discussion forum volunteer team. Gay brings a wealth of personal experience to share as she has journeyed back to wellness using AP for scleroderma in the past several years. The Foundation is grateful that Gay has very kindly accepted the invitation to join the forum volunteer team to extend her personal experience and knowledge of this approach to treatment with forum visitors.

    Thanks, Gay, and a warm welcome from the RBFV team!

    #359700

    hi gayg, welcome as a volanteer to the forum . 🙂 ..kind regards..di.

    #359701
    Patricia.Ann
    Participant

    The volunteers are so kind and supportive to us – brilliant that we have another one of you!!! 😉

    Patricia x

    #359702
    nspiker
    Participant

    Hi Gay,

    I am so glad that you’ve accepted the position to volunteer 😀 ! We really need wonderful success stories like yours.

    You were such a big help to me when my MIL was diagnosed, and I so appreciate you talking with my SIL recently. She thought your story was inspirational, and felt you should hold webinars to talk about your success. After speaking with you, she cannot understand why AP has not been accepted and touted within the medical community. You may have made a believer out of her…

    nancy

    #359703
    Jan Lucinda1
    Participant

    Welcome to you!

    Jan

    #359704
    Parisa
    Participant

    Hi Gay,

    Thank you for accepting to be a volunteer. You have much to offer us with your experience and wisdom. Welcome!

    #359705
    Trudi
    Participant

    Hi Gay–
    Wonderful to hear that you will be a volunteer. I have always enjoyed reading your posts!
    Take care,
    Trudi

    Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

    #359706
    Joe RA
    Participant

    Hi: Gay, WELLCOME from all of us

    😀 🙂 😉 🙁 😮 😯 😕 😎 😆 😡 😛 😳
    😥 👿 😈 🙄 ❗ ❓ 💡 ➡
    😐 :mrgreen: :geek: :ugeek: and me too

    This forum flourishes with VOLUNTEERS like you,
    past and present, it is not a choice you all made,
    it’s a RESPONSIBILITY and thank you for it.
    Ghandi, said: The best way to find yourself, is to
    to lose yourself in the service of others.
    Thanks again to you and all the “volunteers, who are love in motion”.

    ….Joe RA….

    #359707
    lynnie_sydney
    Participant

    Gay – how could I possibly top Joe’s post? Welcome, it’s great to have you.

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
    abx from Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg. Topical bio-identical estradiol, DHEA +

    #359708
    Krys
    Participant

    Hi Gay,
    So wonderful that you agreed to become a volunteer. You are in lovely company here: all volunteers on RBF are so inspiring, kind, supportive, encouraging, knowledgeable, generous, uplifting… = a lovely group of angels! 😀 🙂 😉
    Thank you and welcome!

    #359709
    caroline123
    Participant

    Gay – Thank you for becoming a Forum Volunteer. I’ve found the volunteers to be the heart of Road Back, without whom I would not (and undoubtedly many others) be traveling “the road back” to a functioning life. Thank you.

    #359710
    mikana
    Participant

    I am most honored to welcome Gay. It was thru speaking with her at the “support group” (and I use that term loosely) that my husband and I made the decision to visit her doctor Dr. K and it was the best decision we have made on this journey, next to choosing AP.

    His recovery is going so well at times we forget he was ever sick except for his hands. But a small price to pay for where we started.

    Gay’s experience and information was most helpful and she is an absolutely incredible woman. so…..

    WELCOME GAY 😀 😀 😀
    hugs from Mike and Lana

    #359711
    GayG
    Participant

    Thank you everyone!…I’m back from a short vacation and just finished waiding through around 700 work emails!…….I hope to be able to be here several times each week, possibly more often during the times that work and life slow down a bit (it happens occasionally)….Love and Blessings! Gay

    #359712
    cavalier
    Participant

    Gay looking forward to knowing more of your story – I have SD – diffuse in the lungs primarily inside & alot of spread scar tissue though out the body. I have lost my left lung scar tissue took down my phrenic nerve. Inside the lungs too & is starting in the right lung so need to kick this back.
    Have started minocycline 2 times a day & plaquenil.
    Am going to Dr S end of nov for IV’s. Did you ever do IV’s or only oral? How long for any signs of reversal? Sorry – probably many know your story already – anything else you did? – best – Jill

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