Home Forums General Discussion Not doing very well

This topic contains 5 replies, has 4 voices, and was last updated by  lauram 10 years, 3 months ago.

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  • #299815
    klogan
    Participant

     RA 3yrs, 200 mg Mino/Doxy combo

     I think i had a herx when I increased from 100 mg 
    daily abx to 200. But now, 2 weeks later, I'm 
    still in constant pain, very sore throat, 
    degenerating – shoulders, hips, knees, back, neck, 
    wrists swelling, blisters on tongue and toes 
    (weird, huh?), very depressed, can't sleep. No 
    idea what to do. Tried lemon drink, peroxide 
    baths.
     I'm off the abx for now. Waiting to start 
    predisone if I can sort out the sore throat. Very 
    discouraged.

    #309036
    klogan
    Participant

    I am currently swilling the nystatin in hopes that the throat thing is thrush, by the way. So far, not helping, but have only been swilling for half a day.
    I am hoping to go back on the abx, by the way, taking a few days off.
    Wondering if I have what it takes to see this through…
    Anyone use antidepressants during this funfunfun time?
    I feel like a zombie from the living dead.

    Thanks,
    klogan

    #309037
    lynnie_sydney
    Moderator

    I feel for you. You dont say how long you've been on AP  in your signature line but am presuming it's not long.  It sounds like you are having a big time herx. Was it your doc who put you on daily  mino?  If it were me, I'd be pulling back  to MWF dosing and, if you still hurt like hell, reduce the amount you  are taking and maybe even the days to 2 pw. For some people even 25mg will induce a herx. You need to go slow and PLEASE remember a couple of things.
    1. A herx is a good thing (means abx are causing die-off) but it does need to be manageable….you may even need a small amount of pred to help you over this time, Dr Brown was absolutely in favour of that when necessary. For the abx to work, inflammation needs to be brought down.
    2. and most importantly, improvements are slow (some have described them as glacial). Dont expect too much too soon, that's not the way this protocol works. Just concentrate on getting your inflammation under control, reduce your dose, consider pulsing and  then be patient.  I hope your pain reduces soon.

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #309038
    dianaw
    Participant

    I think you are herxing- I would stay on the antibiotic along with prednisone to get you through the herx. If your Dr. is not awre of the AP protocol I will email you a name of a Dr. that will consult with him or you if willing.

    #309039
    klogan
    Participant

    Thanks for all the encouragement. It is hard to put into coherent english how much this means to me.
    In the meantime, I really need to learn to take the long view.

    #309040
    lauram
    Participant

    Klogan, I've learned you should always take it slow when increasing. I increase  100 mg and wait for 2 or 3 weeks. I do not go up till I am stable.  You may want to go back to your original dose and then work from there. I made too many changes back in August and it took a month to get over it, and that's after i went back to my original dose. I just now increased 100 mg. Hang in there. laura

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