Lyme Disease audio

[Maz]

Just passing along an interesting radio show link (about 30 mins in length) where author and lawyer,  Michael Christopher Carroll is discussing,

“… the operations of the Plum Island (located in Long Island Sound) virus research facility and the important role played by Nazi Germany's top bioweapons scientist in its establishment. He, also, presents the evidence linking the virus research at Plum Island to the emergence of Lyme Disease. This debilitating and, as yet, incurable illness first appeared in 1975 in nearby Old Lyme, Connecticut and is one of the fastest growing infectious diseases in the United States.”

http://www.mdrtalk.org/#broadcastedinterviews  

Peace, Maz

[sandy]

Maz, could you tell me if Clindy at 600mg a day is ever used for lyme? I've been on this since Feb with Dr. F. and my limited energy now finds me unable to do long research projects. I have not found this listed on any of the lyme discussion protocols.

Dr. F. just FINALLY told me to see a lyme specilist but he knew of my first test in Feb., late Feb. and it was reconfirmed the end of April….so I'm sooo nervous about all this expense in traveling to see him. THe odd thing is I asked him on the phone (his one and only ph. all to me) in late feb. if I should see a lyme specialist and he said no, I'll treat the lyme but first take the clarityramyacin for the hpylori for 10 days…and when I called back to say I was done now what? His nurse just said stay on the clindy and mino…I now fear that he was absent minded and forgot….but I've been on this combo with nothing moving…and I don't believe that he ever treated the lyme…the guy I just saw is listed on the lyme organ. and he wants to treat the yeast first……what do you think?

[Maz]

Hi Sandy,

I asked my LLMD about IV Clindy and he wasn't very keen on this, preferring IV Rocephin or IV Ceftriaxone for Lyme. He also mentioned a newer tetracycline that's one of the big guns used in hospital setting to knock out major infection, but I didn't write down the name :?, so with my dipstick brain these days I forgot the name of it as soon as I walked out of his office.

There is a protocol for Lyme called, “The Shardt Protocol” using Diflucan twice a day for several months. This would certainly hit yeast and was so named, because the German doctor for which the protocol is named, treated his own Lyme with Diflucan successfully. If your LLMD is more into natural remedies, my own feeling about this is that it's not enough. Certainly, if you haven't got a rheumatoid disease, MS, or some other equally challenging immune problem as a result of chronic Lyme, then herbals might be okay, but IMHO certainly not on their own for the bigger health issues…which really need the big guns….antibiotics, anti-protozoals, anti-cyst busters, anti-fungals… 

Minocycline is used to treat Lyme and I've taken clarithromycin and tetracycline in combo…but in high doses for months. Even for H Pylori, (and I'm not a medical person…but….) I doubt a week of clarithromycin is going to beat it. Susan Lyme/RA could tell you more about that.

LLMDs come in all shapes and sizes, so if you've found one that is more into naturopathic methods (and forgive me if I've forgotten, as I'm sure you must have shared this with me before), then you might want to find one that is more allopathic.

I don't know much about Dr F's protocol for Lyme, although Cheryl may be able to share more about this. She also knows a good AP/Lyme doctor in CA who may be able to help, but not sure of his location…vaguely remember him being somewhere n northern CA, so it might be nearer to you.

Treating chronic Lyme is usually a long process. With the state I was in, my LLMD told me to expect treatment to go on for 5 or more years. I made it through the first year on the high doses/combis needed for Lyme, but found I was becoming more and more hypersensitive, so I asked him if I could try low dose pulsed therapy, to which he was amenable. I'm tolerating the herxes better, but know I have a long way to go yet. 

Worth bearing in mind that it's still relatively early days in your treatment with Dr F, too, and there's no guarantee you'll feel any better on the Lyme protocols. The herxing can be awful in the beginning. It's really all trial and error for the greater part, Sandy. My LLMD monitored my bloodwork every month to watch how I was going. If things started slowing down, he'd suggest a new protocol/dosing schedule to stay on top of things. This is why, ideally, it's best to have someone closer to home to see, if poss….or at least someone who is willing to consult with your doc from afar.  

Not sure if any of this will be of help….but do hope so.

Peace, Maz

[Parisa]

He probably referred you to Dr. H whom we've been seeing for about a year and a half.  Dr. F referred us as soon as the Lyme test came back positive for Lyme.  He told us he didn't treat Lyme disease. 

 

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