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This topic contains 4 replies, has 2 voices, and was last updated by  Rockin Annie 3 years, 2 months ago.

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  • #308494
    Rockin Annie
    Participant

    I haven’t been here for a while, but still come onto the website every now and again, guess it’s when I am not feeling 100percent lol. My doctor advised me to have a break from mino after complaining to her about my blue spots on my face and chest and they were getting darker, a vanity thing. Bad move, after a few weeks my flare ups started, worse than I have had for a while, so after checking out a few posts from RB, I decided on doing 100mg mino MWF and doxy 200mgs TT and week ends free. I guess it’s all trial and error! I don’t know if it’s working yet or not as I am having lung issues at the mom., and it’s very hard when you have no support from the local doctors, they all look at you as if you have gone mad when you try to explain the AP protocol.

    It’s good to come here and vent sometimes and thanks for all the great advice on this site……..rockin Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #373435
    lynnie_sydney
    Keymaster

    Hey Annie – good to see you, though not for the reasons that have brought you here 🙁 🙁 .
    Yes, many folk have experienced what you describe after taking a holiday from mino due to blue spots. Are you taking good amounts of Vitamin C ? This can help. See extract from a post by Maz on this subject:

    Interestingly, one of the reasons it’s suggested folks use daily oral Vit C with their minocycline is to prevent the blue/gray hyperpigmentation that can occur…these patches have been linked to accumulations of iron under the skin, because minocycline is so lipohilic and chelative. The heavy metals bind to chelative elements, but also need help to be expelled from the body…hence, the Vit C.

    viewtopic.php?f=1&t=12057&p=76832&hilit=blue#p76832

    It can sometimes be difficult the second time around to get a response that will take you to where you were before. As you say, some of this may be trial and error. If it were me, I’d also be focusing on dietary measures to address aggravation of symptoms (you would know what those triggers are for you after a Dr D/LW consult way back) and also I’d be focused on detox (many options for this, discussed widely and you can search the board for those through the search function).

    You don’t say what your lung issues are. However, I take an amino acid called N-AC (n-acetyl cysteine) which is a precursor to glutathione, so good for liver detox and also good for the lungs (lots of info on this on the net). It’s part of the Wheldon and Stratton protocols you can find on http://www.cpnhelp.org). I’ve suggested it to a couple of people I know who get recurring bouts of pneumonia and they have found it extremely helpful. It’s available over the counter in the U.S. but not here. However, very easily ordered online (from Australian distributors). I just buy whatever is the best price from ebay, most often the NOW brand. I take 600mg (one capsule) morning and evening daily.

    Hope you find improvements soon!

    p.s. for myself, I wouldn’t listen to a doc telling me to take a break from something that was working for me because of blue spots…even if I was blue from head to foot and looked like an Avator alien! I’d just up my Vit C and use a very good concealer!! 😀 😀 😀

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #373436
    Rockin Annie
    Participant

    Hi Lynnie,

    Thanks for your info, have just come back from my chest specialist and he said my last bloods were quite good, I had been back on abx for a few weeks. So maybe my flu like symptoms are due to taking too much abx, I should maybe cut out one of them out, just don’t know whether to stay on mino and cut out doxy or visa versa. I do take 2000mgs plus of vitaminC, maybe I should increase it?

    Would you believe, I used to take NAC years back, but stopped because I couldn’t stomach so many tablets, but after reading that you were taking NAC on your signature line, decided to do the same and started last week. Thank you again for the reminder, I do tend to forget why I take these supps sometimes lol. I buy them on line from Vitacost and they are very cheap! As far as diet goes, I am very careful, but do have the occasional break out.

    Thanks again for your info…….Rockin Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #373434
    lynnie_sydney
    Keymaster

    You may well be experiencing a herx (you are now on a high dose protocol and straight after a break, so makes sense. Interestingly, Vit C has been suggested as a way to treat herx responses anyway. There’s an article on this on the main site – extract below

    The same benefit of blood detoxification and general enhanced clearing of tissue toxins and bacteria can be claimed for high dose ascorbic acid (20-50 GMs IV). Vitamin C can be given in oral form too. Ascorbic acid powder equals about 5 grams per level teaspoon. This dose can be taken with water or juice as often as needed or until there is GI intolerance such as diarrhea. The clinical effects are similar to peroxide. In fact, the two can be given to a patient on the same day with excellent results. It must be remembered however; the vitamin C will also neutralize peroxide and thus should always be given after the bath. Mild JH reactions are also seen with vitamin C therapy again mainly when given IV. Such therapies as peroxide baths and vitamin C are easy to do at home and extremely effective at helping patients make a quick, safe recovery from a JH reaction.

    http://www.roadback.org/index.cfm/fuseaction/education.display/display_id/124.html

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #373433
    Rockin Annie
    Participant

    Thanks lynnie,

    Yes I am definitely experiencing, I think my very first herx! My whole body feels like a bus has hit it and now knowing my lungs are ok, can deal with it. Funny when I first started AP I used to wait for the herxing to start so I knew the AP was working, but it never did and I was disappointed and felt a bit doubtful about the whole thing. Now I realize the reason was because I started the abx very low and was also on pred, this time wow, I certainly can feel a difference, it feels like nothing I have ever experienced. I have lowered my abx dose to doxy MWF till I feel better.

    Thanks lynnie again for the info, am feeling better already lol………Rockin Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

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