I’m an “old timer” when it comes to AP, and I’m hoping to get some advice from my fellow RA’ers… I promise to make my history short and get to the point.
Diagnosed with RA in 2011- Strong family history of Rheumatoid Arthritis in my Dad’s side family.
Began AP July, 2012 (50 mg M-W-F). Experienced immediate response. Within a month I experienced I “herx” then got better- complete remission waking up one day with NO pain.
First remission lasted for about 2 months, then started having problems again. Lowered dose, took break, gradually got better, began ramping up my dosage again and become so ill that I was bed ridden- could not tolerate even (1) 50 mg capsule per week. Switched to Doxy for a few months… Not sure if I was flaring or herxing, but felt like death. AP doctor switched me back to Mino, however prescribed 10 mg capsules for a slow and low approach. Slowly began getting better almost immediately- not sure if this was due to the Mino or the fact that I got off Doxy, but sustained a return to health/remission from December, 2013-September, 2015, during which time I was on a low-dose of Watson Mino (20-20-20 M-W-F) and gradually tried increasing the dose by 10 mg every so often. In September I started sliding backwards and haven’t been right in about a year.
Since July of this year I’ve been on Watson Mino 50/50/50 M-W-F. I’m tolerating it okay this time around, but I can’t tell if I’m “herxing” or if I’m just getting worse from an RA perspective.
I’m looking for thoughts about what might be going on, or if I need to try a different approach?
Two additional symptoms- leg swelling and yellow tongue. Should I be concerned? Killer knee pain… Sigh.