Has anyone had UVBI ozone therapy?

[niteowl]

I wonder if anyone here has had UVBI therapy? Not so sure about this one.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[Maz]

Ultra violet blood irradiation? If so, I just spoke with someone advocating for a SD/RA patient who had done a series of these treatments and who had no quantifiable response. Have you tried it yet, Niteowl? If so, how did you find it?

[niteowl]

Hi Maz,
I had it done on Wed. I’ve decided it’s too intense for me. The IV and infusion are ok, but I progressively felt worse with each passing minute. I felt like I wanted to die. No redness at IV site, but my tricep in the arm with the IV feels like someone hit it repeatedly with a tire iron! I also got chills by that evening and had to resort to my emergency pain meds.I decided I needed to do something, so I took a Doxycycline 50 mg capsule that I had on hand. I got some relief with that. Too much pain for this procedure.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[Maz]

Niteowl, I’m just a fellow patient, but this reaction sounds a bit like phlebitis, injury causing inflammation in the vein caused by an IV catheter. If you haven’t mentioned it to the doc who did the IV, it might be a good idea to do so. In other words, it might be an isolated event, separate from the chills you experienced, or connected. It can be hard to decipher what causes what with some therapies – side-effects or true herxing. Let us know what you discover, Niteowl!

Btw, the gent who said his friend didn’t get any benefit from UVBI said he talked with one or two lupus patients who had good success with it. So, it’s probably a by-person/disease kind of thing.

[PhilC]

Hi,

You mentioned ozone in the subject line. Did your treatment involve ozone or just UV light?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[niteowl]

Hi Phil,
Looking at the charges, it’s showing an UBI with Heparin. Although the assistant kept saying ozone. But after reading the difference between the two treatments. It looks as though I had an UBI with Heparin as indicated on the charge.
I have another question; The day after I use our Jacuzzi(Dr Wellness) I also get increasingly sore – as in difficulty standing sitting or using shoulders and upper arms (starting to empathize with T Rex’s).

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[PhilC]

Hi,

Are you taking an antibiotic currently?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[niteowl]

I’m on Metronidazole three times a day for 10 days. Still having to take Norcor every 6 hours in order to stand up or sit down without feeling like I’ll faint from the intense pain. This feels like it might be straying from the AP regimine, idk.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[Pinkmoth]

I’ve tried 2 treatments out of 4 uvbi/ozone per recommendation of an AP doc.
Don’t notice any effect on my early stage SD yet. Yes it’s only been two treatments and maybe it would take a lot to make a difference. But they are expensive and it’s unpleasant.

Autoimmune: ANA positive speckled. Probable MCTD with SD overlap. Hashimoto's. Possible Erlos Danlos. Mold Illness.
Infections: Bartonella, toxoplasmosis, mycoplasma, EBV
Meds: minocycline (Zydus generic) 100mg 1x daily,
Supps: digestive enzymes, Monolaurin, Betaine hydrochloric acid, iron, quercetin, biocidin

[richie]

Hi I really dont see a cohesive approach –lots of otc supplements and pain killers –an anti fungal for 10 days —-Antibiotics have been stopped for whatever reason -even when taking it a very minimal dose –obviously you are having difficulty but I have to say the road you and your doctor is on is ineffective –time to reassess the entire picture -IMO

[PhilC]

Pinkmoth wrote:

I’ve tried 2 treatments out of 4 uvbi/ozone per recommendation of an AP doc.
Don’t notice any effect on my early stage SD yet. Yes it’s only been two treatments and maybe it would take a lot to make a difference. But they are expensive and it’s unpleasant.

My suspicion is that doctors who push ozone treatments are more interested in their patients’ money than their well-being. One woman told me in an e-mail that the doctor who was pushing her to do ozone treatments reminded her of a used car salesman.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[niteowl]

I agree with you, Phil. I was so ill by the time I drove home, I could barely get my hands to turn the steering wheel. I think Maz was right about drug induced Lupus and this so called treatment was the final straw. I even had pitting edema in my feet. I am now on Methylprednisolone as a gap to my AP protocol. I don’t have a reliable AP Dr in this state as we are down to the one that was pushing the UVBI garbage.
I am now on Methylprednisolone as a gap to my AP protocol. I had my Primary Start me on with the dose pack and now I am taking 12mg a day. I can’t believe how far down the rabbit hole I had gone! Taking a break from AB for now.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[niteowl]

Yes, I absolutely agree with you! There is no longer a reliable AP Dr in my state, sigh.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[Pinkmoth]

I will also mention that the needle used for this is absolutely enormous. so if you are doing this often it’s rough on your veins.

Autoimmune: ANA positive speckled. Probable MCTD with SD overlap. Hashimoto's. Possible Erlos Danlos. Mold Illness.
Infections: Bartonella, toxoplasmosis, mycoplasma, EBV
Meds: minocycline (Zydus generic) 100mg 1x daily,
Supps: digestive enzymes, Monolaurin, Betaine hydrochloric acid, iron, quercetin, biocidin

[niteowl]

I really think the Doctor that ordered this is bordering on quackery. If he accepted insurance, I’m pretty confident he would be closed down. In fact after I’m considering reporting his practice. There are alot of unsuspecting patients of his. He pushes many “treatments, all cash up front in the hundreds of dollars each. I really don’t believe in UVBI therapy at all, now. It was used in the past before vaccines for some nasty diseases, but it doesn’t sound like it really does anything.

Diagnosed with RA in 2012
Fifth Disease in '03
Lyme? in 2000?
Had radioactive ablation of hyperactive thyroid in 1997
autoimmune thrombocytopenia resolved
Anemia resolved with treatment of RA with Minocycline
Blood type: B neg

Meds:
Minocycline 50mg once a week
Levothyroxine .88mg
Liothyronine 5mg
Methotrexate 20 mg once a week

Folic acid
B12
B6
Vit D
Biotin
Biosil
Cbd balm
Flexaril as needed
Aspirin
Benedryl
Ventolin inhaler
Lactibiane probiotic

[Author]

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