Doctos find link between Mother’s Lyme and Child’s Autism

[bonnielou]

Very interesting article in the Chicago Tribune — check it out

http://www.chicagotribune.com/health/ktxl-treating-lyme-induced-autism-20110926,0,3794329.story

Bonnie Lou
RA 02/07,AP 10/07
Minocycline 200mg MWF; Plaquenil 100mg 3 days/week
Fish Oil, Ubiquinol, Turmeric, Vit C (2 grams) , MultiVit, Magnesium, Astaxanthin, D3 (5000), probiotics and a daily dose of yoga!

[lynnie_sydney]

Wow that’s pretty amazing. And sounds like the autism specialist is really across the spectrum of potential triggers.

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Trudi]

I agree with Lynnie–wow, what a find. Forwarded this on to my doctor!

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Joe M]

Hi,
I couldn’t find this article on the Chicago Tribune website (the link didn’t open for me either), but I did find this article on the Trib’s website, which is about a Dr. P in Iowa who is working as a LLMD, and it mentions Roadback.

http://www.chicagotribune.com/health/ct-met-illinois-lyme-doctor-20110713,0,3542528.story

[Maz]

@Joe M wrote:

Hi,
I couldn’t find this article on the Chicago Tribune website (the link didn’t open for me either), but I did find this article on the Trib’s website, which is about a Dr. P in Iowa who is working as a LLMD, and it mentions Roadback.

http://www.chicagotribune.com/health/ct-met-illinois-lyme-doctor-20110713,0,3542528.story

RBF has been aware of this article since it was published. The unfortunate aside to this article is that it was not mentioned that the poster who started the discussion thread, the thread from which the quotes in the article were lifted, was actually sharing that she had reached remission from scleroderma – a disease with supposedly no chance of remission – with this doc’s help! So, only a portion of this story was told in this piece and just the part the journalist saw fit to use to blacken this doc’s name.

viewtopic.php?f=1&t=5075&hilit=Dr.+P

Kind of bizarre to list his past annual income and assets in the article, lost to bankruptcy from a personal restaurant investment gone bad. I know of docs and surgeons in CT who earn far more than this doc and live in pretty swanky mansions. What has that got to do with anything these days? The journalism in this article has a lot of leaky holes that just don’t hold much water, especially with the patients who see this doc and love him and anyone who might delve a little deeper to read between the lines. The Chicago Tribune is a syndicated paper and publishes the same articles in the Hartford Courant and LA Times…they’ve been on a “mission” for a while now, denigrating the LLMDs on the front lines and treating Lyme. Hmmm….wonder who feeds them these stories?

http://articles.chicagotribune.com/2010-12-08/health/ct-met-chronic-lyme-disease-20101207_1_lyme-disease-raxlen-medical-boards

Considering the usual, very vocal IDSA members are now publishing opinion-based (????) articles in the Lancet about scary Lyme advocacy groups, wouldn’t put it past them if they’re just using these publications as another soap box for their oft-repeated rhetoric. How they got the following article published in such a prestigious scientific medical journal when legitimate Lyme research that doesn’t agree with their own somehow gets the boot in the peer-reviewing process is beyond me, but where there is an axe to grind – research monies lost, big egos at stake….science is a mucky business these days.

http://www.thelancet.com/journals/laninf/article/PIIS1473-3099%2811%2970034-2/fulltext

Just my two cents…not speaking for RBF in any capacity here. 😉

[Krys]

@bonnielou wrote:

Very interesting article in the Chicago Tribune — check it out

http://www.chicagotribune.com/health/ktxl-treating-lyme-induced-autism-20110926,0,3794329.story

I’m very sorry: it doesn’t open for me, either. A blank page. I wonder if it was removed due to not being anti-Lyme?

@Maz wrote:

http://www.chicagotribune.com/health/ct-met-illinois-lyme-doctor-20110713,0,3542528.story

… only a portion of this story was told in this piece and just the part the journalist saw fit to use to blacken this doc’s name.

viewtopic.php?f=1&t=5075&hilit=Dr.+P

The journalism in this article has a lot of leaky holes that just don’t hold much water, especially with …anyone who might delve a little deeper to read between the lines.
…they’ve been on a “mission” for a while now, denigrating the LLMDs on the front lines and treating Lyme. Hmmm….wonder who feeds them these stories?

Thank you, Maz. Very well said.
You are being kind by calling it journalism: I view it as pseudo-journalism not even close to what journalism should be. I had a link forwarded to me by a patient of Dr. P. the day the article appeared. What upset me was insanely passionate venom. I don’t want to pollute my mind again by rereading this trashy vomit. So I’m going on memory of what I read when it was first published. I have a lot of compassion for people with very sick minds but I’m surprised and saddened that they are allowed to publish posing as journalists. The author had all the facts to write a great story: a good surgeon with a great heart spends his vacation to do free surgeries within mission work in the poorest countries of the world. He contracts Lyme disease there which remains undiagnosed for 3 years. He develops tremors and cannot perform his duties as a surgeon. Scheduled surgeries keep getting canceled. Patients’ neglect? From the position of the patients: but of course! Hence complaints and disciplinary action. Yet, no harm done to any patient is mentioned, so it means that somehow he managed to avoid it, as sick with Lyme as he was. He cannot find what is wrong with him. Any surprise that depression follows? Psychiatric evaluation advised? Yes, and the author of this article would greatly benefit from one, too. Maybe if she started treating the underlying causes of her anger and the passionate need to destroy the purest of dedicated doctors, she would find some semblance of peace and maybe would be even able to do some good work. Some very deep wounds, mightily festering, are obviously behind this author’s need to harm, to destroy, while trying to please the powers behind IDSA’s approach. It is beyond sad that she did not even try to figure out and do some rudimentary research into chronic Lyme disease. I understand that it is her third attack on an LLMD. So she is on a mission to destroy those who treat Lyme. How convenient to IDSA “docs”!

I’ve been immensely blessed with having Dr. P. as my doc. What immense compassion, knowledge, skills and generosity. Such radiantly pure heart, such deep caring coupled with the sweetest personality!
I wanted to bring a friend from Asia for Lyme testing. She had her trip to US paid for by an angel friend and had room and board arranged, but not even a penny of income. Friends of friends, including me, were trying to help her find the cause and help heal rheumatic disease she was suffering from. I wanted to pay for her tests and asked Dr. P. if there was any way he could charge maybe lower fees if she came out positive for Lyme. I could not see how I could afford to pay for her treatment if there was a need for it. He told me to bring her for the tests and not to worry about the financial part, he would take care of her if the IGenex test showed she has Lyme!!!! Greedy doctor, huh?

I don’t even want to mention how much he charges for glutathione pushes. I don’t want to make anyone feel bad. But it is beyond low. When the port fell out of my vein, I was going to his office twice, including Saturday (he came there on his free day just to give me IV) and I was not charged a single penny. I tried to insist on paying and his answer was: “It’s only 3 minutes of my time, I’m not going to charge you for that!” Special trip to the office just to make it easier for me? “Oh, it’s OK. It’s not far for me.”

There ARE very competent, caring, generous angels out there. And he is one of them. 😀 My imagination has never been lacking but I cannot imagine a better doctor than Dr. P.!!!

Exactly a year ago I had to stop taking some of anti-microbial and anti-inflammatory herbs (was still taking very big amounts) due to having developed allergies to them. I started fast sliding down. All organ involvement, muscles, joints, tendons, lymph nodes, brain, eyes, Bell’s palsy, neuropathy, twitches, balance problems, sleeping problems, emotional problems….and the list could go on and on. I am not healed yet, but I’m SO greatly improved. Since starting AP it hasn’t happened even once that I would have to really focus to remember my name! It happened 3 times just prior to treatment. My hair stopped falling out and it is thick and shiny. I’m even growing back hair on my arms and legs. 😆 I sleep through the night. I can meditate again. I laugh a lot. My joints are flexible, no more ringing in the ears, no more neuropathy, no Bell’s, no numbness, no eyeball and muscle twitches, no heart involvement, no lung involvement….. I don’t even want to imagine what it would be like if I had been treated by Allen Steer. 😈
Thank you Dr. P., thank you RBF. It’s so wonderful that you ARE.

Warm wishes, Krys

[Trudi]

@Krys wrote:

http://www.chicagotribune.com/health/ktxl-treating-lyme-induced-autism-20110926,0,3794329.story
I’m very sorry: it doesn’t open for me, either. A blank page. I wonder if it was removed due to not being anti-Lyme?

I can no longer open this up either, I also only get a blank page. Strange!! 😡 .

Krys–great post!!

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Trudi]

I found the video and a shortened version of the article online. The doctor said that 20% of her autistic patients have tested positive for Lyme. 😯

http://www.wtkr.com/news/wtkr-dr-finds-link-between-lyme-disease-and-autism-20110929,0,7497514.story

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Krys]

Thanks for finding the link, Trudi!
Interesting and quite devastating. How very different her life would have been if Mary had been diagnosed with Lyme after the symptoms surfaced in babyhood. My heart goes out to her and all the undiagnosed ones, and all who are refused treatment because “Chronic Lyme disease does not exist”. So much unnecessary suffering and tragedy….

[Author]

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