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I have been experiencing a dry cough and significant throat pain with sudden episodes of runny nose and a tightness on my neck area (almost like if someone had their hands around my throat and squeezing). I have also started feeling TMJ pains and aches is this muscular or bone related?
I have attributed the throat pain symptoms to "nasal drip" or allergies but I am thinking is all related to mctd? Anybody out there have heard about these symptoms?
I have been struggling for almost 2 yrs trying to get a dx to begin to understand to at least manage the symptoms.
Any input would be appreciated.
MCTD-Morphea / Questionable Lyme
AP 5/10/08 Doxycycline 100mg x2/day
I haven't been dx'd with MCTD, but I certainly experienced a sore throat, raised glands and throat tightening in the weeks/months following getting Lyme Disease. These all eased up as things progressed on a combined antibiotic/anti-protozoal (for babesia) therapy.
I also had very painful TMJ-like symptoms and could barely open my mouth to eat. This was particularly bad in the early stages, too, when the pains were still in the migratory second stage of Lyme...would be on one side one day and the other side the next. Again, the TMJ disappeared with time on antibiotics.
Here's my personal progress thread in case it might help.
RA/Lyme - ABX since 11/06
Personal Progress Thread: viewtopic.php?f=3&t=301
Current Abx Protocol:
Clarithromycin 500mg BID re-started 11/5/13 (dose increased to 500mg BID on 7/3/14
Compounded Liposomal Artemisinin ("Artemisinin Essentials") restarted 7/3/14, 2 caps twice daily, 5 days per week for 3 weeks each month with 7 days off
Ivermectin 2mg (rx compounded) daily, started 9/21/11
Various staple supps: Enhansa, NAC, ALA, Morinda Supreme, KriaXanthin, B Complex, Milk Thistle, Dessicated Adrenal, Adaptan-All, Probiotics, Systemic Enzymes, Vit D3, Magnesium Citrate, Sodium Ascorbate, ImmunoPro, Nrf2 Activator, Liposomal glutathione, compounded topical progesterone.
Intermittent supps: Chemet every third day, along with NAC and BioPure Chorella followed by BioActive Minerals day following oral chelation. Weekly Myer's Cocktails and Glutathione IV Pushes for detoxification. Tri-salts and Opticleanse GHI.
FIR Sauna and other detox methods as described in Personal Progress Thread.
I had dry cough for almost 6 months, also had pain in my throat. I went to my family doctor many times, he could not tell why I had sore throat. Later, I realized it was due to acid reflux which caused my sore throat. Once I got the acid reflux controlled, the throat seems to get a little better. Now I have hoarse voice, sounds like a 90 years old lady. I don't know how to get rid of that.
Due to pulmonary fibrosis, it made me cough each time when I tried to catch my breathe. I did not realize I lost my lung capacity until this past Feb. My trachea has been very tight, feeling like having asthma. After Clindy IV, it seemed to loosen a little and my dry cough seemed to get some relief.
Lyme Diss/MCTD(or UCTD)/Raynaud's/Acid Reflux/lung problems/sinus/thyroid (hypothyroidism)/swelling sausage fingers/heart palpitations/anything which has a name I got it.
dx MCTD 2/2007
dx Lyme 12/26/2009
Lyme treatment 3/23/2010
Don't know what to tell you other than you're not alone. I've had a sore throat the whole time I've been sick. As soon as all this hit, my thyroid was damaged. I have a thyroid ultrasound every six months and it has nodules that are getting slightly larger, but the whole organ feels very hard so it probably has collagenized. The nodules have been biopsied and will be 'watched'. Hoarse voice -- my docs say could be collagen around vocal chords. Swollen cervical lymphs the whole time. My neck is probably my most painful area---very tight and the large veins buldging and hard with collagen. I've had a cervical disc fusion, due to a car accident that also dislocated my jaw on both sides, so definite TMJ issues here too.
Seeking out professional opinions on all this has resulted in a lot of 'could be's' and head scratching. Basically their guesses have been as good as mine because they just are not sure.
This stuff will make you crazy if you let it because it is frustrating and exhausting so try to not spend too much energy on specifics. Unless my situation really takes a dive, I try to limit my time with doctors because they just try to throw treatments and drugs at me that I want no part of.
Hang in there.....kim
SD, RA, MCTD, Hashimoto's, Osteoporosis, Sjogren's, Uveitis, Lyme dx 9/08, AP 8/05-3/08, MP 3/08-8/08, AP/Lyme protocol 9/08, 9/09-REMISSION.
~ whatever it takes ~ http://www.roadback.org/index.cfm/fuseaction/community.display/display_id/502.html
kim, you are so right, everytime you see a doctor they can only give you what's wrong and with sd they really have no idea.
1988-dx lupuslike symptoms, on salsalate & prozac:10yrs.98-new symptoms-dx sd-99-doxy,im
cleocin 300 wkly.yeast, 2000-iv/clindo;mino;stress/started over 2004;good til2006 tummy prob. starting over-2008:5-900iv,cleo,min:mwf
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