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it awas terrible, I was very near to die.
I didnt get any medications during pregnancy, in the end they thougt it was preeclampsia. They took my baby out in week 28. My doctor called an shouted to the staff at the regular hospital to take out the baby before the patient (me) will die otherwise!The dx me pah 2 weeks after delivery. I was then at the intenseve care, were I stayed for 1 month.
And now I cant have more kids. Its a nightmare.
I got sendoxan for 6 month, and now im on predisone, viagra ,cellcept and tracleer.
Ok, what will I do!!… im soo bad again my hands are sooo soo big and it hurts everyvere im so swollen !!! and my knees .BIG!
Feels like im loosing hope , maybe it dosent work any more… =/
:crying::crying::crying::crying::crying::crying::crying::crying::crying::crying::crying::crying: feels like it getting worse and worse im up on 5 mg pred AGAIN, feels like I need more anywayOk, I have used google translate so i hoope you can understand what this part is about, i found it on the internet, swedish.. maybe it is formulated strange
I have understand that you can compare pragnancy in mctd with pragnancy in lups.
Well here you go, hope you can understand a little bit of this 🙂
In SLE patients worsen the disease rather general (60-70%) during pregnancy, but symptoms are usually mild and are not bounded by A slight widening of the medication. It is rare that the disease is compounded significantly. If an SLE patient had mild symptoms for at least six months before pregnancy, it is quite unusual that the disease that occur during pregnancy. At about 5 – 15% of patients worsening symptoms after pregnancy. Even if a pregnant SLE patient's prognosis significantly improved in recent decades, has not been the same improvement in the child's prognosis. The risk of fetal loss in SLE patients is still two-to threefold compared with the healthy population. One in four children born prematurely and in 10% of the newborns present severe growth disorder. If the mother suffers from kidney inflammation or hypertension, the disease that occur during pregnancy and phospholipid antibodies may increase the risk of pregnancy complications. The latter antibodies can cause blood clots in the placenta and has therefore been considered to cause the poor prognosis for pregnancy. Treatment with aspirin and heparin to reduce the risk of miscarriage associated with phospholipid antibodies have shown promising results.
[user=1429]PhilC[/user] wrote:
I think her doctor is probably correct about pregnancy being a bad idea. I did some research on MCTD and pregnancy and came to same conclusion. There's a good chance her disease would get worse, but even worse than that is that her disease would be a danger to the baby. In addition, Lyme Disease is a definite possibility that cannot be ruled out without a thorough examination by a competent LLMD. All of these things together provide ample support for recommending against her attempting to get pregnant at this time.
Phil
Ok once and for all, what is Lyme Disease ?? i looked it up in the dicionary and I read in swedish “borrelia” ??? and borrelia I do know what that is but why are we talking about that??? A infection who spreads by ticks? :?:?:?
jup…. thats what he says, I do remember that he have said that thing Carrie talks about, that I can go into remission.. bur the chance to get worse is bigger.. WHY do they say different???
Noo.. he hasnt done any bloodcontrols, I think he mean that I will have a hard time to Be pregnant and that im going to get sicker during and after the pregnancy :/
I dont know my results of the bloodtests, he say that they are fine! and that my SR is normal as it always is.. But im in pain ,swollen and everything…
yes.. he really took my hopes down…going to meet him in a few weeks
[user=1504]judy cash[/user] wrote:
Sofie,
What a great picture, you look like a super model……… How do you look so great, when you are so sick?
Judy
Ooooo Judy thAAnk you! 🙂 well, i thing i loos sick the most of the time….. I always have that in my mind and im afraid people is going to see that:( but BIG thanks anyway! …maybe make up is my answere:dude:
Noo… i havent change it…..
Im VERY stiff this morning! have ine day left with the new antibiotic…have a hard time to think it will be better after that…
[user=40]Kim[/user] wrote:
[user=2526]zoofie_85[/user] wrote:
I have used ap now for some months, had a big success! have felt better and better! and now a week ago …. I awoke in the morning … stiff? giant swollen hands again .. feel generally bad again .. not as much as before but I've taken a step back ..
Why???:crying:Could it be diet related? Too much sugar, carbs, alcohol?
kim
no I can not say I ate more sugar than usual. or alcohol for that matter ..
took tests today, had a lot of white blood cells in urine? what does this mean?Ooooh my english!!!
Kim- Nooo im not preg, im trying to 🙂
Thank u Maz!
I wonder Kim and Maz, if I can ask you?
I take tetracyklin and its working, and im no longer having problems with my stomach. What do I need to take more? (probiotics) and why do i need probiotics? i take probiotics sometimes… for my stomach wich included i think it was like 50 billion of “the good things”… do i need it every day?
Thank u for youre replay, I have heard about that. In the minute i now im preg im stop taking tetra!
can i start with tetra again after the baby is born?
