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March 7, 2016 at 5:16 pm #455099
SJJ
Participantany news or updates to how youare doing with this?
March 3, 2016 at 5:50 pm #455086SJJ
Participantdid you use a blood test to confirm Cpn? or are you using this combo based on signs and symptoms only. I know on their site, they favour use without serological evidence because it can be difficult to find at times. I just wondered as hubby and I were discussing the benefits of getting the blood test as my doctor continues to wait until i get worse before diagnosing and i’m thinking of getting the blood work done for Cpn and mycoplasma (though i’m unsure where to go about doing it)so i can have a ‘reason’ for using antibiotics.
February 28, 2016 at 7:43 am #455055SJJ
ParticipantYea Jasregadoo it is paleo….i’m exploring some other options. Not sure the vegan thing is fully helping at all. I will remain dair and gluten free but just trying to decide if taking away more grains or adding back in some animal protein woud be beneficial.
Misty, I too have been looking into LDN but am unsure if it will help or if my Dr. will agree to it. How are you doing on it? How long does it usually take to know if it is working? I think patients can take both LDN and Mino at the same time. Hoping you find relief!February 28, 2016 at 7:38 am #455054SJJ
Participantthanks PhilC, i’m still hoping for the mino but we’ll see. at this point i’ll take what he’ll give me!
February 27, 2016 at 5:48 pm #455045SJJ
Participantrory, how were you able to ‘order’ doxycycline on your own?
February 18, 2016 at 5:29 pm #454982SJJ
ParticipantAnd if the mold has been cleaned up, then what? I only ask because I think mold has been what triggered all my symptoms. It has been cleaned up but my symptoms are still here…..not sure where to go from this point
February 10, 2016 at 2:50 pm #454866SJJ
Participantalso if you email this forum and ask for docs in your area that DO believe in antibiotics for arthritis, you may find the road much easier. they will send you a list
February 10, 2016 at 2:49 pm #454865SJJ
Participantwill your doc continue to prescribe flagyl? if so, why would you stop if it’s working? you could take flagyl with doxy and they work together…lots of protocols use both.
January 29, 2016 at 10:47 am #454772SJJ
Participantcould you maybe send me a lits of those doctors, scattered or not. Even if I could see them for a diagnosis I think it would be much easier to get local treatment.
January 29, 2016 at 10:45 am #454771SJJ
Participantlove these stories!!!
January 28, 2016 at 12:29 pm #454747SJJ
Participantthanks Maz, it is a little different here in Canada (as I’m sure you remember) because getting a doctor to do those non standard blood tests isn’t easy and there isn’t always a nearby lab that will do them either not to mention finding a requisition form. What of viral load…..since you are a wealth of info can I pick your brain for that one ;)? obviously antibiotics are useless in that situation. What then?
January 28, 2016 at 9:21 am #454744SJJ
Participantyay!!! so encouraging! thanks for letting us all know!
January 20, 2016 at 6:23 pm #454682SJJ
ParticipantI too have very low BP so this is quite useful info for me LynneG.SD! thanks for sharing. Can you share why you started using/wanted to use an ACE inhibitor in the first place?
January 20, 2016 at 2:36 pm #454678SJJ
ParticipantHow often do you use it Lynne G.SD? is it just for flares or a regular part of your schedule?
January 18, 2016 at 11:13 am #454644SJJ
Participantfrhorngal, so happy you are doing well! it’s wonderful to hear of successful outcomes.
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