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Viewing 15 posts - 1 through 15 (of 75 total)
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  • #463005
    Forum Admin
    Keymaster

    Forum Admin Message: The video posted above is not available for viewing and, therefore, this discussion thread must be closed to further comments as it cannot be moderated to check for suitability.

    #462712
    Forum Admin
    Keymaster

    RBF’s newly installed secure emailing system is up and running. Please visit RBF’s Contact Page for the new email address if you need to make contact for Administrative and Forum tech issues (only). For all other inquiries, please use this forum or the automated forms on site (e.g., to submit your AP Remission Story or to offer to Volunteer). Thank you.

    #459259
    Forum Admin
    Keymaster

    Suzanne, all

    In this system, if you just paste a link into the body of a post, it will come up with a visual of the site you are linking to. The image uses huge amounts of space. That’s why moderators changed the original post and hyperlinked the text.

    To hyperlink, click on link in the menu bar above and options will come up for pasting in the site’s url and what text you’d like to go with that link. That way, you are only using a line of text but with a link to the external site that can be clicked on.

    RBFV

    #458364
    Forum Admin
    Keymaster

    As a reminder to all forum users, please adhere to forum guidelines and, specifically, the ones highlighted in bold below.

    https://www.roadback.org/forums/topic/disclaimer-forum-guidelines-reading-recommendations/

    Forum users are requested to familiarize themselves with and abide by the following guidelines:

    Keep the primary focus of this community forum on discussion about, experiences with or questions about antibiotic protocols (AP) for rheumatic diseases and/or measures that may support and enhance the therapy
    Do not advertise or use the community forum for any commercial purpose
    Do not post any copyrighted material
    Do not use this forum to promote religious or political views
    Do not post the full names of physicians. Initials are acceptable
    Provide a locatable reference to the source of any scientific claims or quoted information
    Do not engage in personal attacks on any forum user (flaming)
    Ensure you have up-to-date anti-virus software installed on your computer

    #458289
    Forum Admin
    Keymaster

    RBFV message.
    We would like to remind all users that what might be seen as robust discussion or disagreement by one person may be seen as insulting by another. Please bear this in mind when constructing responses to posts with which you do not agree.

    Please also familiarise yourself with the Community Forum Guidelines. Forum Administrators may remove posts that violate any of the guidelines and will ban users who consistently disregard them.

    Community Forum Guidelines

    #457935
    Forum Admin
    Keymaster

    RBFV MESSAGE: Please be considerate of other users on this discussion forum. Forum Administrators may remove posts that violate any of the guidelines and will ban users who consistently disregard them.

    https://www.roadback.org/forums/topic/disclaimer-forum-guidelines-reading-recommendations/

    #456718
    Forum Admin
    Keymaster

    In the original post above there was an inadvertent mis-spelling in the PubMed link which has been corrected.

    We had one report that clicking on the mis-spelled link took the user to a fake apple mac site that stated a virus had been found. If any one using an apple device experienced the same issue, please be advised that the site is fake. DO NOT download anything from that site. If you have up-to-date El Capitan operating system, that should be sufficient to block the site with no action needing to be taken. See here:
    https://discussions.apple.com/thread/7579974?start=0&tstart=0

    For anyone using an older operating system on their apple device, see information here:
    https://support.apple.com/en-au/HT202225

    RBFV

    #456651
    Forum Admin
    Keymaster

    Road Back Foundation has removed the introduction and link to your personal website pending removal of material that is copyrighted as well as the names of practising AP Doctors. In addition to the issue of copyright infringement, publishing AP Doctor names contravenes The Foundation’s longstanding policy to protect AP provider privacy.

    You are welcome to re-post the link once the above have been removed. RBFV

    #455671
    Forum Admin
    Keymaster

    The last 2 posts in this thread have been removed because they contravene Forum Guidelines and are inflammatory.

    Forum users are requested to familiarize themselves with and abide by the following guidelines:

    Keep the primary focus of this community forum on discussion about, experiences with or questions about antibiotic protocols (AP) for rheumatic diseases and/or measures that may support and enhance the therapy
    Do not advertise or use the community forum for any commercial purpose
    Do not post any copyrighted material
    Do not use this forum to promote religious or political views
    Do not post the full names of physicians. Initials are acceptable
    Provide a locatable reference to the source of any scientific claims or quoted information
    Do not engage in personal attacks on any forum user (flaming)
    Ensure you have up-to-date anti-virus software installed on your computer

    Forum Administrators may remove posts that violate any of the above guidelines and will ban users who consistently disregard them

    #454859
    Forum Admin
    Keymaster

    Welcome Ben

    Just to let you and all newcomers know that first posts are required to be moderated before being visible. It’s a SPAM preventive measure. That’s why first posts can take a while before being visible. All posts after the first will go straight through.

    There is a notice to this effect on the forums front page.

    RBFV

    #313780
    Forum Admin
    Keymaster

    Denyse
    Image removed as requested.

    You will need to reduce size substantially to upload. Look at the pixels in the jpeg and suggest 200 pixels wide might be a suitable size.

    RBFV

    #366646
    Forum Admin
    Keymaster

    @JustDiagnosedChris wrote:

    After all, I try to be understand that most of you probably have no faith, but the truth is the truth regardless.

    RBFV Admin has made the decision to close this discussion thread to further comment as per forum guidelines and because it doesn’t serve the mission of this foundation:

    viewtopic.php?f=1&t=1

    FORUM GUIDELINES:
    1.Please do not advertise or make use of the forum for any commercial purpose
    2.Please do not post the names of physicians. Initials are acceptable
    3.Please keep the discussion forum’s primary focus on questions about, experiences with or information related to antibiotic protocols (AP) for rheumatic diseases and/or measures that may support and enhance the therapy
    4.Please do not post copyrighted materials.
    5.Please ensure that scientific claims and quoted information contain an appropriate reference to the source
    6.Please do not engage in flaming (personal attacks on any support forum user)

    RBF retains the right to remove posts which violate the above guidelines and to block any user who consistently disregards them.

    #373757
    Forum Admin
    Keymaster

    @richie wrote:

    The entire country is all shook up over the Ebola virus –yet worldwide there are approximately 4500 deaths and most of these are attributed to poor conditions in the African countries –yet in the year 2010 in the United States according to the CDC there were 53826 deaths attributed to influenza and pneumonia–when the subject is brought up here -all kind of stories about why its dangerous –“I know a person who knows a person who had a bad reaction” etc etc etc and on and on –does this entire thing make sense –in my world is sure doesnt !!!!!!!!!!!!!!!!!! –Oh yes vaccines are available for egg allergy folks -not made of eggs–
    richie

    RBFV Message: The nature of this discussion and its subject have gone beyond forum guidelines in regards to whether flu vaccinations may or may not be a supportive health measure for rheumatic patients. If readers wish to further examine whether they should or should not have an annual flu vaccination, please use the search box at the top of the General Discussion forum to refer to past discussion threads that have already covered this topic extensively.

    For further explanation of why this decision has been made, please refer to this forum’s guidelines, located at the following link:

    http://roadback.org/forum/viewtopic.php?f=1&t=1

    DISCLAIMER:
    The Road Back Foundation (RBF) provides educational information about the use of antibiotics for rheumatic diseases and an online community for patient-to-patient support. As this is an open forum, posts inquiring about other treatments may be referenced. Individuals should consult with their physician regarding any protocol that they are considering. RBF does not endorse any specific products, treatments or protocols and is not affiliated with any other website or support forum. The personal opinions expressed on this forum do not necessarily reflect those of the Foundation.

    FORUM GUIDELINES:
    1.Please do not advertise or make use of the forum for any commercial purpose
    2.Please do not post the names of physicians. Initials are acceptable
    3.Please keep the discussion forum’s primary focus on questions about, experiences with or information related to antibiotic protocols (AP) for rheumatic diseases and/or measures that may support and enhance the therapy
    4.Please do not post copyrighted materials.
    5.Please ensure that scientific claims and quoted information contain an appropriate reference to the source
    6.Please do not engage in flaming (personal attacks on any support forum user)

    RBF retains the right to remove posts which violate the above guidelines and to block any user who consistently disregards them.

    #373193
    Forum Admin
    Keymaster

    @JustDiagnosedChris wrote:

    Let’s say someday I want to go live on my dad’s old property in the wilderness in Alaska or something, doctors will be very far away. Is there some way I can get minocycline without needing a doctor prescription?

    RBFV Message: The Road Back Foundation does not advocate the illegal import or use of any drug that requires a licensed physician to prescribe.

    http://www.viewtopic.php?f=1&t=1

    DISCLAIMER, FORUM GUIDELINES & READING RECOMMENDATIONS

    “DISCLAIMER:

    The Road Back Foundation (RBF) provides educational information about the use of antibiotics for rheumatic diseases and an online community for patient-to-patient support. As this is an open forum, posts inquiring about other treatments may be referenced. Individuals should consult with their physician regarding any protocol that they are considering. RBF does not endorse any specific products, treatments or protocols and is not affiliated with any other website or support forum. The personal opinions expressed on this forum do not necessarily reflect those of the Foundation.”

    Please visit the FDA website to read further on this matter:

    http://www.fda.gov/NewsEvents/Testimony/ucm113635.htm

    #372976
    Forum Admin
    Keymaster

    Nuket
    Answer below has been posted on Zeljana’s own post re this. Thank you for your offer to help. We are trying to re-instate her original profile.
    RBFV

    Zeljana
    We are very sorry to say that your original registration was mistakenly deleted amongst hundreds of spam registrations two days ago. We have asked the webmaster if there is a way to restore your original registration and posts and we ask for your patience while this is being looked into. Meantime, please continue to post under the new registration and, once again, we are very sorry for the error.

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