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Hello Maz and all,
Quick update, I’m still not showing enough clinical symptoms to get a medical diagnosis (positive ANA + centromere b) anyway, instead of waiting around I’ve been able to “score” some doxycycline. I’m doing this on my own because no doctor would help me! I am taking a Monday Wednesday, Friday 100 MG regiment.
Does anyone agree, disagree or have any advice? Thank you all I hope everyone is happy and healthy 👍 soVincenzo,
Thank you so much for your story and your encouraging words. I’m am trying to find an innovative doctor that believe in AP TV therapy and takes insurance.
this has become a task!!!
God bless you and thank you!Maz,
I’m trying to leave the AP door open and learn about it. I tried discussing it with my doctors but they cannot think outside the box!
I’m told I “only” have the antibodies due to my blood work.
I can’t be diagnosed by labs alone and healthy people can also have these positive antibodies.
Hopefully, I’ll only carry the antibodies and will never have this horrible disease.
Do you agree with that? I can carry the antibodies but not manifest into scleroderma?
Thanks again!!!Hi Maz,
Thank you so much for your reply. Long story short, I am a very active 50 year old. Still playing sports. About a year ago I started experiencing tingling, burning
and swelling sensation in my feet. While playing ice hockey I started experiencing dizzy spells & shortness of breath. After many blood tests and different doctors. I changed my GP and my new doctor tested my ANA. Its was a high positive followed by all the routine tests and various doctors.
Lungs and heart are fine. Even my nail fold capillaries test was normal. But sitting back waiting for this disease to start attacking me is already killing me!
I can’t sit back! There’s gotta be a way to stop it!
