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  • #463887
    Jeanies Girl
    Participant

    I hadn’t even gotten to the benefits of honey yet when I wrote the last post. Here is what I found.

    “honey can disperse and kill bacteria living in biofilms” this is from Therapeutic Manuka Honey: No Longer So Alternative https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4837971/

    There is quite a bit more that is worth reading.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #454237
    Jeanies Girl
    Participant

    If you are asking what type of arthritis produces the nodules, I understood that to be rheumatoid. If you are asking what type of arthritis she has, I don’t know.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #454172
    Jeanies Girl
    Participant

    Frthorngal,

    I wish I could give you a big hug and an answer. This “thing” can be so discouraging, sometimes worse than other times. Pull in and give yourself every necessary break you can to psych yourself up for the next big push back against this illness. The only thing I know enough to suggest is go back to basics (the things you do know work well), commonsense stuff (like the eating right, lots of water, rest), study and seek counsel (hopefully amid all of that you will get some clues to help). I realize you are already doing some of this stuff but if you able try to add where you can. One lady told me she has found Alka-Seltzer Gold helps her with the pain/inflammation.

    My prayers are with you.
    Jeanie’s Girl

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #453233
    Jeanies Girl
    Participant

    For me I have trouble enough remembering to take what pills when (some with food and some without, and not to take Vit D with iron, etc). If I space it on days I’m not taking mino then I can better keep up with it. As for spacing 2 hours, I have read that is enough, but I’ll let the more knowledgeable ones speak on that.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #453209
    Jeanies Girl
    Participant

    Yes. Little bit by little bit light is being shed on this. I think I was needing a name to put to this problem, so I could then know what I’m up against. It may be that the only name it has is it is a mycoplasm infection. This is a fact and I can keep working on how to best fight this. In the meantime, if I’m not feeling better I need to continue to search out other clues. I feel in my gut, (ha, ha) that I’m also dealing with a leaky gut.

    Thank you for pointing me to the FAQs 37-40. I read them and they were very helpful. I knew magnesium interfered with the AP absorption, but I was unaware of the calcium (which my husband takes), and iron (which I take). We will take those supplements on the days we aren’t on the AP. I’ll also spend some time reading up on the FAQs as a whole to glean more info.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #450020
    Jeanies Girl
    Participant

    Drats!!!

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #446718
    Jeanies Girl
    Participant

    Maz,

    Is the mycoplasm the bacteria that causes the rheumatiod diseases?

    I have been tested for lyme, E. chaffeenis, A. phagocytophilum, Q fever, babesia microti, B. henselae which were negative.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #445741
    Jeanies Girl
    Participant

    Maz,
    I have never been told I have RA and my RA factor was okay. The symptoms I’ve been dealing with I’ve had for approximately 20 years. I tested positive for mycoplasm (4.06). The doctor I have been going to initially felt from the symptoms I had that I might have one of the rheumatoid diseases and that is why she tested me for the mycoplasm. Both my husband and I have had similar symptoms, and he has also tested positive for the mycoplasm but not as high. Early on both of us went to a couple of doctors each. Two out of the three doctors I went to said I was depressed. I told them I didn’t think that was my problem. They said you can be depressed without realizing it. They wanted to put me on anti-depressants, but I didn’t feel that that would correct the root problem. My husband went to one doctor who said the same thing and the other doctor said, “He couldn’t do anything for him because there was nothing wrong with him.” (Wish I could figure out how to put one of those growly faces here to express how I feel about that!!!!) Anyway we adjusted our diet to a pretty much whole food diet and that made a world of difference, but I think after so many years with this bacteria running around our bodies we just can’t seem to get to level ground. I’ve wondered would this develop into RA if we didn’t get a handle on this? I don’t have clear answers as to where we really stand.

    Basically both of us have stayed away from doctors because we haven’t had much success with them. In May of this year (2015) I went to the doctor to get some baseline testing done and when the doctor started asking me questions that is when thought she should test for a bacterial infection that might be related to the RA. So I’ve had the symptoms for a long time but wasn’t diagnosed with the bacterial infection until May 2015.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #443106
    Jeanies Girl
    Participant

    Spiffy,
    The husband and I use kefir as our source of a probiotic. In Donna Schwenk’s book “Cultured Food for Life” she states there are between 30 and 56 different strains of good bacteria in homemade kefir. The website for Lifeway Kefir states that each cup of their kefir has between 7 to 10 billion CFU (Colony Forming Units).

    The husband and I discussed whether we wanted to take probiotic capsules or rely on the kefir. (We also drink kombucha now, too.) We felt that to take enough probiotic capsules for the both of us was very costly. We weren’t sure if we could even trust that the probiotic was alive and would stay alive long enough to get to the gut. Everything we read about the kefir led us to believe it would be a good choice because it so full of probiotics, so easy to make, and cost effective.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #422088
    Jeanies Girl
    Participant

    Thank you Maz for repeating the fact that it generally takes 6-8 months to see a decent improvement. I, too, am in this for about 3 months and have been battling discouragement. There have been improvements. The brain fog is gone. The fatigue is still pretty bad, but it is at a consistent level which is helpful in trying to manage life. In the scheme of things I have trudged along for the last 20 years, I can certainly trudge along a little longer and maybe by Christmas I’ll be a ball of fire.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #415243
    Jeanies Girl
    Participant

    Spiffy,

    I could be wrong, but I understood that it wouldn’t be the probiotic eating up or destroying the antibiotic but the other way around. The antibiotics destroy the bacteria, both good and bad. I love kimchi and we do try to eat fermented vegetables for the reasons you stated. There are 2 wonderful sites I use, “Cultured Food for Life” and “Cultures for Health”. Just a note: I love the kimchi but I cannot eat it. I don’t know if it is the salt or what, but I don’t feel good on it. My husband and two of my boys eat the fermented veggies. We also use kefir and kombucha which I do fine with. Another note: My husband said he noticed he didn’t need Advil for all his aches and pains, and he had less heartburn when we started the kefir and the kombucha which was the same time we started the AP.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #375082
    Jeanies Girl
    Participant

    My husband is complaining of his nose being red (at the tip) lately. Could this be because of the antibiotics and the sun? He hasn’t been very careful to stay out of the sun and other than this issue hasn’t seemed to have any problems. Also, it doesn’t look like a sunburn or even act like a sunburn.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #375497
    Jeanies Girl
    Participant

    Emmaline,

    I thought I would pass on the information that my doctor’s office gave to me. I asked what she recommended to help with detoxing while we were going through the AP. She recommended Milk Thistle to detoxify the liver.

    Best of luck to you.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #375393
    Jeanies Girl
    Participant

    Wow. I’m glad I asked. Thank you for the info. I’m sorry for your daughter, but I’ll definitely learn from her experience. I have enough to deal with without adding insult to injury.

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

    #375192
    Jeanies Girl
    Participant

    I’m going to throw my theory out there for some digestion. 😆

    I was told that everyone has mycoplasma in their system, but in some it becomes an infection that gets out of control. My thinking is that if we have a leaky gut the mycoplasma gets dumped into the bloodstream and then has free reign to reproduce unchecked or because we don’t have enough good bacteria and yeast in our gut our system is not able to kill it as it normally would.

    One thing Pat Blair said in the video that was interesting was on the 4th day she was better. That was always the case when we detoxed from MSG. It would always be 3 days of misery after eating something we shouldn’t have. Also, it’s always 3 days for our little guy when he has milk or wheat.

    Now for the story for our little guy. We fostered him when he was 3 and 1/2 (this was obviously when we were having a good year) and then later adopted him. When we got him he did not speak, he had terrible tantrums, obsessed with anything that was spinning, droopy eyes, dazy look, not walking in a straight line, not crying when hurt, and other things I can’t think of off the top of my head because it has been so long. Anyway someone suggested his obsession with spinning things was a sign of autism. I didn’t really think so, but I read up on it. I read a book by Karyn Seroussi “Unraveling the Mystery of Autism”. She felt that the milk protein and wheat protein was dumping in the kids’ systems and acting as an opiate. She said that normally the protein is broken down in our gut but because of a leaky gut it is passed into the system as a protein. Our little guy mostly was affected by milk but we took him off wheat, too. When he first went into foster care he was initially with another family temporarily for 4 months. When that foster mother first got him the first thing she had to do was take him to the ER because his tummy was so hard due to constipation. She had to have him on Miralax the entire time she had him. When we got him, we lessened his milk intake by accident and he had a more whole food diet and never had to have the Miralax again.

    I have since read about the GAPS diet (Gut and Psychology Syndrome) by Dr. Natasha Campbell-McBride who treated her own son for a severe learning disability with this diet. I have read other material that talks about healing the gut with bone broth and then replenishing the gut with probiotics (kefir, cultured veggies, yogurt, etc.). There is a wonderful site http://www.culturedfoodlife.com by Donna Schwenk who cured herself of high blood pressure, diabetes, and liver problems.

    So my thought is that Little Boy, Husband, and I may possible have the same root problem, a leaky gut. I think our problem has to be fought from two fronts. I think we have to heal the gut to prohibit any future problems and use the AP to attack the mycoplasma that was let loose. This is my unprofessional opinion. 😉

    FYI: Once we took Little Boy off milk he started talking. Now he talks more than anyone else in the family and even talks when no else is around. 😆

    DX: Bacterial (mycoplasm) infection
    AP: Began June 2015
    Clindomycin IV 900 mg-every 3 months for 5 days
    Minocycline 100 mg MWF am and pm
    Flagyl 500 mg 2 x day for 3 days in a row every month
    Symptoms: Since approximately 1997-Extreme fatigue, (Intermittent: muscle weakness, stiffness, brain fog, lack of stamina)
    Supplements: Vit. C 3000 mg, Vitamin D 5000 IU every other day and 10,000 on remaining days, Vitamin B complex, Fish Oil 1000 mg 2 x day

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