[A Friend]

Lynnie, All,
It will be interesting to read the reply about Turmeric interactions with Mino. Several years ago Dr. K wanted a class in natural medicine, and decided to teach the course rather than take it. It will be interesting to learn the source of the answer about Turmeric interactions with Mino. [By the way, I have posted only several times since this new format came into being here. Do you have a kindergarten class for beginners on this new format? It is all Greek to me. Seriously, I would love it if there is a place on this site to train me. Even the little boxes above are “Greek” to me.]
Best to all of you,
AF

[A Friend]

Just read your post… after my being away from RBF for quite a while, though I miss all of you so much. I remembered having similar problems a number of years ago, did a search of my Word Documents to see what I might have in my files, and a copy of one of my posts on Road Back had been stored there some years ago and it showed up. Hope the information is helpful. Dr. Balch was always one of my favorite references. My foot problems have not returned. My education about acidic wastes and acidosis began with hurting feet. I could hardly walk – and then Dr. Balch’s info rescued me… for a long time being!

[However, one thing I was totally ignorant of until the past year was the Lymph System. It’s my belief that all of us with chronic illness would benefit from learning ways to keep our lymph fluid moving — and improve our education about it by learning all the we can. The Lymph System is on par with importance of our blood system. Good luck to you and all! AF

Sent: Wednesday, October 17, 2007 10:40 AM
Subject: pH… Acidic Wastes and pain syndromes in the body

Posted by A Friend on Wed – Oct 17 – 10:41am:

In Reply to: Sun City Center, FL posted by Nancy – RA on Wed – Oct 17 – 08:56am:

Nancy,
When I was fairly new on AP, and had passed the time of the expected 4 months of herxheimer reactions, I was having an amazing turnaround and was feeling very well. Then I began having extreme pain in my feet and toes. After much searching and asking Dr. S in Iowa about this, he didn’t have any answers for me.

Then, one day, while searching in the book, Prescription for Nutritional Healing, by urologist James Balch and his wife, a CCN, I stumbled across information that said if one is on tetracycline medications and one is eating meat (and I’m sure other foods in the high acidic range), that a buildup of acids can cause gout or a pseudo gout in some people. Even though my own subsequent AP physician emphatically told me my uric acid levels were not elevated, some type of acids WERE elevated!!! So, I immediately stopped eating red meat and pork — and I was otherwise already on a very strict, healthy diet. I’m not exaggerating… every day for the next 10 days, the excruciating pain in my toes when I tried to walk just day by day got better and better.

After about 10 years now (slow learner me), I’ve finally learned that I am a slow detoxer, and my acidic waste storage level (they get stored in the tissues when our body’s can’t neutralize them and excrete them) has probably been building up in my tissues for most of my married life, as we’ve primarily had red meat, pork, and fowl as protein sources … a lot of years … as my spouse doesn’t like any forms of fish or seafood — and I’ve recently learned that Type A blood-types do not tolerate meat well at all, because of insuffient HCL and because of the reactions of this Blood Type to the lectins in food (I believe the word I read is “lectins”, but anyway the reactions have an adverse effect…will have to get back with you to verify what I read… and there are scientific studies on this … that the medical community seems to have never seen). Also, Blood type A’s, I read, would do well to practically become vegetarians.

At any rate, after doing so very, very well for 7+ years, I’ve been in a slow, downhill “glide” since about 2003… and could find no answers to why I was feeling so terrible and was finally developing fascia and bone pain, as I was very disciplined and very rigid about doing the things I’d learned were supposed to “make it all better.” MY MISSING LINK was my own body’s reaction to acid-forming foods in my body, and my body’s inability to detox this acidic waste. These stored wastes — over especially the past 10+ years — have also caused some serious-looking changes to my bones, as shown on bone scans, etc. Fortunately, though these were definitely thought to be very serious, no tumor was found in serial CT-directed bone biopsies.

If you are newly on AP, then a certain amount of pain, etc. is usually expected for at least 4 to 6 months — perhaps others have this even longer. If your pain continues longterm, consider learning more about this acidic waste subject. Contrary to what it seems most medical doctors say about this, it is VERY valid for many. I’ve read much helpful information by respected doctors and scientists from the Internet, and recently purchased books by R. Young, and one by T. Baroody. I would not take for what I’m learning from both of them… very indepth. However, for day to day use, I’m finding the Baroody book very user-friendly when it comes to ideas and more “simple” guides for ideas for actual use with my own food preparation.

Good luck to you!
AF

Nancy – RA wrote,
: Hi all… does anyone know of a GOOD AP doctor (or
: AP sympathetic)around this area? How can there
: not be one in a retirement community????
:
: Also, at the advice of some fellow RA’s I cut down
: my (generic brand) mino to once a day instead of
: twice — 100 mgs. each. I’ve been experiencing
: more pain throughout my body since I changed the
: dosage. Any ideas why and will this EVER go away?
: The pain and depression is sometimes
: overwhelming. 🙁
:
: Appreciate any advice you’ve got!
: p.s. I’ve been on AP for about a month

[A Friend]

Just read your post… after my being away from RBF for quite a while, though I miss all of you so much. I remembered having similar problems a number of years ago, did a search of my Word Documents to see what I might have in my files, and a copy of one of my posts on Road Back had been stored there some years ago and it showed up. Hope the information is helpful. Dr. Balch was always one of my favorite references. My foot problems have not returned. My education about acidic wastes and acidosis began with hurting feet. I could hardly walk – and then Dr. Balch’s info rescued me… for a long time being!
[However, one thing I was totally ignorant of until the past year was the Lymph System. It’s my belief that all of us with chronic illness would benefit from learning ways to keep our lymph fluid moving — and improve our education about it by learning all the we can. The Lymph System is on par with importance of our blood system. Good luck to you and all! AF

Sent: Wednesday, October 17, 2007 10:40 AM
Subject: pH… Acidic Wastes and pain syndromes in the body

Posted by A Friend on Wed – Oct 17 – 10:41am:

In Reply to: Sun City Center, FL posted by Nancy – RA on Wed – Oct 17 – 08:56am:

Nancy,
When I was fairly new on AP, and had passed the time of the expected 4 months of herxheimer reactions, I was having an amazing turnaround and was feeling very well. Then I began having extreme pain in my feet and toes. After much searching and asking Dr. S in Iowa about this, he didn’t have any answers for me.
Then, one day, while searching in the book, Prescription for Nutritional Healing, by urologist James Balch and his wife, a CCN, I stumbled across information that said if one is on tetracycline medications and one is eating meat (and I’m sure other foods in the high acidic range), that a buildup of acids can cause gout or a pseudo gout in some people. Even though my own subsequent AP physician emphatically told me my uric acid levels were not elevated, some type of acids WERE elevated!!! So, I immediately stopped eating red meat and pork — and I was otherwise already on a very strict, healthy diet. I’m not exaggerating… every day for the next 10 days, the excruciating pain in my toes when I tried to walk just day by day got better and better.
After about 10 years now (slow learner me), I’ve finally learned that I am a slow detoxer, and my acidic waste storage level (they get stored in the tissues when our body’s can’t neutralize them and excrete them) has probably been building up in my tissues for most of my married life, as we’ve primarily had red meat, pork, and fowl as protein sources … a lot of years … as my spouse doesn’t like any forms of fish or seafood — and I’ve recently learned that Type A blood-types do not tolerate meat well at all, because of insuffient HCL and because of the reactions of this Blood Type to the lectins in food (I believe the word I read is “lectins”, but anyway the reactions have an adverse effect…will have to get back with you to verify what I read… and there are scientific studies on this … that the medical community seems to have never seen). Also, Blood type A’s, I read, would do well to practically become vegetarians.
At any rate, after doing so very, very well for 7+ years, I’ve been in a slow, downhill “glide” since about 2003… and could find no answers to why I was feeling so terrible and was finally developing fascia and bone pain, as I was very disciplined and very rigid about doing the things I’d learned were supposed to “make it all better.” MY MISSING LINK was my own body’s reaction to acid-forming foods in my body, and my body’s inability to detox this acidic waste. These stored wastes — over especially the past 10+ years — have also caused some serious-looking changes to my bones, as shown on bone scans, etc. Fortunately, though these were definitely thought to be very serious, no tumor was found in serial CT-directed bone biopsies.
If you are newly on AP, then a certain amount of pain, etc. is usually expected for at least 4 to 6 months — perhaps others have this even longer. If your pain continues longterm, consider learning more about this acidic waste subject. Contrary to what it seems most medical doctors say about this, it is VERY valid for many. I’ve read much helpful information by respected doctors and scientists from the Internet, and recently purchased books by R. Young, and one by T. Baroody. I would not take for what I’m learning from both of them… very indepth. However, for day to day use, I’m finding the Baroody book very user-friendly when it comes to ideas and more “simple” guides for ideas for actual use with my own food preparation.
Good luck to you!
AF
Nancy – RA wrote,
: Hi all… does anyone know of a GOOD AP doctor (or
: AP sympathetic)around this area? How can there
: not be one in a retirement community????
:
: Also, at the advice of some fellow RA’s I cut down
: my (generic brand) mino to once a day instead of
: twice — 100 mgs. each. I’ve been experiencing
: more pain throughout my body since I changed the
: dosage. Any ideas why and will this EVER go away?
: The pain and depression is sometimes
: overwhelming. 🙁
:
: Appreciate any advice you’ve got!
: p.s. I’ve been on AP for about a month

[A Friend]

After a few days, and giving this topic more thought, I want to share some of my recent thoughts about our chronic illnesses and things I’ve learned the past year or two, and things I believe all of us need to learn more about. I’ve been at this researching business for over 20 years (almost daily), and the subject is Lymph seems to be overlooked by us. I’ve learned the Lymph System is a staunch ally, but if it stops working correctly, “can” be the cause of problems.

Here is a link I encourage us to become thoroughly familiar with. I believe it can be one of our staunchest allies — the link has numerous sections/topics within. I didn’t re-read it today, and am rushing, but will add to it later if needed: http://www.livestrong.com/article/321630-herbs-that-promote-lymphatic-drainage/

[A Friend]

This link might shed some light on the subject of shin bumps.
http://www.rightdiagnosis.com/sym/shin_lump.htm
In desperation over the past several months, I began reading much on Lymph function. This is an important subject that I’ve not run across (or, at least, not noticed), and it turns out some problems have existed for me in those areas for some time.
Best,
AF

[A Friend]

Calida,

I’ve been absent from Roadback for a time. I found an important-to-me link with information about reactions to high dose D3. I wanted to share the link I found more recently, so did a search and found your post.

In early 2013, I had a horrific reaction after beginning my doctor’s continuing requests that I take high dose Vit D3. Problems began full-force after only 5 days on it. A full year of uncontrollable Irritable Bowel Syndrome was unleashed. Many posts were exchanged on the board on this subject.

As difficult as this period was for me (and I’m sure I didn’t absorb many nutrients during this time, which caused other problems), some light was shown on a longterm existing post-dental-wisdom-teeth-extraction condition (a condition unknown about by me, but it actually was the trigger to my 20+ years of chronic illness). I recently just happened onto information in the link below about a probable related cause of this reaction condition, and this link telling more about reasons for high dose D-3’s toxicity:

http://ctheblog.cforyourself.com/2008/12/overdosing-on-vitamin-d-side-effects.html
Thursday, December 11, 2008
Overdosing on Vitamin D: Side Effects, Toxicity, Symptoms, Poisoning

The above link — along with the posts on your RBF thread to “It’s Overwhelming” give me a lot food for thought.

Thanks for all the sharing by you and others.

AF

@Calida wrote:

@Maz wrote:

This is just a hunch, but as the Apo zith is well out of your system now, it’s possible that the generic had something to do with triggering a flare (or something else, like a seasonal flare, hormonal or stress flare, etc), but if you were on the same Teva zith dose as before, then it makes less sense that it would be the dose now, unless there is something else going on, like candida overgrowth. You mentioned being on Nystatin, so it’s less likely it’s that, but still might be worth testing.

Maz, do you think 6 weeks of ineffective Apo could have not only caused regression but triggered additional (new) problems? I felt as if the prison guards walked off the job and the inmates destroyed the prison. I wasn’t stressed at the time, physically or emotionally, but there was a sudden hormonal change so I’m looking at that, too. This intractable deep itching is a brand new symptom.

I’m guessing that the 5-MTHF sup will be a critical piece of your picture in terms of detox issues. The mino is very critical, but being able to help your body get rid of toxins from dying bugs is pretty important, too, especially with neuro probs that could be exacerbated by neuro-toxicity. Note that I’m just saying “could,” “might,” “may,” because everyone’s situation is unique and these are just fellow patient speculations to talk with the doc about. Fortunately, Dr. M. is right on board with detoxification, so he’s well-versed in all that entails.

I think you’re so right about that. The sudden cessation of perspiration (in Oct.) combined with the severe inflammation and the return of an effective Zith must have jammed the detox channels and caused toxicity. I know I need Dr.M’s help with upping the detox process. I tried the lemon-olive oil drink but it makes me do a spastic dance, as if Tourette’s joined the list of problems. I can’t use a far infrared sauna due to my light sensitivity so I’m left with the baths and glutathione and a few I haven’t tried yet.

The photosensitivity and Vit D may well be related. As you’ve got elevated liver enzymes right now, adding another drug may not be wise (i.e. Lyrica). Are you taking milk thistle, Calida, as a regular supplement? If not, perhaps you could ask Dr. M. if it’s okay to add this. Not only is it helpful for liver detox, but should help to lower liver enzymes. In fact, if he thinks you’re okay to do this, he may even give you his protocol for doing a liver flush. Again, just a hunch, but the liver enzymes could also be pointing to detox issues and building neurotoxicity as a result.

I believe the D and photosensitivity are related and it’s the severe UV sensitivity that has kept me housebound and away from lighting sources for over 18 months. The year prior to becoming ill, the doctor said she wasn’t happy with my D levels (they were within normal range but at the low end) and told me to take 20,000 units a day for a month as a “loading dose” and decreased that to 5000 daily maintenance. I’ve since read – a study, article? can’t remember- that supplemental D blocks the receptors and prevents the natural form from reaching the cells. I’m so sorry I don’t have the link to that info, I hate to just throw it out like that, so I will try to find it and post it here later. I found it interesting but I’m sure there must be more to the story. But, at the very least, the large doses of D3 may have caused problems for me.

Milk thistle sounds like something I should start soon but I’ll be patient and wait for the doctor’s ok. I have been spared organ involvement and want to protect the liver.

My brain is still fogged in and fizzing out right now. Thank you so much for responding 🙂

[A Friend]

@lyndsaylee wrote:

Thanks Phil and Friend for your replies. …… I’ll have to search the forum for lymph detox and read up on it. What did you do to detox? I don’t know what you mean by “it detoxes two sides of our body.”

This is one of the links I found informative/interesting. I’m rushing, and will send another or two later, if this doesn’t have the information that tells about the lymph system addressing our body on two sides. It was interesting about the differences… and I’m remembering the left side especially got my attention.

http://www.diagnose-me.com/symptoms-of/lymphatic-congestion.html
Lymphatic Congestion: Overview
The Lymphatic System is a drainage network of fluid, organs and vessels that is responsible for the removal of cellular debris, large proteins, foreign bodies, pathogenic agents (bacteria, viruses, toxins etc.) and excess fluid from the extracellular spaces. The lymph moves through the lymph nodes, which act as active purification centers.
(Article continues..)

AF

[A Friend]

@lyndsaylee wrote:

Thanks for the info, jasregadoo. I guess it’s going to take some time for me to figure out what’s what. I love that you’re off Aleve – Yay! I would love to get off the Etodolac but presently that’s not an option. I am going to seriously try the diet at least for a while to see if I have any results. Dr. said eat as much meat as I want and include liver once a week which I thought was rather odd since many say vegetarian diet helped them. I don’t love meat but I eat some and I must admit I haven’t been able to get myself to buy liver, much less eat it!! 😀

I’ll give it a little more time before I start experimenting with Vit. D and Flagyl and of course, do them one at a time to see which – if either – is the culprit. So long as I can handle the herxing with Etodolac I’m thinking the herx is actually a good thing. ?? Comments, please.

Lyndsaylee — and Jasregadoo,
About your doctor’s comment about eating meat, and including liver once a week. Especially if you are Blood Type A (known to have difficulty digesting protein), or not, you could possibly already have a problem digesting meat… plus we who have chronic illnesses are very likely to have overly acidic bodies and lack magnesium and other minerals for adequate detoxification. When the body doesn’t have enough minerals (and especially too much calcium and not enough magnesium), the liver cannot cleanse the body during its nightly liver detoxification, and ends up having to store those acidic wastes in the body (most often in the hands and feet, which are further away from vital organs). This additional storing of acidic wastes can cause further pain and toxicity in the body.

It’s a balancing act to keep our pH in the slightly alkaline range it needs to be in to be healthy. If you do a search at the top of the Bulletin Board on the first page of it in the little search box, using any of these words or conditions, you will probably find much written about this, along with links to read more.

Along with what I”ve shared, many of us very probably have problems with adequate lymph detoxification. This subject was not on my radar at all… ever. Until recently, when my physicians and I had ruled out the usual things, with problems still existing. I had overt problems of serious things, but the tests kept coming back normal; but the proof existed and was chronic. Finally, there was a telltale “little beacon light” that pointed to the culprit… and that was the lymph system. With the cause of my longterm chronic illness discovered in spring of 2014, and surgery done to correct the problems, things improved greatly… but the previous acute culprit (IBS) somewhat returned 2 to 3 months ago. That’s when I had to work on (and solve) this latest “mind bender.” [It is good for us to study and learn all we can. If I hadn’t recently set about to educate myself on the lymph system, and how it works, I would not have learned how it uniquely detoxes two sides of our body and more, (plus I had a bit of luck with a telltale small gristle-type lesion), I would still be in the dark.

Again, good luck to you both and everyone.

AF

[A Friend]

@DianaW13 wrote:

Hi everyone,

I just returned home from my annual rheumy appointment. Overall, she is pleased, blood work normal, xrays show no changes in last 4 years and swelling/heat in joints remarkably gone. All except my knees – they are still swollen, and warm to touch. She asked if I would be interested in a treatment new to her – apparently another rheumy here in Ontario has been having some success with it. Basically it is an injection directly into the knees with a cocktail of Humira and prednisone, so the TNF blocker only works in the joint itself.

Any thoughts?? Anyone else hear about this kind of treatment?

Diana

Diana,

You might find something very helpful for restoring yours knees by doing a Yahoo search (I get better results with Yahoo than other type searches) using these words: knees inflammation+dr seelig magnesium deficiency
I just did this same Yahoo search, and interesting “hits” were found. Dr. Mildred Seelig’s book (she is known to be the foremost researcher of magnesium, now deceased) is online, free to search — it has amazing scientific information from years of research and is titled: “Magnesium in the Pathogenesis of Disease” and my search above was about knees. Good luck.

AF

[A Friend]

@Maz wrote:

Interesting Live Science article discussing the case of a woman whose knee implant became infected with an infection commonly associated with the gums. Doctors believe that vigorous dental flossing may have led to this infection migrating in the blood stream to her implanted knee and state she will need to remain on antibiotics for life or until the implant is revised due to biofilm colonies setting up house in the joint. I don’t think any of us here will find this incident too surprising!

http://www.livescience.com/51953-flossing-knee-replacement-bacteria-infection.html?cmpid=514627_20150824_51359126&adbid=10152956160766761&adbpl=fb&adbpr=30478646760

“Ms Busybody” here, who is wondering if that bacteria just might happened to also have come from such dental infection bacteria deeper down — and if she has any root canals or cavitations contributing to the infections mentioned…..

AF

[A Friend]

@jasregadoo wrote:

Hi, sorry if this is TMI, but over the last few months, I’ve noticed that my sweat has a stronger odor than it ever has before. I don’t think I’m sweating more than I was before, not horribly. But it has a bit of a sour smell that I don’t remember before.

Maybe I’m imagining it, and my sweat has always smelled like this…but maybe it’s part of the treatment?

Has anyone else had this? Any thoughts? Is it a good sign, a bad sign, a neutral sign? After I shower and so on it’s fine, so it’s not like I’m having to shower several times a day or anything, which is good since I’m in California and we are in the midst of a drought.

Jas,
My best guess is that the sweat contains impurities/organisms being detoxed. Am thinking that is a VERY GOOD THING. And would continue drinking a lot of pure water, perhaps with some ingredients added to make the pH of the water somewhat higher and healthier, so as to make your body more alkaline as opposed to perhaps overly acidic. A good higher pH (as opposed to acidic) can help keep unfriendly organisms lower in your body. Unfriendly organisms thrive/multiply in an acidic body/terrain and cause using up our body’s needed minerals. And if we are overly acidic for a long period of time, loss of minerals can cause onset of painful bones, etc.
Good luck,
AF

[A Friend]

@Maz wrote:

@Valsmum wrote:

Maz, this was interesting, thanks for the post. It makes me think of the times I read high dose vitamin c can cure cancer, not sure??? But both antibiotics and vitamin c help the immune system to heal the body from cancer. They both make sense to me.

With you there, Valsmum, as well as anything that is biofilm destructive, like systemic enzymes. Artemisinin is also powerful and studied for cancers as it is attracted to and binds with iron-rich tissues (cancers feed off iron), acting like a smart bomb.

Another addition to the above thoughts: Prior to 2000, I had begun losing weight steadily (this was early days of my being on AP therapy), and I had read that “Essential Fatty Acids Are Essential”, and realized my diet did not contain this necessary thing in my diet. To stop the weightloss, I began stirring liquid Flaxseed Oil (refrigerated Flora brand) into whole milk yogurt to help me try to stop the wasting syndrome. Over the course of a year, the weight loss began slowing and finally stopped; and then during this 12 months period, my body began gaining back the lost weight, and by the end of a year I was looking like the picture of health… and feeling that way, too. On routine neck x-rays, in surrounding areas were also seen what sounded off sirens for the oncologist I had been sent to. After four months of every kind of test, “no source of the cancer could be found.” The oncologist dubbed me her mystery patient. To this day, I still eat daily one serving of the combination EFA oil/sulphurated protein yogurt and/or quality cottage cheese that stopped the wasting in its tracks. These are some links to some of this information if any of you want to know more:
http://www.budwigcenter.com/
http://www.budwigcenter.com/parasites/#.VNEsWmctHF8

---

http://www.budwigcenter.com/acid-ph-dangers/#.VNECr2ctHF8
pH Balancing is a Must to Regain Your Health

EDIT: Decided to add this link, because this information would not be complete if we didn’t give appreciation and praise to Dr. Budwig’s life (nominated several times for the Nobel prize in Medicine). She was a most remarkable lady. I believe she and Dr. Brown would really have enjoyed each other!!!
http://www.budwigcenter.com/johanna-budwig-biography/#.VbDYiHnbLm4

AF

[A Friend]

@Maz wrote:

Just thought to share this doctor’s video, as I found it both hopeful and insightful:

https://m.youtube.com/watch?v=THddIqz9zRk

Maz,
Thanks for posting and sharing this link with us! Dr. H in the video shares good information. This doctor has already had some of the best press this year and captured great respect. He is the one who Cleveland Clinic has had to address/improve their treatment of patients admitted to their facilities. The words that have captured my attention this year have been “Functional Medicine”… something I wish all of our healthcare providers would be required to learn about.
AF

[A Friend]

@Airen wrote:

After my dental appointment yesterday I now have confirmation that my root canal tooth (from 6 years ago) is in fact infected. I’m not sure whether to be happy or sad about this!! I am curious if any of you have had an infected tooth removed and noticed it helped/cured your RA? I certainly can’t afford the $5,000 implant tooth and it is far enough back where you can’t see it if I smile. Considering strongly to have it pulled. What are y’alls thoughts on this??

Airen,
I can certainly identify with your tooth problems, though I never had a root canal. Removal of four wisdom teeth many years ago set up the disease process in my own dental case.

Be cautioned about an implant, also. These can cause many problems. If you go to the top of the Bulletin Board here to the little Search window, and type in any dental words you want to read about on the Board, the posts should show up if they are there.

I have a collection of links/information on these dental subjects, if you don’t find information on any of them. There is much research and live patient information about this subject which has largely been submerged over the years. My former dentist 20 years ago experienced very traumatic illness from dental causes, learned what was going on, and was able to reverse the illness and get out of the wheelchair, and become an excellent holistic dentist.

AF

[A Friend]

Emmaline,

Some of the things going on with the things described in this topic post may be helped by the information I found and posted under this other Topic: Worried, Ulcer and Polyps topic

If you read my reply and would like to discuss it on a more personal basis, feel free to send me a PM (private message). I really do feel the new enzyme information I’ve found and have been using is helping turn the tide in my IBS/gastro problems. And, I feel we MUST have the right enzymes in our gut system to help it work correctly, work more normally, and nourish our bodies/us.

AF

[Author]

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