Home Forums General Discussion Very Afraid– the"dizzies" has me worked up…

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  • #307333
    Woods1977
    Participant

    Hi Everyone…

    My apologies in advance for whining and crying about my dizziness problems. In addition to my head not feeling right, I’ve also been feeling slightly weak, along with heart palpations and body twitching.

    I hate to be “that person”, but I’m doing the “pitty party” thing right now. I’m so so scared about this… My GP is throwing words around like “Optic Neuritis” and MS… That’s just great. I see an eye specialist this week to make sure my eyes are okay. From there my GP will probably want me to have an MRI… She’s also checking some of my inflamation markers as well. She is not doing any additional testing (i.e. Thyroid, adrenals etc.).

    I’ll definitely be getting into my AP doctor as soon as possible to get this thoughts. Furthermore, he’s more open to doing blood work in any areas of concern I have, so from there I can have him test ALL of the above.

    The irony of this situation– my RA is actually doing REALLY well right now since I’ve increased my dose of Minocin back to M-W-F… I didn’t have an arthritis flare this last time I increased in during mid-Feb… The progression was very very slow this time, so slow that I almost didn’t notice my arthrits was feeling better until I realized I could do certain things without being in pain.. I can actually extend my left elbow out almost all the way– I couldn’t do that 2 months ago.

    I just wish my doctor didn’t mention MS- not a very nice thing to do on a Saturday morning doctor’s appointment, knowing there is nothing that can be done during the weekend. The only good thing is that once I have my eye exam I won’t have to wait for results, I’ll know immdeiately if there’s something wrong with my eyes. Okay, enough boo-hooing for now.

    Very, very afraid…. 🙁

    #367242
    Maz
    Keymaster

    Woods, I know it must be quite nerve-wracking, but try and do your best not to get anxious about this, if at all possible, because stress will put added pressure on an already over-stresses immune system…I know…easy to say and hard to do! I have a close family relative with MS (secondary progressive) and it can take a year or so to get a definitive diagnosis, which is based primarily on a combination of symptoms and MRI imaging of the brain showing scarring.

    Like many others here believe, as well as LLMDs, MS, like any AI disease is the result of an infectious process – that is, if one adheres to infectious theory, so the treatment would be the same. Minocycline is used for MS, too, believe it or not, because of its neuroprotective properties and many MSers are using LDN as a supportive adjunct. That said, I’d personally strongly suspect Lyme disease (and coinfections), which can cause the mix of neuro and rheumatic symptoms you’re describing – dizziness, eye probs, muscle twitching, arthritis, etc. So, if your current doc isn’t Lyme Literate, you might also consider consulting an experienced LLMD who would adjust and titrate your protocol accordingly. I can send you a listing for your state, if this is something you would like to look into?

    Working with an experienced doctor who knows what to look for (infections) and how to treat them effectively can make a huge difference in how we perceive these AI diseases. So hang in there, Woods…you’re on the right track with AP, but you may now just need to fine tune things and look a little deeper into causative pathogens. 😉

    #367245
    Krys
    Participant

    What exactly did you do for detoxification and how often do you do it?
    Did you try Vit. C at all? It took care of my dizzininess on Mino pretty well.

    Lyme and earlier mold exposure presented with many MS symptoms for me. I never had the foot drop. And the good news is myelin sheaths do grow back!

    What exactly makes you panic?
    What have you done about that (all the symptoms that make you panicky) so far?
    Krys

    #367246
    Woods1977
    Participant

    Hi Krys,

    I

    #367247
    Maz
    Keymaster

    Hi Woods,

    You’ll find a PM in your inbox in reply to yours.

    #367244
    Krys
    Participant

    Hi Michele,
    Maz has expressed it very wisely and you have received many good replies on your other threads, too.
    @Maz wrote:

    Woods, I know it must be quite nerve-wracking, but try and do your best not to get anxious about this, if at all possible, because stress will put added pressure on an already over-stresses immune system…I know…easy to say and hard to do! (…)

    Like many others here believe, as well as LLMDs, MS, like any AI disease is the result of an infectious process – that is, if one adheres to infectious theory, so the treatment would be the same. Minocycline is used for MS, too, believe it or not, because of its neuroprotective properties and many MSers are using LDN as a supportive adjunct. That said, I’d personally strongly suspect Lyme disease (and coinfections), which can cause the mix of neuro and rheumatic symptoms you’re describing – dizziness, eye probs, muscle twitching, arthritis, etc. …. you might also consider consulting an experienced LLMD who would adjust and titrate your protocol accordingly.
    So hang in there, Woods…you’re on the right track with AP, but you may now just need to fine tune things and look a little deeper into causative pathogens. 😉

    I agree that consulting an LLMD may ease your worry and put you on the right track!
    My Lyme manifested as many evil things but I chose not to seek any of the very scary dx, because I thought it would only put great stress on me without really changing the protocol and all the things I have to do anyway to help myself.
    Bacterial toxins, even without die off due to abx when the release of toxins is intensified, can and do often cause many neurological problems. It did for me both prior to AP and even worse after starting AP.

    I had more severe neurological symptoms than you have described, the most scary one that pointed to MS was 1 year prior to AP when I could not assess the distance of my foot to the floor: one foot could make the step and the other seemed to be falling into the abyss, contrary to what my eyes could clearly see. Fortunately, it only happened 4 times. Facial neuropathies developed into Bell’s Palsy, hand and feet neuropathies slowly subsided on AP, when I was asked by my LLMD to increase ALA to 3x a day. They went again over the roof, with all my skin getting numb, when TCM doc worked on narrowed veins in the neck and chest and the problem got much better but the result was VERY thick blood, that could hardly move throughout the veins. Again TCM herbs + added Nattokinase resolved the issue.

    Fortunately, you can find huge wealth on information when you search the RBF forum. And even reading the replies you have received from the very beginning will be very helpful!!!
    Maz while answering your very first post, gave you excellent advice:

    So, try not to be disheartened, Michele. This is still very early days and there are many ways to tweak AP…There are also many adjunctive supports that can and should be used, such as diet, anti-inflam supplements, and detoxification…

    There are some very lucky individuals, Richie being one of them, who greatly progressed on AP alone. But most of us have to employ all kinds of additional supports. Diet, detox (at times very intense detox) and many supplements are crucial to me. Many symptoms greatly diminish or even disappear when one employs those adjuncts. Neurological symptoms, pain, swelling, dizziness can sometimes totally disappear when one employs those methods.

    For me detox, diet + massive doses of Vit. C took care of dizziness.
    Same + taking care of thick blood + increasing ALA took care of numbness.
    Heart palpitations responded to abx, then to taking care of thick blood, also to increasing magnesium.

    My myelin sheaths were destroyed and I think they must have regenerated a lot with abx, diet, detox, supplements as I do not (or: rarely) have word search, no brain fog, no bouts of amnesia, no stuttering, no slurring.
    I still respond with a feeling of brain toxicity when under stress.
    I stopped eating gluten altogether (no more cheating) as brain toxicity gets so bad, I feel like I am going insane and all kinds of joint flares always start.
    I still get muscle twitching, cramps and palpitations when miss magnesium for a couple of days.
    My LLMD wants me to take 1 Nattokinase daily (my blood still easily gets thick) but I am not following that advice closely. I take it once in a while now, few days in a row, whenever I notice/ feel the blood flow within my veins too labored.

    You will get to know your body and your reactions quite soon. You will be able to do a lot of adjustments (of appropriate supplements, certain detox measures, certain anti-inflammatories) on your own and you will see the results fast.
    BTW, the eye inflammation responds to diet and detox a lot!!!!
    Warm wishes,
    Krys

    P.S.: You mentioned (I thought it was on this tread, but I cannot find it now) that you take probiotic, 3 billion beneficial bacteria.
    3 billion probiotic bacteria is excellent when one is healthy and takes it to keep one’s gut healthy. While on AP, 3 billion is NOT enough. It is an active invitation for Candida to take over!

    #367243
    PhilC
    Participant

    Hi Michelle,
    @Woods1977 wrote:

    Other symptoms I

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #367249
    Woods1977
    Participant

    Hi Phil,

    Thanks for your post- I really appreciate it. I definitely think Dr. K (my AP doc) was right about the Clindy “stiring things up”… because when I backed down on the Minocin, my joints began to slowly feel better, and I was able to slowly increase my Mincon again with great results (from an arthritis perspective)… Now it’s just stirring up some “other critters”, for a lack of better term.

    I’m going to my AP doctor today at 8 AM, then I have an appointment with the eye doctor to be screened for Optic Neuritis this Friday. I’m also going to explore the possibility of some co-infections…. I just feel like crap.

    I’ll keep everyone updated!
    Michelle

    #367248
    Woods1977
    Participant

    UPDATE- March 5, 2013

    Went to visit AP doctor today. He agrees with my GP about getting my eyes checked along with an MRI, and mentioned I should see a neurologist. He strongly believes I

    #367250
    cavalier
    Participant

    Woods – another issue I dont see your doc listing is candida many of it’s symptoms cross over to Lyme & the 2 can be found together sometimes.

    Some links below to take a look at –

    Ah yes – http://thesilverclouddiet.com/2011/05/could-candida-be-preventing-you-from-losing-weight/

    Family Doctor – speaks out on Candida – It all jives for me. http://thesilverclouddiet.com/2010/09/dr-salerno-talks-about-systemic-yeast-also-known-as-candida-and-its-relationship-to-weight-loss/

    This doc understands Candida – the list of issues is surprisingly long, Autoimmune is only one of them but many others. U may want to be aware of.
    http://candidaplan.com/blog/568/100-common-candida-symptoms/

    More evidence of a connection & host of maladies a connection usually overlooked by most doc’s as to a root cause- http://www.angelhealingcenter.com/Candida.html

    http://www.candidahouse.com/page/1416197

    Jill SD lyme cpn babesia & candida

    #367252
    Woods1977
    Participant

    Hi there Cavalier

    #367253
    cavalier
    Participant

    It’s just something to add to the list as you work your way thru to keep in mind,- it’s not meant to tell you which you do 1st etc – that’s between you & the doc’s.

    Good luck with the tests hang in there.

    Jill Sd lyme cpn babesia & candida

    #367251
    PhilC
    Participant

    Hi Michelle,

    I noticed that you are taking Zyflamend. Is that something your doctor recommended?

    Have you tried taking an OTC medication for motion sickness, like Dramamine? If not, maybe it would be worth a try?

    One thing I have been wondering about is why you haven’t been referred to an ENT (Ear, Nose, and Throat) specialist. Dizziness is often caused by an inner ear problem. Did your doctor already rule out that possibility?

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #367254
    Woods1977
    Participant

    Hi Phil,

    Great questions!

    Zyflamend: I

    #367255
    PhilC
    Participant

    Hi Michelle,

    Hi Michelle,
    @Woods1977 wrote:

    Zyflamend: I

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

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