Home › Forums › General Discussion › Unbelievable !!!!!!!!!!!!!!!!
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CurlyinNC.
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April 26, 2017 at 6:11 pm #458715
richie
ParticipantI decided on using Torrent generic minocycline -since they are fairly big suppliers to the US and even the generic is tight right now !!! –I check the capsules at home and lo and behold its Ranbaxy capsules —-Seems Ranbaxy sold out to Sun but our FDA made Ranbaxy sell out to Torrent minocycline as to not limit competition -there is also a proviso that Ranbaxy {now Sun } must keep supporting Torrent with product until they set up their own production —-thats not all -seems Ranbaxy sells to at least 4 other companies using Ranbaxy product –these other companies are listed with the FDA as repackagers —I follow the drug industry and thought I understood it but this one has me scratching my head –I would advise everyone when receiving a prescription to look up the pill or capsule to at least find out the original manufacturer —hopefully when this shortage clears up in a few months I can have a better selection !!!!!!!!!! Unbelievable
April 27, 2017 at 11:19 am #458725whaleharbor
Keymastercrazy
Minocycline 100mg every other day with food...lots of food: Zydus brand. Celecoxib 200mg twice per day: Greenstone brand.
April 27, 2017 at 4:21 pm #458726vinny
ParticipantWelcome to the real world Richie. Now you know what most of us have been facing for years. At some point in time you will come to realize that the most effective Minocyclines are tablets made in India. I am currently using Minoz tablets made by Sun Pharma and buy from India with a prescription and doing really well.
Psoriatic Arthritis: 100mg Minoz Minocycline TABLET daily; twice daily 400mg Pentoxifylline;125mcg Levotyroxine: Have been using some level of Minocycline since 2008
April 27, 2017 at 7:10 pm #458729richie
ParticipantFirstly I am glad you are doing well –Minoz is made by Croslands -a Ranbaxy division –I guess this unit was bought by Sun —I hope you are correct –I get the sense that quality has improved quite a bit in India after the FDA got after Ranbaxy –sure hope so !!!!!!!!!!!!!!!!
April 27, 2017 at 8:37 pm #458730Spiffy1
ModeratorAnd what is “funny” to me is that I could not get my hands on Ranbaxy tablets to save my life! I think they are enjoying the big switch! Why is it in such short supply? Why can’t they just make more? I bet they slowed down on manufacturing to drive up the price.
Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWFApril 27, 2017 at 9:03 pm #458732richie
ParticipantYou are absolutely correct –my druggist just yesterday told me the same thing !! Holding back supply to raise prices
April 28, 2017 at 6:00 am #458736Spiffy1
ModeratorIt ought to be illegal to play with people’s health. It is never about health though. It is about money.
Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWFApril 28, 2017 at 6:20 pm #458749whaleharbor
KeymasterSo let me share with ya’ll what happened today in the great search for “the right” generic minocycline. So…I was taking the Actavis (Watkins, now owned by Teva) brand and the pharmacy switched me to Ranbaxy which did not work for me. My pharmacy a big box store was able to get the Actavis brand…after they told me they could not when my doc insisted.
Fast forward to today…knowing what I know now, I start EARLY…when it is refill time. I literally went to the big box pharmacy on Monday – in person – to make sure they could still get it. They confirmed yes and that they had some in stock but would need to order more. I literally called Tuesday, Wednesday and Thursday each day being promised that it was coming in and each day being told there are no issues, we will get it. Today I called and the same man I spoke with in person on Monday…the same man I had explained that I have RA and what this medicine and the right generic for me, means to me…told me, “well we can’t get it and I made no promises and it is out of stock from the manufacturer until at least June.” Ya’ll I lost it…and I don’t mean, I got nasty lost it, I mean I started to sob like I’ve never sobbed before. People don’t get the stress and worry that rheumatic disease causes and then add to the stress of trying to make sure you have enough of the brand or generic that you need to LIVE…literally to live.
Long story longer, I called Teva (who now owns Actavis) and they assured me that are absolutely zero backorders. They said there is no reason why this big box national chain can’t get it…zero. They gave me the name of another big box chain and told me to call them. I did..they were more forthcoming in telling me that their distributor flat won’t order it…and they don’t know why.
So I remembered what Richie has always talked about…make a relationship with your local independent pharmacist. I haven’t done that but my sister has a relationship with her local independent pharmacist. I called him and he had it…plenty of stock…tons of stock. I transferred my prescription to them and they were able to fill a 3 month supply in an hour. I had to drive 45 minutes one way to get it, but it’s worth it.
Long story even longer…what we all go through to get the meds we need is ridiculous. I’m exhausted now mentally, emotionally, physically and oh my…I don’t even know.
So what’s the truth…is the Actavis brand (or any other brand) available everywhere or not? Are certain pharmacies just telling us certain generics are unavailable because that’s what suits them? The good news is I have what I need for now but everyone should. We all go through enough without having to worry about access to a simple antibiotic.
Ok…end of my rant.
Minocycline 100mg every other day with food...lots of food: Zydus brand. Celecoxib 200mg twice per day: Greenstone brand.
April 28, 2017 at 8:32 pm #458754lynnie_sydney
ParticipantSorry this has been so stressful for you – and for many others too.
Sounds like there is a very good reason for people to develop a relationship with an independent pharmacy and/or a compounding pharmacy.
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)April 28, 2017 at 10:12 pm #458755Linda L
ParticipantWhale, it is so stressful. Still there are many people who want to help each other.
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousApril 28, 2017 at 11:07 pm #458756MarlaCL
ParticipantHi
This is my first post. Looking for Scleroderma Lung Fibrosis AP testimonies.
Thank you so much
Marla( mtlcute)
mtlcute@aol.com or email me Roadback:)April 29, 2017 at 2:30 am #458761lynnie_sydney
ParticipantHi Marla
Have you looked at the Scleroderma stories in our Stories section of the website?
Also suggest that you go to the front page of General Discussion (where all topics are listed) and type ‘lung fibrosis’ into the search box. All posts mentioning this will come up and include some really useful informationBe well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)April 29, 2017 at 6:47 pm #458780richie
ParticipantHi –good job Whale !!! Another hint –you probably get a three month supply at once –ALWAYS reorder 10 daYS IN advance
Over time you will build up a reserve -its important to have a reserve on hand in case of shortages etc –For example I had a reserve of minocin brand –I had to order generic now —AS a result for the next six months -I will take 100mg generic and 100 mg minocin daily –At the three month mark I will reorder generic –in this way I will always have a three month reserve on hand —Right now I cant get Actavis –hopefully this will change !April 29, 2017 at 8:13 pm #458792Spiffy1
ModeratorI totally get it, WhaleH! I got messed with for sure. I hope this compounded minocyclene is as effective as the other. I totally understand your frustration. Now I would even be afraid to try my
Ranbaxy again. Now I am paying out of pocket and have dropped to 100 milligrams MWF. It is scary.Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWFApril 30, 2017 at 6:00 am #458796whaleharbor
KeymasterRichie, I’m on the Actavis brand and when the big box store told me it was on backorder, I called Teva (who now owns Actavis) and they assured me that there are no backorders on their “actavis” minocycline. I made her repeat it to me several times because I was so shocked as it was 100% different from what the big box told me. The independent pharmacy had some in stock but also confirmed no known backorders. Isn’t that weird. If the Actavis is what you need, perhaps check again with your pharmacy? Perhaps something has just changed?
Great insight also as the early reorders. I’ve never done that and it makes so much good sense…I’ve learned so much from you, Richie and I appreciate you….
I appreciate everyone!
Spiffy, I pray you are doing well on the compounded minocycline.
Minocycline 100mg every other day with food...lots of food: Zydus brand. Celecoxib 200mg twice per day: Greenstone brand.
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