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Hello everyone,
In January of this year, I had reported that since starting the Antibiotic Protocol in August of 2010, my ANA had gone down from an all-time high of 1:1280 to 1:160. This post is located here: https://www.roadback.org/forum/viewtopic.php?f=1&t=5525. I promised at the time that I would return to report the results of my March 2011 echocardiogram when they came in to see if my pulmonary hypertension pressure has also gone down.
For the past three years, I have been dismayed to watch it go up from 29, to 34, to 41 in June 2010. I have been seeing a pulmonary hypertension specialist who is aware I am on AP but does not specifically endorse it. I am pleased to report that since being on AP for nine months, this month’s echocardiogram shows a reduced pressure of 33!
My PH specialist is thrilled and told me “Keep doing what you are doing.” I would strongly suggest that if you have scleroderma and are staring down the abyss of pulmonary hypertension that you consider AP if you haven’t already!
Wow…what great results 😀 🙂 😎 . To all those nay-sayers, it must be spontaneous reversal 😉 .
You are an inspiration…
nancyHey Surfette;
I had a good laugh but expected the response you got.I wonder what we have to do to prove ourselves!That is great news! Keep posting positive results because you are just a step or two ahead of me and it gives me something to look forward to. mlouise
@redrock wrote:
For the past three years, I have been dismayed to watch it go up from 29, to 34, to 41 in June 2010. I have been seeing a pulmonary hypertension specialist who is aware I am on AP but does not specifically endorse it. I am pleased to report that since being on AP for nine months, this month’s echocardiogram shows a reduced pressure of 33!
Redrock, couldn’t be happier for you! What fantastic news!!! Thanks for sharing it with us and “keep doing what you’re doing!” 😀
RedRock,
Congratulations on your good news–that’s wonderful! 😀 Keep up the good work, and I hope you continue to improve as time goes on.
Maria
I just wanted to add my heartfelt congratulations. That is such good news, it brings tears to my eyes.
I wondered what everyone was referring to with ‘surfette’ and figured it out pretty quickly. I haven’t been to that site in months, it is just too depressing. Bless you for caring enough about everyone suffering from SD to try to share your wonderful news and help them.
How is the cancer treatment going? I hope it does not reach this point for you but I wanted to let you know that one of my best friends with early stage breast cancer recently underwent double masectomy and is now doing the reconstruction part. They got all of the cancer, it hadn’t spread at all, and her odds of a cancer recurrence anytime during her life have now gone down by more than 90% apparently… anyway, I don’t know anything about it other than what she has been through – and it hasn’t been a pretty process – but she is out the other side now looking healthy and feeling almost back to 100% except BETTER because she no longer has cancer staring over her shoulder. It claimed her own mother, but it won’t claim her. Which is good, because she has three tiny sons!
I think Redrock that you are a total inspiration and that you should write (a book? movie script? something!) someday about your recovery from ALL of this – you’re right in the heart of becoming an incredible success story 🙂
Warmly,
AWow thanks, hopefulmama! Re the cancer, I did have a lumpectomy in September, I did 6 weeks of radiation and now I am on tamoxifen for the next five years. I had my first mammogram since the surgery a couple months ago and it was a little equivocal so I had to go back for another scan, now I am clear again until August. I’m happy that your friend was given such a great prognosis, I’m not sure mine is at that point but I am vigilant in trying to keep those little cancer buggers away.
It sure is. I am so grateful that this treatment worked for me and to the people that help spread the word.
@redrock wrote:
Just an update, folks. My pressure is now down to 28 and my ANA is normal.
FANTASTIC news, Redrock! Way to go!!! I ditto Kolby…the perfect Christmas gift. Thanks so much for sharing your wonderful news. 🙂
For possible interest, there is quite a bit of info out there on the use of artemisinin in breast cancer. It’s a derivative of sweet wormwood and acts by homing into cells that are iron-rich (such as cancer cells) and literally acting like smart bombs in cancerous cells, leaving healthy cells in surrounding tissue alone. Some of the studies conducted on artemisinin for breast cancer have been pretty impressive. I’m not sure of its use alongside conventional meds, like Tamoxifen, but thought you may be interested to research it, nonetheless. There is quite a bit of research available on PubMed.
Please come back and share your progress when you think of it, Redrock…stories like yours are so inspiring for newcomers!
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