Need the experts advice.. :) Latest updates of my fight..

[tbird2340]

Krys asked that I create a post with my history etc..

You can find some detail on my onset here: viewtopic.php?f=3&t=1480

I was dx’d with RA on 12/08.. Then I was dx’d with Lyme on 4/10.. I’ve never really herxed that I know of after adding things to my protocol.. The past 4 months or so I started to go downhill.. Posted on here asking advice and some said to possibly try a 2 week washout.. I did that (stopped all abx) and it really made no difference..

I went to my LLMD this past Tuesday and explained to him how much pain I’ve been in.. After talking some he said to try going off all abx for a month, drink at least 80oz of water a day, strict gluten free diet, and stay on the Amazon A-F and he added a few other supplements..

He also prescribed hydrocodone to take 4x a day along with the Ibuprofen.. Now, that is the only new thing I’ve added (so far, still need to order the supplements he told me to).. I added them on Wednesday and stopped the ABX on Wednesday.. Other than that, I’m pretty much on the same stuff (Amazon A-F and Ibuprofen)..

The last 2-3 days it seems like I’m WORSE in the morning.. I dont’ know how that can be with MORE pain meds than before but alas, it is.. Could the hydrocodone be causing a herx?

Meds w/ Dates below:

Supplements / Vitamins
Pure Encapsulations Buffered Ascorbic Acid
Designs For Health – Probiotic Synergy 120
Pure Encapsulations Vitamin D3 5000 IU
Amazon A-F (3) 2X Daily

Prescription
5/11 – Increased Minocin 100mg 4X Daily
5/12 – Restarted Clarithromycin 500MG (1)2X Daily
5/12 – Misoprostol 100MCG (1)2X Daily
4/12 – Ibuprofen 800MG – (1) 2X Daily

Past Medications
8/10- 5/11 – Clarithromycin 500MG (1)2X Daily
2/11 – 5/11 – Hyaluronic Acid 6X Daily (Pure Encapsulations)
12/10 – Curcumin 500 with Bioperine 2X Daily (Pure Encapsulations)
12/10 – Olive Leaf Extract 500mg 2X Daily (Pure Encapsulations)
8/10-Famciclovir 500MG (1)3X Daily – Stopped 11/10
4/10 -Increased Minocin 100mg X2 Daily

[gordbentley]

maybe your taking too much? the original minocycline protocol suggests low dose with an appropriate diet is more effective than high dose.

[tbird2340]

Possible but I was taking the 400mg for a long time with no ill effects..

Thanks for the reply.

[gordbentley]

Maybe set back and consider foods you are eating. refined sugar, dairy, nightshades?? I read your gluten free which is great, but when you give up gluten you give up a major source of magnesium and selenium which are vital to immune health.

[wildschild]

I was on Hydrocodone for awhile but it seemed that when I would take it I would be worse ( I have RA as well). I told my doctor and she switched me to Hydromorphone. I seem to be doing better on it as far as pain meds go.
Nancy

[tbird2340]

@wildschild wrote:

I was on Hydrocodone for awhile but it seemed that when I would take it I would be worse ( I have RA as well). I told my doctor and she switched me to Hydromorphone. I seem to be doing better on it as far as pain meds go.
Nancy

Wow, really? That’s actually comforting.. I would have to think that’s what it is because as bad as I’ve felt lately I definitely feel worse since starting this a few days ago..

[PhilC]

Hi tbird2340,

Have you ever taken Flagyl (metronidazole) or Tindamax (tinidazole)?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[tbird2340]

@PhilC wrote:

Hi tbird2340,

Have you ever taken Flagyl (metronidazole) or Tindamax (tinidazole)?

Phil

I don’t think so.. I’m pretty sure all the meds I’ve taken are in my list.

Thanks, Tom

[tbird2340]

Stopped the Hydrocodone today and my LLMD called in Tramadol 50mg so I’ll try that for pain..

He also agreed to write a script for me to start LDN so I hope I have as good of results as others.

[Krys]

Tom, while filling rx for LDN, make sure calcium carbonate is NOT used as a filler. It may act as a slow release agent and annul any benefits of LDN. Make the pharmacy make a note on your chart never to use calcium carbonate as a filler. I mentioned good fast release fillers on LDN thread.
I believe my LDN has wrong filler and that’s the reason my experience was not good.
Krys

[PhilC]

Tom,

Are you taking any antibiotics currently?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[rakep55]

Hello. Can you help me? I’m looking for an LLMD in the Portland, OR area. It would be great if the doctor accepted medicare. Thanks, Peggy

[tbird2340]

@PhilC wrote:

Tom,

Are you taking any antibiotics currently?

Phil

Sorry Phil.. I missed this post.

No, currently I am not. I stopped as of my last appointment (10/2). Currently I’m taking:

LDN 3mg
Ibuprofen 800mg x 3
Misoprostol 100mcg x 3 (to help with liver from Ibuprofen)

Vitamin D 5000iu
Vitamin C
Amazon A-F
Kril Oil (2 a day for first month)
Fish Oil (2000mg per day)
Probiotics 2 a day

[gratefulgirl]

@gordbentley wrote:

Maybe set back and consider foods you are eating. refined sugar, dairy, nightshades?? I read your gluten free which is great, but when you give up gluten you give up a major source of magnesium and selenium which are vital to immune health.

Hey Tom, just to emphasize what Gordbently mentions here, I supplement w both Magnesium & Selenium. Magnesium seems to be really lacking in my cellular make-up. Perhaps the bugs are eating Mg up. Oh, important to mention, I’m NOT gluten-free & I still need tons of Magnesium. I know I mentioned it in the LDN post, but I FEEL stiffness and discomfort creeping in when I miss one of my q 4 hr Magnesium doses @ 125 mg (Mg Taureate). More can be found on the LDN thread about this :).

I wish you comfort & health real soon!!!! GG

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