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- This topic has 26 replies, 7 voices, and was last updated 7 years, 7 months ago by lynnie_sydney.
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July 17, 2016 at 10:32 pm #456101Rockin AnnieParticipant
I haven’t been here for a very long time, of course due to feeling great. Now I do need some advice from u guys! At the beginning of April this year I came down with pneumonia and was very sick for 6 weeks. During that time on was on steroids and Augmentin duo forte and the doctor advised me to go off my abx doxy. The beginning of July I decided with the OK from my doctor to go onto Zithromax, 125 Ggms MWF in place of doxy, as we both thought a change would be good for my lungs as I have broncheictasis as well as RA. A couple of weeks ago I started with pain in my left foot and both wrists and know the pain also in my knees, it seems like my RA symptoms are coming back. I cannot get in to see my doc for 2 weeks so I have decided to go back on mino or doxy as well as the zith.
QuestiOn is, am I on enough Zithromax and should I go back onto mino or doxy, my doctor is not an AP doctor just supports me on the road.
I know that u guys r not doctors, but I would appreciate any feedback that you can give me. I don’t want to ever go back where I was before AP.
Thanks Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 17, 2016 at 11:06 pm #456102MazKeymasterHi Annie,
How great that you were doing so well and what a pain (literally) that the pneumonia re-triggered your symptoms. Agh!
It’s late here and just off to bed, but if you wanted to re-start your mino (good idea!), then can’t see why you wouldn’t be able to add it back, in addition to the current pulsed azithromycin dose (did you mean 125 mg?). However, you might consider asking your doc if you can start back low and slow on the mino so as not to head into a big herx situation and gradually increase the dose to the maintenance dose you were on before. As you’ve been off the mino for several months now, this is a possibility. If you are using an old prescription, be sure to check the expiry date as anything over a year can be toxic with tetras.
July 18, 2016 at 12:16 am #456104Rockin AnnieParticipantHi Maz,
Thanks for such a quick reply, yes it was such a shock to the system being so sick after feeling so good. Sorry, it was 125 mg of zith, it that enough as I have been on that dose for a few weeks now, maybe I should up it to the full tablet of 250mg. I won’t be seeing my doctor for a few weeks, so I will start myself on 50 mgs MWF of mino.
Thanks for the advice on the expiry dates, also.
Hope u r well and thank you again……Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 18, 2016 at 12:23 am #456105Rockin AnnieParticipantJust looked at the expiry date and yes it’s out of date by 6 months (agh)
Question, can I use my in date doxy and then go back to mino as I can’t get a script for a couple of weeks, do I need to have a wash out period?………Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 18, 2016 at 12:35 am #456106PhilCParticipantThere is no need for a washout period when switching between mino and doxy.
Phil
"Unthinking respect for authority is the greatest enemy of truth."
- Albert EinsteinJuly 18, 2016 at 12:48 am #456107Rockin AnnieParticipantThanks Phil, is that because they r from the same family……Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 18, 2016 at 2:25 am #456108lynnie_sydneyParticipantIf it were me Annie, I’d only change one thing at a time – so I’d stay on the same dose of zithromax for now when you add in the Doxy.
Hope you get your symptoms under control soonest – and don’t forget you may experience a herx each time you change up your protocol. It may even be worth considering that the change to zithromax has caused you to herx, if you started that 2/3 weeks ago.
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)July 18, 2016 at 3:29 am #456110PhilCParticipantHi Annie,
Thanks Phil, is that because they r from the same family……Annie
Not really. The main reason for doing a washout when switching from mino to doxy is that the person is experiencing strong “die-off” reactions while on the mino, so a washout period is used to allow things a chance to settle down a little before resuming antibiotic therapy.
Phil
"Unthinking respect for authority is the greatest enemy of truth."
- Albert EinsteinJuly 18, 2016 at 3:41 am #456112Rockin AnnieParticipantHi Lynnie,
I did think about the Zith causing a herx, but now u have said the same thing, I am starting to think again, what I am not sure about is that will the Zith do the same as the doxy/mino. Because both the doctor and myself are just feeling our way through this and she is not that up on me taking abx for my RA. Getting Pneumonia and being so sick for weeks really scared me and I think I got the idea of changing my abx from the RB forum, your signature line included and when I looked up Zith on the internet, the tests showed positive results for people with lung diseases.
I am guessing I should get out my Athritis Breakthrough .Thanks Lynnie for the advice……Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 18, 2016 at 3:47 am #456113Rockin AnnieParticipantThanks Phil for that, not sure now what to do, whether I should add Doxy with the Zith or just wait to see if changing has caused a herx, decisions
Argggggg………….AnnieBTW Phil r u still up?
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.July 18, 2016 at 5:21 am #456115PhilCParticipantHi Annie,
Doxycycline plus azithromycin is actually a good combination (for example, see: http://www.cpnhelp.org/treatment_protocols), and your current dose of azithromycin is on the low side. The decision is still yours, though; I just thought that the extra info might help you make up your mind.
Phil
"Unthinking respect for authority is the greatest enemy of truth."
- Albert EinsteinJuly 18, 2016 at 8:24 am #456117lynnie_sydneyParticipantI am guessing I should get out my Athritis Breakthrough .
Annie – I don’t think the book is likely to help you with the mix of abx you are now on/considering. I have been on zith (250mg x 3 days pw) for about 18 months – I tested well for it with LW when I was last there – and am likely to be on it until I go and get re-tested. As I said before, I’d factor in possible herxing – but also would only change 1 thing at a time
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)July 18, 2016 at 9:22 am #456118Linda LParticipantAnnie,
Do you know what triggered your pneumonia? Were you in a cold environment?
Linda LRA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousJuly 18, 2016 at 5:36 pm #456134Rockin AnnieParticipantPhil, I have been on that site a few times but had not seen those combos, thank you for that link and after thinking about it most of the night I have decided to use the two, but as lynnie said, slowly does it. I will also take that info to my doctor to try and convince her……Annie
Lynnie, I will take it slow and won’t change my Zith dosage until my pain settles down, Goodness I haven’t had wrists and foot pain for sooooooo long, now just to convince the doctor! It’s good that u r doing so well on this combo, I can still remember your having a bad time a while back…..Annie
Linda, I was away with my grand kids who do motor cross and got sick coming home, I was sick for a couple of weeks and then the pneumonia started. The doctor said it was a virus and they didn’t know why the pneumonia started first in one lung then the other, I have broncheictasis anyway so I am careful about getting a chill. Also I cannot have the pneumonia vaccination as I already have had 2, then I developed a pain in the middle of my left chest which was thought to be a heart attack, of course I knew it wasn’t, they still don’t know, but I put it down to RA, but boy did the whole sickness scare me. I am feeling ok now just this pain in my left foot and wrists.
Thanks for asking…….AnnieP.s. I will let u guys know how the combo goes
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.August 17, 2016 at 8:02 pm #456468aboyerParticipantRockin Annie,
How are you feeling on the zithromax? I just started taking it myself.
Diagnosed with severe RA 12 years ago
Tested positive for M. pneumoniae and C. pneumoniaeCurrent meds: Kineret 100mg, doxycycline 50mg, cbd oil, and celebrex
Supplements: fish oil, vitamin b12, folate, b6, iron, selenium, zinc, vitamin c, and biotin
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