Home Forums General Discussion Link or onfo on this website about vitamin interactions with Minocycline?

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  • #463917
    Luck20
    Participant

    I thought I came across some info on this website about vitamin interactions with Minocycline. Now I can’t find it. If anyone knows where it is, could you provide a link?

    Thanks so much!!

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

    #463919
    Spiffy1
    Moderator

    Not sure about links but if it doesn’t bother you if you take it on an empty stomach first thing in the morning with about 16 ounces of water and wait two hours I am under the impression that anything can be eaten or supplements taken after this time because the minocyclene has already been digested. This may not be correct though. I know there are certain minerals like calcium, magnesium, and iron that will bind with the minocyclene and render it less effective. I am sure others will chime in with their thoughts.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #463920
    Luck20
    Participant

    Thanks for the reply spiffy1. I can’t figure out where I read that. It sounded like it was discouraging quite a few vitamins with minocycline.

    Its heartbreaking to think that some people might not be getting the medication because of drug interactions with other drugs and vitamins. Maybe thats why some people are thinking AP doesn’t work? I’m so glad someone early on someone gave me the heads up about not taking probiotics and antibiotics together or its likely I would have mixed the two every day!

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

    #463921
    whaleharbor
    Keymaster

    FYI…for what it’s worth…the only way I can tolerate the Minocycline is with food. I even take it with food that contains calcium and I know that lessens the effectiveness of the mino…but it’s what I do…and have been doing and STILL the mino works for me. I’m the exception to many rules. There are those out there that think that mino only works for people early in the disease course and for those with RA that isn’t severe. I had RA for almost 20 years before discovering mino and at the time it was quite severe. So…as with all things…”your mileage may vary” Best thing is to work with an experienced doctor to tweak things specifically for your personal tolerance etc…

    100 mg Minocycline every other day (Actavis Brand)

    #463922
    Luck20
    Participant

    Thanks so much for your positive words whaleharbor! I really needed to hear that. Its been a stressful week where I feel nothing I do is good enough. I know this path requires incredible patience.

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

    #463923
    Lynne G.SD
    Participant

    Hey Luck,you need to calm down and de-stress(is that word o.k. in English) as that can make things worse,darned adrenalin!
    I always take my antibiotic with food also but make sure it does not have too much iron or dairy.I will have milk in my coffee but not a peace of cheese cake.Doing this only lessens about 15% of it value
    When you take your vitamins ect you should follow the 2 hour rule.

    #463924
    Spiffy1
    Moderator

    I am off all supplements now but when I was consistent I would take my minocyclene in the morning and probiotics late in the afternoon. It seemed to work. I need to get back on them. Please let us know what you find out and how you are doing.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #463925
    Luck20
    Participant

    Thanks for your input. I really appreciate it.

    I’m actually doing quite well physically and see small improvements quite often that I’m grateful for! I have no doubt that I’m getting better and headed toward remission.

    The problem is I heard something negative from someone I had respected implying its MY own fault for not getting better faster. It was devastating! So now I’m looking at everything I do to see how I can improve in ways that make sense to me. I know its wrong to dwell on what one person says, but when your sick and afraid, your vulnerable.

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

    #463927
    Spiffy1
    Moderator

    Oh, no! Don’t listen to that! There are naysayers in everything. There are those people who think autoimmune disease itself is the person’s fault. They believe that we are somehow doing it to ourselves like we could have control over this. This opinion largely is because for so long and really even still doctors don’t know why some people with certain genetics succumb to these things while others with the same genetics don’t. And since it can’t be explained it is easiest just to blame the person. Sort of like people blaming patients for ulcers because they were uptight only to find out it was H Pylori. No, the road to healing is mountains and valleys and not usually a straight up shot to success. Some people who were not too bad off can take a really long time to heal and some that were really bad off can heal more quickly or completely vice versa. Your path to healing is as individual as your fingerprint and you need to surround yourself with people that will cheer you on no matter where you are on the path. Don’t stress about that comment. Just keep plodding your path.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #463928
    Luck20
    Participant

    Thanks for the encouragement Spiffy1.

    I just wish people would do more research before speaking. This isn’t a quick-fix disease and my progress has actually been quite amazing compared to how things were at my lowest point. Its just frustrating to hear someone reframe my situation in a negative way because I don’t do things exactly their way. Thats very toxic behavior.

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

    #463933
    whaleharbor
    Keymaster

    Everyone’s path to wellness is different, some slower some faster…and no…an autoimmune disease is not “your fault”…that’s just ridiculous. I’m sorry someone told you that. ignore it.

    100 mg Minocycline every other day (Actavis Brand)

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