Home › Forums › General Discussion › LDN with ALA for autoimmune diseases?
Tagged: Ala
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September 25, 2019 at 7:51 am #464872Luck20Participant
Does anyone have experience with this? What are the benefits of it over only using ldn? I ordered the book on ALA but it’s nice to hear some first hand experiences too.
Thanks!
Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish
September 26, 2019 at 7:40 pm #464875Linda LParticipantWhat is it ALA?
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousSeptember 27, 2019 at 6:37 am #464877eagle26ParticipantAlpha lipoic acid.
Reactive Arthritis+ tachycardia+ prostatitis. 2015 till now. Just a short remission 4 months.
NAC, vit e, krill oil, vit b 1000 mcg daily, vit d 2000 iu daily and quercetin 500 mg twice a day.September 28, 2019 at 1:24 pm #464878SSParticipantWhat is Idn?
September 28, 2019 at 1:41 pm #464879Luck20ParticipantLow dose naltrexone. It’s being used for pain relief and to modulate the immune system. I’ve heard of it being used for cancer too. It’s pretty safe and well known in functional medicine community. A few mainstream drs are starting to prescribe it too.
I had tremendous luck with it for pain in my feet. I went from thinking I’d need another surgery to pain free! Well worth the $40 a month out of pocket. 🙂
Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish
September 28, 2019 at 9:07 pm #464880Linda LParticipantDo you take 4.5 every day? How long have you been taking it?
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousSeptember 28, 2019 at 11:21 pm #464881Spiffy1ModeratorI take 3.5. Have been in this dose for several years. Completely pain free.
Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWFSeptember 29, 2019 at 12:27 pm #464882Luck20ParticipantLinda L~
I take 4.5 mg. I slowly worked up to it over 2 months. I tolerate it with no side effects. Even after the first couple days, ongoing foot pain went away. From my research, it seemed like a very low risk option, so I’ve just stuck with it. It’s been 13 months at the full dosage.
Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish
September 29, 2019 at 6:51 pm #464883Linda LParticipantHow long have you been taking antibiotics?
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousSeptember 29, 2019 at 6:52 pm #464884Linda LParticipantI have read that LDN must be taken according to your weight. Do you agree?
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousOctober 1, 2019 at 6:21 am #464887Luck20ParticipantI’ve never heard that ldn should be taken for weight, only that 4.5 is the typical final dosage after you work up to it. I know less works better for some people and a good dr would take that into account.
I’ve been on Abx for 15 months.
Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish
October 1, 2019 at 7:43 pm #464889Linda LParticipantI’ve read it in one of the books about LDN.
RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousOctober 2, 2019 at 10:20 am #464890PhilCParticipantI have read that LDN must be taken according to your weight.
That’s true for children.
Phil
"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein -
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