Home › Forums › General Discussion › Hi all, just checking in
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November 9, 2016 at 4:54 am #457039maz.austParticipant
Its been a while since I visited here, hope all is well with everyone, or at the very least better today than yesterday.
I am now really pleased to report my RA factor has dropped (finally) from 695 to 305 just last month so it seems I am doing fine, all inflammatory markers, as usual, are up but what can I say I have PRA with a shot of Lyme & Fibro thrown in for good measure — can’t expect anything less, it isn’t going to change any time soon. Still don’t have any further issues other than my right thumb & am as normal for me relatively pain free most of the year.
My retirement is boring me to hell and back & still in the middle of doing up the house for sale – moving from beach to river, hopefully it will go on the market within the next few weeks.
Xmas is looming and am looking forward to the move early 2017, what I am not looking forward to is going to a new MD, but will be back in Melb twice a year for a month at a time working – seems the Uni won’t let me fully retire & have offered me too much money to say no to 2 mths work lol – so the really good thing is that I will be able to continue with Dr D thankfully & see my family at the same time. So all good.
If you are still heading down Lynnie send me an email & we can finally schedule that coffee!!
Once I am settled in the new house will be here more often.
Be good, smile & keep on going
Maz.aust
Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)All off days Probiotics
November 10, 2016 at 4:17 pm #457049lynnie_sydneyParticipantHi Maz.aust
Good to hear that you are still doing well. Have any sense as to what made the difference? Will certainly let you know when I am coming down, though could be 2017 now.Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)November 11, 2016 at 3:32 am #457051maz.austParticipantHi Lynnie,
Wish I did, no-one can understand the drop & apparently it’s a dramatic drop at that lol I really don’t care though it’s dropped & I am over the moon.
Just keep me posted, you never know I might still be here or may be down visiting myself.
Hope you are well though??
Chat soon
Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)All off days Probiotics
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