Home Forums General Discussion Help swollen hands

  • This topic has 7 replies, 2 voices, and was last updated 4 weeks ago by Maz.
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  • #466945
    Coco
    Participant

    Hi: I have RA and recently my hands are swollen especially my left. I’m on 100mg of minocycline 3 times a week twice a day. Could this be caused by diet?

    #466949
    Maz
    Keymaster

    Hi Coco,

    Are you working with an experienced AP doctor? How long have you been on AP? Were you in sustained remission before this flare? Changed generic brands recently? Recent RA labs? Any co-morbities- e.g., thyroid imbalance or other hormone shifts? I find my hands get boggy when my thyroid levels are out.

    #466954
    Coco
    Participant

    Hi Maz: i am on the same brand of minocycline. I see my AP every 6 months and have done so since 2005. I do take a thyroid drug for hypothyroidism. My hands were ok in May and the swelling started in June. My RA labs were all ok when I saw my Rheumy at the end of May. I have acupuncture regularly as well. I use heat and cold and massage. It’s such a puzzler and painful.

    #466957
    Maz
    Keymaster

    Any recent thyroid and RA labs? Do you take NDT for thyroid replacement, generic or brand-name levothyroxine/T3? Being hypo- or hyperthyroid can creep up and inflammation can block T4 to T3 conversion so these labs need a close eye during these times.

    If not thyroid and everything is in good order with those labs, have you had any other routine labs run for RA recently? ANA, RF, anti-CCP, sed rate, CRP, complete metabolic panel, CBC?

    If you’ve been on mino for over 5 years, have you talked with your AP doc about adjusting your protocol? Some people find that temporarily changing their dose, switching to a diff tetracycline snd/or adding a secondary abx can make a huge difference. Back in Dr. Brown’s day, he treated flares with IV clindamycin.

    #466958
    Coco
    Participant

    I take 30 mg of desiccated thyroid daily.
    My recent complete labs results were normal. I’ve been on mino since 2005.
    I tried doxycycline but it caused me further damage to my hand joint thus I have stayed with minocycline.
    Perhaps a change in diet may work not sure what else to do.

    #466959
    Maz
    Keymaster

    Any chance you had Covid or any other infection of late? I’ve had dental cleanings in the past that can set off a flare. Ugh

    I also take NDT (NP Thyroid) and find I need my Free T4 to be mid-range and Free T3 to be in upper quartile of range. TSH is usually very suppressed unless I get early morning labs drawn before I take morning dose. The T3 in NDT can falsely elevate thyroid labs to look normal otherwise.

    Some folk find adding a macrolide to doxy does the trick or rethinking mino dose.

    Yes, diet can really affect RA flaring as evidenced by recent emerging research. Without attempting an exclusion diet, it might be hard to unravel which food offenders may be a root cause.

    #466960
    Coco
    Participant

    Thanks for your help Maz.
    I haven’t had any illnesses for a long time. I’m going to detox and introduce foods gradually and see if that helps.

    Coco

    #466961
    Maz
    Keymaster

    Hope it helps, Coco! Pls come back and let us know how you’re doing!

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