Home Forums General Discussion Help for GERD from Scleroderma folks plz

This topic contains 24 replies, has 6 voices, and was last updated by  Mountains 1 month, 4 weeks ago.

Viewing 10 posts - 16 through 25 (of 25 total)
  • Author
    Posts
  • #464083
    Luck20
    Participant

    Also, Lynne, I tried the enzymes and they really help. A couple times reflux started to kick up, I took the enzymes and it away. Thanks for the recommendations.

    +Ana, Scleroderma, Morphea, Myositis and probable lyme, Mild reflux and mild Ild.
    Minocin m-f 2x, Azithromycin rotation, Tinidazole sat/sun 2x. Ldn 4.5, Mycophenolate 3000.

    Fish oil, Digestive Enzymes, Probiotics, Vit D, Multi

    #464086
    Lynne G.SD
    Participant

    ACK! The name of the company is GNC.I can now digest rocks and all the food I could not touch are no problem anymore.

    #464089
    Mountains
    Participant

    Oh Lynne! Your words are a soothing balm to my heart. I kept reading on the internet and on this site to try and find someone that one, had Scleroderma but still found a product that helped the GERD and two, a person (on this site) that used AP and resolved or greatly improved the Acid Reflux. I will go to GNC today to purchase the enzymes you mentioned. Our daughter has very little skin involvement (recently developed a little patch of hard skin on both hands at the middle knuckle) and so it’s easy to think her Scleroderma isn’t as bad because no other skin is involved but I worry very much about the periods she has when food gets stuck or when she has horrible esophageal spasms (also called nutcracker spasms). They are so painful for her and it makes me worry about what we can’t see. I say she has no other skin involvement but I did notice over the last 6 months or so that she has very slight discoloration on the lower part of her legs. Faint little white circles. She hasn’t noticed yet they are so light but I can see them when she is on her feet a while. Her legs are pink and the little white circles of different sizes are noticeable. That seems to me to be more of a morphea symptom but from what I’ve seen this disease can be a mixed version of your own. Thanks again for the GNC digestive enzymes suggestion and just sharing your positive results with AP and Acid Reflux.

    #464090
    Mountains
    Participant

    Thank you for the suggestion Lucky20! I have read and she has done a lot of diets but I have not tried the Plant Paradox. Anything is worth a try!

    #464092
    Luck20
    Participant

    For me, scleroderma started out as nightime bilateral hand swelling off and on, then progressing to all day after about 9 months. Skin hardening started after a year and happened in a matter of 2 months.

    For morphea, the dark red-brown spots appeared large and spread quick over a few months with some hardness fairly quickly. Not as hard as the scleroderma. It felt like I was wearing light support hose, but not real uncomfortable.

    By the time my hands went hard, the swelling in my feet had gotten bad (popping out of my shoes)and my face was getting harder and harder. At one point my mouth only opened 1 finger wide. By the way, 1/2 the hardening is gone already,my mouth fully opens, my face is 95% back to normal, the morphea is mostly gone and my feet are now 100% normal and about 1 1/2 sizes down from what they were! I’m still waiting on my hand and forearms, but I see slow continued improvements.

    I’m telling you all this to show you one path of how the disease can manifest and be reversed. I might have happened different for others, but this gives you some idea what to look for in your daughter. After a year of progressive hand swelling, it was obvious something was really wrong and then things progressed fast.

    Hang in there. Hopefully you got started soon enough and you’ve halted the progression. It sounds like you’ve taken huge steps to help her and should hopefully be able to avoid the things I’ve had to deal with.

    +Ana, Scleroderma, Morphea, Myositis and probable lyme, Mild reflux and mild Ild.
    Minocin m-f 2x, Azithromycin rotation, Tinidazole sat/sun 2x. Ldn 4.5, Mycophenolate 3000.

    Fish oil, Digestive Enzymes, Probiotics, Vit D, Multi

    #464095
    Mountains
    Participant

    Thank you for sharing all of those details Luck20. You can just imagine what it means to me to have someone’s personal insight and the details of their journey as I wade through all I read on the internet. I know everyone will have a different journey because this disease can take so many turns and has so many possible symptoms but just knowing that AP can help and sometimes even put the disease into remission is golden!

    #464096
    Spiffy1
    Moderator

    Can she or does she mind swallowing pills?

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #464124
    Martina
    Participant

    Mountains,

    Have you tried serrepeptaise, an enzyme that’s good at breaking down scar tissue? Might be helpful for her GERD symptoms until her doc gets her antibiotics figured out.

    #464125
    Mountains
    Participant

    Hello Spiffy1,
    She is better with pills than I am! LOL!

    #464126
    Mountains
    Participant

    Hey there Martina! I have never heard of that enzyme. I will definitely look into it. Thank you so very much for this!

Viewing 10 posts - 16 through 25 (of 25 total)

You must be logged in to reply to this topic.