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  • #467991
    Nefferdun
    Participant

    Linda L, I am going to try PEA for my RA pain. AP treatment did not work for me either. I believe I probably have proteus mirabilis, which is resistent to doxycycline and minocycline. It is one of the biggest culprits for causing RA. Symptoms include frequent bladder infections, frequent urination, incontinence and kidney stones – all of which I have had and some of which I continue to have. Initially I had Lyme disease and five co-infections. Then I was diagnosed with RA in 2020. Looking back over my notes I see every time I took Bactrim I felt better all over (it kills proteus). My daily headaches were gone the first day and then my fatigue improved and my pain. I just started pulsing Bactrim to see if it can help me get into remission. It is bad for yeast and gives me insomnia. As it is sulfur it causes a build up of ammonia. Acetyl L Ornithine, L Arginine and L Cysteine is supposed to help reduce that. I believe other people that do not respond to AP treatment may have proteus mirabilis.

    #468013
    Linda L
    Participant

    Hi Nefferdun,
    I am sorry I am replying to you so late.
    I’ve never heard about the bacteria proteus mirabilis. I’ve read some articles on internet and indeed the majority of it is associated with the urinary tract problems, I had such problems in the past one or two times only. Have you checked if you have this bacteria? I don’t know how it can be checked, maybe a urine test.
    I am still thinking about PEA. It’s a pity that we don’t have more responses from other people.
    At the moment I’m starting a new course of LDN. In the past my markers were improved when I was taking it. So after some years I will try it again. Have you heard about it?

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #468016
    PhilC
    Participant

    Hi Linda,

    I am taking PEA now. I’ve been taking it about a week. So far, I can’t tell that it’s doing anything.

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #468017
    Linda L
    Participant

    Ph
    What dose do you take? Please keep informing us. Thank you.
    I will definitely write here when I start it.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #468027
    PhilC
    Participant

    Hi Linda,

    I take 600 mg of PEA once a day with my breakfast. I am not going to take a loading dose because this stuff isn’t exactly inexpensive.

    I still can’t tell that it’s doing anything. Of course, that doesn’t mean that it’s doing nothing; the effect may be subtle, and I may need to be on it for a longer period of time. I will take it for a few months and then stop. If I get worse after I stop taking it, then I will resume taking it for at least a few more months.

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

Viewing 5 posts - 31 through 35 (of 35 total)

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