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- This topic has 8 replies, 4 voices, and was last updated 8 years, 4 months ago by Trudi.
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November 18, 2015 at 8:13 am #454164TrudiParticipant
Has anyone used this therapy?
It is being offered by my doctor and I am considering it.
Thanks,
TrudiLyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
November 18, 2015 at 8:16 am #454165TrudiParticipantThis is the link to the information:
http://www.serenityhealthcarecenter.com/chronic-infections/
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
November 20, 2015 at 2:32 am #454199Linda LParticipantI cannot display this page.
Linda LRA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousNovember 24, 2015 at 3:44 pm #454235TrudiParticipantHi Linda–
I’m sorry the link isn’t working for you. I wonder if others are having the same problem. You might want to copy and paste it into your address bar.
Take care,
TrudiLyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
November 24, 2015 at 10:51 pm #454238lynnie_sydneyParticipantHi Trudi
I have tried copying and pasting – keep getting a ‘cant connect to the server’ messageBe well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)November 24, 2015 at 11:24 pm #454239jasregadooModeratorHmmm. I click the link and it goes to the page, no issues. For whatever that’s worth.
November 25, 2015 at 6:54 am #454240TrudiParticipantSorry it’s not working for some. On my end it is “hot” and I have no problem connecting. I have decided to do the treatment. It has worked well for adult patients and they are now treating children. The nurse told me they had to slow it down a bit because of herxing. Nothing invasive with this treatment, no meds, etc. I’ll report back on how it worked for me.
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
November 25, 2015 at 4:07 pm #454241Linda LParticipantTrudi,
Could you please copy and paste here? Thank you.
Linda LRA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygousNovember 30, 2015 at 7:00 am #454258TrudiParticipanthttp://www.serenityhealthcarecenter.com/chronic-infections/
If this doesn’t work, try a search for serenity health care center (Wisconsin), go to “adult health” and then to chronic infections. Good luck!
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
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