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  • #465216
    Tracy
    Participant

    Hi..I was diagnosed with sclederma in July. I am currently not on any medication other than just starting AP therapy 4 days ago. Im still in the process of testing. Just waiting for the results of a second CT of my lungs and to do a second stress test since I didn’t make it through my last one.I’m feeling terrible. Tired…muscle pain….trouble climbing stairs ..anxiety. would this be due to hexing? It’s very similar to when I was first diagnosed in July. Might this be considered a flair up? My doctor was happy to prescribe the antibiotics but has no idea what hes doiing other than to follow the protocol. Any thoughts?

    #465217
    Maz
    Keymaster

    Hi Tracy, and welcome to the RBF Community Forum! Can you share a bit about your rheumatic disease, other meds you’re taking, and things like any diet, meds/doses, or supps you’re taking? It can help others to relate to your experience and share theirs.

    I think you’ll find helpful answers to all the commonly-asked questions, like herxing, in this site’s FAQ – just click the link below:

    After Starting AP

    #465218
    Luck20
    Participant

    Congrats on finding a doctor happy to prescribe antibiotics. That’s wonderful! 🙂

    Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
    Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

    Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

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