Patient Stories

Scleroderma

Linda 2006 USA

“I have had Systemic Scleroerma for 2 1/2 years. Iam told the disease progresses for 5 years. Here is my story: I turned 58 on 8-26-06. I went to the beach carrying my own backpack”

Scleroderma

Norma 2006 USA

“I wanted to post my story to date to give all of you who have been struggling with this disease (scleroderma)tremendous HOPE: Two years ago, at age 46, I rapidly went from an extremely physically”

Scleroderma

Laurie 2006 CA

“My Story is dedicated to the memory of Jane Lee the lady who told me about "some website called road back or something like that." Fifteen years ago I had Raynauds syndrome and my esophagus”

Scleroderma

Stephanie 2006 USA

“In the fall of 1997, I had never heard of scleroderma. I was very familiar with RA [rheumatoid arthritis] as my paternal grandmother had it for over 70 years. So, when my hands started going”

Scleroderma

Richard 2005 USA

“October 1998 ,the first tip-off something wasn't good was that my blood pressure started to rise. A trip to my internist yielded blood pressure med .One month later ,I started to get big swelling in”

Scleroderma

Eric 2004 USA

“I stumbled on to this website months after my Mother had been diagnosed. She was in a bad way. It was so difficult to see her going through this. She had been to the usual”

Scleroderma

Kerry 2002 USA

“Law Enforcement graduate. Did social work for 6 and one-half years. Started having pain in my hand in 1999 when I held on to things. In the fall of that year my fingers started-up with”

Scleroderma

Judy 2002 NZ

“Before I moved to New Zealand I had been living in New York for 14 years. I had a good job there and good friends in a city that I loved. Phil and I met”

Scleroderma

Mary 2000 USA

“I was diagnosed with Diffuse Scleroderm June of 1999. I was hardening inside and out quickly and by Feburary of 2000 I was bedridden, unable to walk barley ten steps and scared! My face, legs,”

Scleroderma

Bud 1999

“I am a sixty three year old male. In June of 1997, life was good. I was working as a manufacturers' sales rep, happily married for twenty-five years, and generally enjoying life. Then my world”