Patient Stories

Scleroderma

Yvonne 2011 USA

“Looking back over the past year, it’s hard to believe I’ve come this far and that my life has pretty much returned to normal. My journey with systemic scleroderma began in May 2009, as I”

Scleroderma

Steven 2010 USA

“How to start this... I was raised a Navy brat growing up on the eastern seaboard. Dad was typical navy sailor and we usually lived in Navy quarters. Growing up Navy dad would usually go”

Scleroderma, Lyme Disease

Kim 2009 USA

“2005 was one of the best years of my life and also one of the worst years of my life. One of the most joyful moments Id ever experienced came that spring with the birth”

Scleroderma

Zoe (daughter of Paula) 2008 USA

“Our daughter was four months shy of her 11th birthday when she was diagnosed with systemic scleroderma in May 2006. The doctor who diagnosed her told us that she probably had had "below the radar”

Scleroderma

Antonietta 2007 USA

“I am a single mother of three wonderful children and I was diagnosed with scleroderma in November 11, 2005, after several years of doctors testing me and trying to determine what was wrong with me.”

Scleroderma

Dolores 2007 USA

“My Fight And Recovery From Scleroderma In 18 months on A/P I am Dolores P. Rosner and this is my story. May 13th, 2007 - Happy Mother's Day. I was diagnosed with S/D in October”

Scleroderma, RA

Anonymous 2007 CA

“In 1999, lesions that had been developing for about 10 years on my adult daughter's upper arm and stomach were finally diagnosed as scleroderma. It was good to have a diagnosis but frightening when we”

Scleroderma

TS (Mom of boy) 2007 USA

“I am the mother of an eight-year-old boy who on April 2007 was diagnosed with Systemic Scleroderma. We have been trying to figure out what is wrong with him since May 2006. This is just”

Scleroderma

Mary P. 2007 USA

“July of 2007 was my one year anniversary on AP, and also, on being diagnosed with aggressive, diffuse scleroderma. I figured it had started months before I was diagnosed (but didn't clinically meet the criteria),”

Scleroderma

Linda 2006 USA

“I have had Systemic Scleroerma for 2 1/2 years. Iam told the disease progresses for 5 years. Here is my story: I turned 58 on 8-26-06. I went to the beach carrying my own backpack”