Patient Stories

Scleroderma

Aynur 2017 Baku

“Dear Friends! I've been away for so long – sorry but you never leave my heart and thoughts! Just wanted to check in here, say hi and encourage all those new to the AP. It's”

Scleroderma

Sharon 2017 USA

“My symptoms began abruptly in September 2014. Rash on face, swollen hands and fingers, swollen legs and feet and puffy face especially around eyes. Terrible fatigue. Chills and low grade fever. Very sensitive hands and”

Scleroderma

Susan 2016 USA

“My SD symptoms started in 2005 but I was not diagnosed until 2006. I took conventional rheumatology meds for almost a year but my symptom progression continued very rapidly. I could not: open a water”

Scleroderma

Sharon 2016 USA

“Minocycline works! My symptoms started in September 2014. I was diagnosed in January 2015 with systemic diffuse scleroderma. Heart was racing at 140 bpm. Rash on face. Swollen face, hands, fingers, legs, ankles and feet.”

Scleroderma

Adrianne 2016 USA

“So it all began with a little weakness in my hands. Then it was a whirlwind of immense pain, fatigue, appointments, blood work, testing, and traveling to specialists. I wont bore you, you've experienced the”

Scleroderma

Paula 2014 USA

“When I last posted to the site it was January 2008. My daughter Zoe was 12 and had been on the antibiotic protocol (AP) for two years. I am pleased to report that she's now”

Scleroderma

Michelle 2014 USA

“One month ago, I couldn't . . . ZIP My own pants, DRY off after a shower, POP the top of a pop can, UNSCREW the cover of my truck's gas tank, TUCK under the”

Systemic Scleroderma

Judith 2012 USA/NZ

“In November 2000, three months after moving from New York to New Zealand, I was diagnosed with Systemic Scleroderma and Raynaud’s Disease. I was 41 years old. Symptoms had begun a few months before with”

Scleroderma

Yvonne 2011 USA

“Looking back over the past year, it’s hard to believe I’ve come this far and that my life has pretty much returned to normal. My journey with systemic scleroderma began in May 2009, as I”

Scleroderma

Steven 2010 USA

“How to start this... I was raised a Navy brat growing up on the eastern seaboard. Dad was typical navy sailor and we usually lived in Navy quarters. Growing up Navy dad would usually go”