Forum Replies Created
August 14, 2017 at 3:11 pm #460436
Thanks, Phil. Sorry, can you define what kind of reaction I should be looking for during this experiment? Do you mean a flare up in RA symptoms? As for a washout I’m not sure if I have noticed a difference. I know that sounds stupid- it’s hard to tell when you feel like crap non-stop.
Hi Rose.. Thanks for your feedback regarding TEVA. It’s so hard to navigate what works best…August 11, 2017 at 6:29 pm #460380
Hi Phil… Thanks. No corn. Why?March 7, 2017 at 12:00 pm #458147
Thanks, Phil. Given my previous sensitivity issues, I think I should start off slow. The bad thing is, I can’t remember us discussing a “routine”, other than “just take 250 mg once weekly”. Do I have to worry about taking it on an empty stomach like the Mino, or does the body absorb it regardless?October 24, 2016 at 10:45 am #456970
At one point “Watson” was “Watson”, but “Actavis” bought them out (sometime within the last 2 years perhaps)? I’m currently using Watson with no luck, but it had previously worked for me. Just trying to make a connection to see if it has anything to do with the company changeover.
If you’re nearing remission it’s no issue for you. 🙂
Thanks for responding.
WoodsOctober 24, 2016 at 8:52 am #456967
I’m only taking (1) capsule per day of the following:
Ther-Biotic Detox Support vegcap
50+ Billion CFUs
Nobody has mentioned increasing the dose.July 28, 2016 at 5:07 pm #456247
Funny Spiffy- my right ankle is worse than my left, and it’s minimal in the AM, but gets worse throughout the day.July 28, 2016 at 8:45 am #456240
Yes, I take 2-3 NSAIDs per day and a Pro-Biotic.April 25, 2016 at 9:48 am #455513
Hello.. I had a similar issue and yes, your elbows WILL unlock. At first they might get worse, then you’ll wake up one day and notice they are better. I had the same problem… Good luck!November 11, 2015 at 10:08 am #454129
This is great read, and it’s so very true. People put too much stock into their physicians, period. They aren’t Gods, they don’t know everything. There’s no way in hell I would accept any kind of treatment moving forward until I do my own homework and feel comfortable with the approach. Unfortunately not everyone feels that way.July 31, 2015 at 8:25 pm #375190
This is just my own patient perspective, but I struggle with the connection between food and RA. Please donJuly 31, 2015 at 8:13 pm #375255
Everyone is different, but IJuly 24, 2015 at 3:27 pm #367363
Improved Lab Results.. FINALLY!
Hey there Road Back peeps!
Hope everyone’s having a great summer! I just wanted to share an update that I’m very excited about. My AP doctor ran my labs last week, and for the first time since I was diagnosed with Rheumatoid Arthritis in 2011, my C-Reactive Protein is within a NORMAL RANGE! My Sedimentation Rate is also normal, and my Rheumatoid Factor is on the decline. At its highest my Rheumatoid Factor was in the 70s; now it’s down to 17!
My Primary Care Physician was quite pleased to see my recent lab work. Although I don’t foresee her treating patients with RA, she did say to me quote “I don’t care what you do to treat your RA as long as it’s working”. She also said that she cannot deny the fact that my AP doctor has helped me. Although She’d prefer me to see a Rheumatologist, she’s also of the belief that “It’s your body, you need to do what’s best for you”, and doesn’t give me crap when I go to see her. She’s also very cooperative in running any tests that my AP doctor asks for so that my insurance will pay for it.
Things aren’t perfect- I still have what I call “baby flares”, and I recently had to a washout of the Mino. That’s okay though- I’m learning how my body reacts to the protocol and I know how to respond when things start to go south. I’ve learned that when I begin to have a flare it’s best for me to do a washout so it doesn’t become a “full blown” flare. I also still have days where I feel “yucky” (it’s hard to describe), but it’s something I can totally deal with, and I don’t have those days all the time.June 10, 2015 at 6:10 pm #367362
It’s been a while…
I can’t believe the last time I posted was back in January! Still doing really well from an RA perspective. I have zero joint pain, and my morning stiffness is gone. All joints are functional with exception of my right index finger, but that has slowly gotten better, can actually bend it now.
Still having major issues with brain fog and just feeling overall “icky” some days- not sure how to explain it. Regardless, I’ve come a LONG way- I can’t really complain considering where I’ve been.
I did have a bump in the road a few weeks ago with tingling in my hands and feet. I know this can be a symptom of RA, but it’s not a normal symptom for me.
Still trying to follow an overall Paleo lifestyle but admittedly I’m not 100% perfect. These days I’m more concerned about eating “real food”. My basic rule is that I do my best to avoid anything that comes out of a box or package.
Wishing everyone the best in health!February 18, 2015 at 8:14 pm #371508
IJanuary 6, 2015 at 9:55 pm #367361
Happy New Year to all of my “auto-immunie” friends… Not sure that’s even a proper phrase, but I like it, so I’m going with it.
Just a quick update… Still feeling pretty well on the low-dose of Mino (30-20-30) M-W-F. Regardless, my body seems to like the low-dose, so I’m in no hurry to increase it. I’m still trying to eliminate all the crappy carbs/sugars (as much as possible), and trying to just eat healthier overall. The only stiffness I’m experiencing is with my hands when I wake up in the morning; it’s very minimal, and sometimes I don’t have any stiffness at all. Or, if I sit for too long I’m stiff, but it quickly fades within moments of walking. Finally, I’m walking up and down stairs again like a normal person! Wow… what things we take for granted. I was a complete asshole before RA- and although I hate RA and don’t wish it upon anyone, I’m sure a much nicer person these days. I’ve learned a lot.
I just realized it’s been a little over a year since I started to feel better without sliding all the way backwards. Not sure what tomorrow will bring, but I’m definitely happy that things are going well for the time being. I’m leaving on a trip for Puerto Rico in a few weeks- it will be nice to be able to handle my own luggage this time and not have people chasing me around asking me if I need a wheelchair. This is a really big deal for me, because I was really wondering if I would ever be able to travel again given how horrible I felt in November, 2013.
Please… To anyone out there who is contemplating AP therapy, or having a hard time, don’t give up! I can’t stress to you enough that there’s no exact science to this madness! Sometimes it takes a while to figure things out and “tweak” your individual plan.
Wishing everyone the best in health for 2015!