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  • #459419
    Valsmum
    Participant

    Linda,
    I have learned a few things about diet after living with RA for 7 years. Avoiding foods is just as important as adding healing fresh raw fruits and veggies. When you juice raw green veggies and carrots it is easily digested and its molecular structure similar to our blood . With Gerson Therapy patients juice 15 pounds of veggies a day. I can feel the difference if I skip a fresh juice, it is SO helpful tha I can even fudge on the no no foods. I d not like cleaning the juicer but I can do it in four minutes and it REALLY helps. Also, I started making two juices at once and drinking them one right after the other, so I can ensure that I got two juices in that day. I shoot for three.I am no longer anemic and some of my frozen joints are no longer frozen or swollen.

    #457279
    Valsmum
    Participant

    It is probably a side effect of medication. ALL medications have side effects, I had heart paplpiatations with Humira and ibuprofen. I found that raw food diet really made a difference with my RA symptoms/

    #455140
    Valsmum
    Participant

    I tried Humira, Orencia and Remicade and my hope was for less pain. I was also hoping I could eat whatever I wanted without pain. Well, those meds did not work(had to take more prednisone) and I was still in a lot of pain and now with serious side effects, which were blood disorders. My hemoglobin dropped to 8!! When I was taken off those meds I was no longer anemic. The best thing for my back pain is the NO STARCH DIET, it truly does help. Have you ever checked out http://www.kickas.org? Try eating green salad with chicken for a week or two and see if your pain in spine improves, mine did and it gave me some hope…finally. Stay away from grains and sugars & eat some raw veggies everyday(you can juice them), slowly your health will improve.

    #375187
    Valsmum
    Participant

    I have read the same thing about NSAIDS that they might cause intestines to become permeable.
    It makes sense that food can go through the walls of the intestines and into the bloodstream or joint, and then the body sees it as something that is foreign and begins to attack, then we feel pain.
    I have mentioned that I feel pain the same day and often within the hour of eating a food on my no no list. I wish it weren’t true, but my knees are affected by grains and dairy , they get swollen then need to be aspirated.

    ps I changed the link to a video of a lady that beat her RA she had for 12 years with raw food diet. She said she had taken over 95,000 pills. I like her video better that the original link I posted, so I changed it.

    #375163
    Valsmum
    Participant

    Maz, this was interesting, thanks for the post. It makes me think of the times I read high dose vitamin c can cure cancer, not sure??? But both antibiotics and vitamin c help the immune system to heal the body from cancer. They both make sense to me.

    #375185
    Valsmum
    Participant

    You are right about making oneself vomit, not a good idea or a good behavior on a regular basis. I did not read the whole article, I just found the cooked food theory interesting, especially since it hits so close to home. I found the part about too much sugar that is not digested properly turning into excess lactic acid, which could be source of inflammation. I don’t know ….it seems to be a theory, a theory that is interesting to me.
    Like you, I also believe that some folks have done well with antibiotics and no diet change. I don’t think they are lying, I think abx might cure some from RA. I thought I was going to die with the smallest amount of mino, 25mgs and I was ready to be hospitalized, it was awful. Side effect or herx reaction, whatever it was, caused me too much pain and inflammation , I tried for a year. Then I switched to eating lots of salad and my pain and inflammation started to lessen. After a year or so, I noticed the joints that were frozen and had no range of motion were moving again,(my dr asked me if I had fallen because it was frozen for over a year) it was all I needed to stick with what I was doing. Sometimes I get into a rut and eat a bunch of candy or have a slice of toast and I get myself into a nasty flare. The diet is hard for me , but at least I have an answer that works. Take care and I hope you have good health.

    #374066
    Valsmum
    Participant

    Hi Susan,
    It is nice to see your post. I remember how sweet and caring both you and Maz were when I was first dxd with RA. It was so nice to have someone to talk to about my new diagnosis and all the pain that comes with it. I am glad to hear you are feeling well and not on medication. Take care 🙂

    #375183
    Valsmum
    Participant

    http://www.bettyrawker.com

    I like the recipes on this website. I have tried a handful of them and they are TASTY! The gal that runs it has or had arthritis, in her spine. She was diagnosed with AS and now she eats raw and teaches classes on how to prepare tasty food that is good for people who suffer with arthritis.
    Take care!

    #375182
    Valsmum
    Participant

    I know the diet is restrictive, but I could not walk to the mailbox without extreme pain. I had to stay upstairs in my house because I dreaded going down each step.My knees were swollen grapefruits for years, I walked with a limp in my 30’s when I could easily run 5 miles the previous decade.
    SO, to me, what I have gained, knees that are back to normal, except for a once or twice a year flare up, is not that big of a deal. Previously, I could not go trick or treating with my kids, or sit on the floor for a party game at my daughter’s birthday party because I would cry if I had to get back up, or give up a trip to an amusement park because it was too painful. The trade off is well worth it for me. I had a really hard time giving up grains and sugars. I feel best eating mostly raw fruits and vegetables , but I don’t do it like a religion, honestly I sneak in Starbuck coconut drinks in my diet and see how it affects me, but most of the time it does hurt and I pay for it. I wish it were different, but for right now I feel best eliminating grains, sugars and dairy and eating as close to raw as possible. The health I have received in return is well worth this sort of diet…… or behavior as you put it.

    I don’t know what causes RA I just know what has made me feel better. The following doctors have similar diets and have helped patients feel better or heal from their RA.
    Dr Mercola -RA Protocol Diet , Dr. Joel Furman , in his book Eat To Live, Dr . Seignalet , Dr. Max Gerson from the Gerson Institute , and lastly not a dr but the man on ” Fat Sick and Nearly Dead “documentary (free on the internet)

    #374643
    Valsmum
    Participant

    Hi Spiffy,
    Sorry to hear about your anxiety and depression. I am going to tell you what worked for me and mad me start to feel better. I was dxd with RA and I found a few websites that seemed interesting and when I read about a no starch diet on kickas.org and ate just chicken and salad for a week I actually felt like my swelling and pain started to subside, very slowly. My food triggers were grains, dairy sugar, nightshades and starchy veggies and beef. It is a lot of food, but I did not feel anxious anymore because my pain was starting to lessen and I felt like I was in control of the pain because I knew what was causing it, whereas before I did not what was causing it and when it was going to stop.
    I am a Catholic and I believe in redemptive suffering, simply put it means this: You can offer up your pain and give it to God as a gift… like this, today when I have pain in my wrist I offer it up for my son that he finds a good woman to marry. Lets say I have a relative that is sick and in the hospital I will offer up some annoyance like someone cutting me off while driving for my sick relative. No pain goes to waste, we join our suffering with Our Lord. We immitate Him. He did not have to suffer and die for us, but He did. Lastly, remember He will never give you more than you can handle.

    One last thing, I would not recommend the anti-depressants, I believe they make things worse. Take care, I will pray for you.

    #323688
    Valsmum
    Participant

    I don’t know a lot about AP, I tried it for a year or two could not handle the herxing or side effects of abx very well, but it looks like a lot of folks here with scleroderma have done well.

    I changed my diet to mostly fruits and vegetables my symptoms got better and my body started to heal, slowly, and some of my frozen joints started to move after not moving for two solid years, my dr asked me if I fell(and dislodged something), because my elbow had been frozen for two years and now its fine, no pain, no swelling.

    #373731
    Valsmum
    Participant

    Dear Old Timer, I am sorry to hear about the return of your RA and cancer, you are a trooper. As I write I am wearing a Miraculous Nedal from Lourdes given to me by my mother in law , who is 81 years old . She went to Lourdes with her brother when he had cancer. I have worn it everyday since she gave it to me 10 years ago. I feel closer to Our Blessed Mother than I did before I started wearing it, knowing she was given to us by Our Lord to care for us and pray for us when we are sick and down.

    Have you ever tried the autoimmune paleo diet? It cuts out many foods that seem to aggravate my RA. I can’t say I know the casue of RA, but my frozen joints have reduced from 5 to 1 and my sed rate from 65 to 19 and that was a few months ago, it might be lower now. The diet is this: no grains, no processed sugar, no dairy, no eggs, no seeds no nuts and no nightshades. You can vegetables, fruit and grass fed meat and honey. Give it a try for a week, I think you will notice an improvement. I will pray that you get better again, take care!!

    http://www.olrl.org

    #351378
    Valsmum
    Participant

    My knees have been great for more than 6 months, no more pain, no swelling, I am grateful EVERYDAY. I can walk for hours and stretch my legs out straight, that was something I could not do for years, they would not straighten out, they would bend a little but I could not flex them straight out,… ya know like you do in the morning when you wake up in bed. I can do that now, I am so grateful.

    I just found something I was already doing but there is a name for it…… Autoimmune Paleo Diet/Protocol. I was looking online for recipes recently and I stumbled upon AIP. In a nutshell it is this: no grains, no processed sugar, no dairy , no nightshades, no eggs, no seeds or nuts. Basically you eat can fruits , vegetables, honey, grass fed meat and fish. I don’t eat as much meat as I think the protocol calls for because I feel better with less meat in my diet. I don’t eat meat everyday, I feel better without a lot of meat, maybe I was eating too much of the wrong kind for example, corn fed cattle/chicken.

    You can google “Autoimmune Paleo Diet ” and you will find lots of recipes . The body can heal itself as long as we don’t suppress our immune system, right. I don’t eat meat everyday, but I think this diet is helpful.

    google ” doctor yourself” read the arthritis treatments to the left. Naturpaths believe that arthritis stems from a bad diet, I can attest to this. In addition, naturpaths rarely see arthritis in folks that eat mostly raw fruit/vegetable diet. Cats were given cooked food diet and it induced arthritis, it was reversed by feeding cats raw fruit and vegetable diet.

    “Fat, Sick and Nearly Dead” great documentary free to watch on hulu.com

    http://www.olrl.org

    #374485
    Valsmum
    Participant

    That is wonderful , I hope she continues to do well!!

    #374198
    Valsmum
    Participant

    Thank you Jan, Linda and Phil.
    Phil, yes the ibuprofen has a dye. I tried not to take as much as I usually do, but I still have pain so is hard to stop taking it. I broke out three times from head to toe. I was scared. I did go to an allergist and he said it sounded like a medicine rash. well, it did not happen again and I stopped some of the nsaids and took salsalate instead for pain, but it made my stomach hurt.
    They gave me 20mg prednisone at the ER , benadryl and pepsid, it took away the rash after an hour or so.They wanted to give me 60mgs f prednisone, I would of ended up in a mental ward, that stuff makes me feel so uneasy.

    thanks again guys, hopefully it does not return

    Merry Christmas

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