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  • #461282
    Trillium17
    Participant

    Hi Maz: 1) Yes, when it all began, months after “ivywhacking” work (in own yard and woods btw) my 1st thought was Lyme. I knew zero about arthritis… oddly enough. I was tested, twice? one was PCR found negative.
    2) transdermal estrogen is bioidentical. I think it helps some non arthritic symptoms.
    3) have never tried minocycline, though… hard enough sell getting doxy rx, plus more poss mini side effects??
    4) Thyroid, adrenal also checked out fine
    5) I stopped doxy as an experiment. I had also stopped sulfasalazine, which my 2nd rheumatologist had me on b4 he “let” me try doxy… sszn only moderately useful for me. He did a very $$ arthritis monitoring panel once, then last time I was there injected me with methotrexate, pnce was enough. I felt a bit coerced… had 2 or 3 days of feeling anxious, bad dreams, so never went back. Frankly, I felt I was almost at remission. Hands not perfect but better. Besides, the most troubling symptom, my feet, had resolved beautifully. I could walk a lot again. And I felt the person who got me there was ME. With roadback’s info, very frankly

    6) alas, I love nightshades, I like tomatoes esp. Eat only reasonable amts potatoes at home. Scratch cook. Elimination diet did help a bit,
    7) As to GUT, not sure mine is leaky… but I take probiotics.
    8) Two days ago new Primary, best I ever had, retired. She was doing more regular lab work… But I have kept excellent records
    9) Lynnie is right. Optipea is what I meant. I ordered some for self. (But husband also recovering from recent open heart surgery, common complication of which is over hydration, drowned lungs… thought it might help him as well.) I have a lot going on. I understand need for patience with LDN. I had to work a bit to get that RX…& those 1st few shining days of pain freedom were so amazing… I was shocked delighted, charmed by them… hope they return. I need my right hand working again very badly.

    Many thx Max, Lynnie, Richie, and others. Continue to learn from you all. Will report back on results. 🙂

    RA factor Negative HLA Positive Psoriatic Arthritis (mild case: hands/feet) 2014. Family history of Rheumatoid arthritis. Current meds: Doxycycline 200 mg/day, naproxen 500 mg prn, transdermal estrogen, trying 3 mg LDNaltrexone currently, Krill Oil, Vit D, Vit C, probiotic, Vit E, Vit K2 other supps. reduced gluten, dairy, sugar in diet.

    #461273
    Trillium17
    Participant

    Hello: Eternally grateful for this site. About psoriasis and infections & arthritis… For sure they are linked! For about 10 years before I was diagnosed with Psoriatic Arthritis, besides increasing nightly bouts of tingling painful hands, I also had patches of itchy skin behind ears, was always scratching those… between breasts, on an arm, between buttocks. I remember sinus infections twice a year, then neck stiffness, etc. I also had a baby, a mom dying of cancer, and therefore some stress. Visits to dermatologists never resulted in “psoriasis” but only “eczema” diagnoses. Later on, I would remember that my mom had a lot of that flaking stuff, & her father died of rheumatoid arthritis back in the 1940s. Anyway. I also participated in neighborhood project: clearing english ivy out of a woodland housing a deer population… In 2014, was caring for elderly relative, packing up her former tenant’s rather dirty stuff in boxes. About 30 days later, sudden onset of my first 2 sausage joints…
    I have a bkgd in microbiology and toxicology…am neither PhD, or MD, but I can read and think. My first Rheumatologist (pharmacological incompetent; he thought I’d know if Celebrex would work for me within a 3 day trial!! Ha!) injected my sausage joints with cortisone, ignoring pleas for an antibiotic, which I asked for without any knowledge of this site, Dr. Brown or anything. Fool that I was, I let him… and watched two joints deform within 1 week. I remember passionately arguing that cortisone didnt seem the right approach…did we really want to dampen my immune system if I might have an infection?? (Why were we ignoring what was patently obvious to me: an inflammation, probable history of exposore to microbes.) He said antibiotics would be useless, injection would take pain and stiffness away. (Yeah, right. By summer, and for another year, I would not be able to walk without hellish pain. Until I had a carpal tunnel surgery on right hand, could not sleep much.)
    Well, I still don’t have very much skin involvement. I truly believe my “psoriasis diagnosis” is just a fiction… Truth is: I have a milder to moderately painful infectious arthritis in hands and feet, some spine perhaps, but for medical convenience they “code” it as psoriatic. For those patches, my PCP has been most useful. (no longer see Rheum #2) She gave me “Boericke & Tafel’s Psoriaflora Cream (homeopathic) supposed to contain Berberis aquifolium 10%. For my mild case, it works… when I remember to use it. Bottom line: YES. Skin patches and arthritis down the road? Definite probability… especially in anyone MIDDLE-AGED or older, when hormones dive and immune system less active!!

    Just in case you’re curious, this is where I’m at. After couple years on Doxycycline for RF negative HLA positive psoriatic arthritis, decided to stop for awhile. Over summer tried strict elimination diet; have reduced gluten, sugar, dairy quite a bit. Have also had constipation issues, in spite of probiotics and good (paleo type) diet. (Hint: Strongly suggest you check out gutsense.org website.) Since hand pain always there, worsening lately, recently decided to try low dose naltrexone. My PCP had me start at 1.5 mg/day for 2 weeks; had amazing relief in both hands and feet first few days, but :(sadly effect on hands stopped. Placebo effect? Am now at 3 mg/day… Hand pain stronger, so just restarted doxy. Has anyone had any experience using this combo for this reason. What about with PEA?

    RA factor Negative HLA Positive Psoriatic Arthritis (mild case: hands/feet) 2014. Family history of Rheumatoid arthritis. Current meds: Doxycycline 200 mg/day, naproxen 500 mg prn, transdermal estrogen, trying 3 mg LDNaltrexone currently, Krill Oil, Vit D, Vit C, probiotic, Vit E, Vit K2 other supps. reduced gluten, dairy, sugar in diet.

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