Forum Replies Created
March 8, 2011 at 7:23 pm #355856
Hello – My son is currently taking Humira and I will be starting him AP the end of the month. If we take him off biologics he flares up within a month and Dr. S. in Iowa is recommending that he stay on the biologic for now and adding in the antibiotics. Sorry I don’t know any more yet. Good luck!March 8, 2011 at 7:07 pm #355791
Hi Lynnie – Yes, I have the Board Preferences set to allow PM. Also I did receive your message, but am unable to respond or compose any new message. Instead, I receive the following error:
We are sorry, but you are not authorised to use this feature. You may have just registered here and may need to participate more to be able to use this feature.
Should I post this in the tech forum?
JasonMarch 8, 2011 at 3:26 am #355789
Sorry for the delay in responding – we were at an arthritis event over the weekend called the JAM (Juvenile Arthritis March) at the Mall of America near Minneapolis, MN. It was a lot of fun and a great event. The volunteers at these events give until it hurts. Yet something in my gut tells me this isn’t the best way for these kids to live… somehow there must be a better answer for them.
Thanks so much to those who responded and for the kind words about my son. Every chance I get I rub it in to my wife that he looks like me hehe. Except those big brown eyes. They are an exact replica of the eyes that managed to melt this otherwise sturdy firefighter before he was born. Now I am powerless against Star Wars purchases and “book-time” as well as “take me out to eat” and “but it was on sale”!
I have read and re-read through your posts as they contain so much vital information.
Judy – Thank you for your ideas! Traveling isn’t an issue for me – like you we also have traveled hundreds of miles to speak with “specialists”. I spoke with Dr. S. in Iowa last week and I have 1 week mid March blocked off on my calendar (per his request), but am actively looking for a local physician he can work with so we don’t have to be gone that long.
Lynnie – Thanks for the links. I will be contacting the mom in this thread as soon as I figure out why I can’t send her a PM!
Parissa – Thanks for the lab info. Ingenix looks like an excellent start for us. Aidan was tested for Lyme years ago with a standard test and it wasn’t until I found this board that I knew that test wasn’t comprehensive. I’ll read through the website tonight.
Maz – This information is excellent and exactly what I need to get started. I will call Ingenix tomorrow morning after familiarizing myself with the testing kits and procedures. Thanks also for the thread links. I am soaking up every ounce of information possible.
It’s time for me to turn off the power to myself! My brain is overheated from reading and processing. I have off tomorrow so I should be able to make some real headway tomorrow. Thanks again to everyone.