Home Forums General Discussion When to test for lyme & Calcinosis question

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  • #307237
    jelretiredmama
    Participant

    Have been seriously considering the lyme test through Igenex but am wondering about timing. Have been on 250 mg tetracycine MWF since mid Sept 2012. Definitely feeling much better. My question – will having already started AP impact lyme test results? I just want to make sure that I will be spending the money wisely. Am Canadian so this cost will not be covered.

    My other question, does anybody have any thoughts as to calcinosis on the fingers. Do you think that it is a deposit created by the mycoplasma (or nanobacteria) where they are hiding or is it possible that our bodies have created the calcinosis in order to encapsulate the mycoplasma.

    Tks.

    #366669
    richie
    Participant

    Hi–Calcinosis are calcium deposits formed –generally due to the presence of various rheumatic diseases such as crest –ra –etc —
    richie

    #366670
    Maz
    Keymaster

    @jelretiredmama wrote:

    Have been seriously considering the lyme test through Igenex but am wondering about timing. Have been on 250 mg tetracycine MWF since mid Sept 2012. Definitely feeling much better. My question – will having already started AP impact lyme test results? I just want to make sure that I will be spending the money wisely. Am Canadian so this cost will not be covered.

    Hi Jelretiredmama,

    It really depends on what type of test you’re ordering. For PCR testing, for example, the suggested time to be off abx is one month. However, if it’s an antibody test, such as the western blot test run thru IGeneX, it’s not necessary to be off abx for the blood draw. It’s just a measure of what antibodies are being produced by your body in response to various different outer surface proteins (antigens) produced by the borrelia spirochete. This response will vary over time, as Lyme is a waxing/waning illness and the bug is capable of changing up its outer surface proteins very quickly. So, it should be noted that a western blot is just a test that reflects one “moment in time” and this is why such a test should be regarded not as conclusive of no infection, but more as a pointer that the infection is there if certain borrelia-specific antibody bands show up. You’ll find lots of info on the actual IGeneX website about all this, including the following which is found under the section, “What tests are available,” by clicking on “What you should know about Lyme disease.”

    http://www.IGeneX.com

    “The WESTERN BLOT tests (IgG and/or IgM) visualizes the exact antibodies you are making to the Lyme
    bacteria. In some cases, the laboratory may be able to say that your

    #366671
    jelretiredmama
    Participant

    Hi Maz

    Thanks once more for the great info. Have been in contact with Igenex and am going to go for the Complete 6050 panel. I haven’t ordered it yet but have an appt with my family doctor next Thursday. I will ask him if he will sign the requisition for the lab.

    Have actually decided to give my body a rest this week from the AP. I went up to 2- 250 MWF last week and what with my hypothroidism issues, thought I would just see if that normalizes a bit. That is the other reason I need to see my doctor next week as I tried synthroid for a week and found I can’t take it (couldn’t sleep). It has been over a week since going off it and am still experiencing some insomnia issues. Some herxing from increasing the AP but not sure if it is herxing of my thyroid. Can’t help but think that the hypothyroidiam is due to my body dealing with the infection — and adrenals being over worked. Have had some brain fog as a result.

    A couple of more questions: if positive, does Igenex come back with values or concentrations or just positive / negative reports. Also, is it necessary to do follow up testing through Igenex or can that be done locally or through a lyme doc?

    Again, thank you for such thorough and comprehensive replies. There is just so much to digest. It was actually on one of my searches that I can across the nanobac theory and arterial plaques and tetracycline. That actually eventually led me to the Roadback. Here is the link about the nanobacteria (or calcifying nanobac particles):
    http://newmedia.ufm.edu/gsm/index.php?title=Maniscalconanobacterium

    I have an appt with a hand specialist in Feb for a consult as I want to have the calcinosis removed. They are very large and although I have found pain relief through laser therapy and the AP, I think by removing them it will help in the overall battle against whatever mycoplasmas I am fighting.

    Thank you again and God Bless!

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