Home Forums General Discussion Swelling with Mino

This topic contains 9 replies, has 5 voices, and was last updated by  Maz 1 year, 4 months ago.

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  • #456231
    Woods1977
    Participant

    Hi everyone…

    I’m not 100% certain, but I feel as though I’m experiencing excessive swelling/water retention as a result of taking Minocycline. I notice that I seem to urinate more frequently when I’m on Mino (mostly at night), and I experience swelling in my legs that I normally don’t experience. Has anyone had this experience, or have any feedback to share?

    Thanks,
    Michelle

    #456235
    PhilC
    Participant

    Hi Michelle,

    Are you taking any other medications, like an NSAID?

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #456240
    Woods1977
    Participant

    Hi Phil,
    Yes, I take 2-3 NSAIDs per day and a Pro-Biotic.

    #456246
    Spiffy
    Participant

    I, too, have noticed more fluid retention in my feet and ankles…especially my left foot. Looks fine in the morning and sometimes is fine at night, but sometimes I do get a little creeped out with the puffiness in feet. I looked it up and it does say that minocyclene can cause fluid retention in individuals but it is not common. Mine is not so bad but would like to know the cause.

    DR4/DQ8 HLA, bio toxin illness
    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes
    Positive RA factor was 71 in January 2015 down to 28 as of September 2016
    IGG food allergies wheat, egg, dairy
    supplements: C and D, probiotics, milk thistle, Turmeric, cod liver oil, methyl b 12 & folate, digestive enzymes, Moducare, chlorella, berberine, LDN, monolaurin, Triphala, Patriot Greens
    MTHFR compound heterozygous
    Igenex IGM Lyme positive
    Minocycline 100 BID MWF

    #456247
    Woods1977
    Participant

    Funny Spiffy- my right ankle is worse than my left, and it’s minimal in the AM, but gets worse throughout the day.

    #456248
    Spiffy
    Participant

    How are you doing? Are you in remission? Yours was one of the first stories I followed when I first got sick. I so hope you are doing well.

    DR4/DQ8 HLA, bio toxin illness
    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes
    Positive RA factor was 71 in January 2015 down to 28 as of September 2016
    IGG food allergies wheat, egg, dairy
    supplements: C and D, probiotics, milk thistle, Turmeric, cod liver oil, methyl b 12 & folate, digestive enzymes, Moducare, chlorella, berberine, LDN, monolaurin, Triphala, Patriot Greens
    MTHFR compound heterozygous
    Igenex IGM Lyme positive
    Minocycline 100 BID MWF

    #456258
    PhilC
    Participant

    Hi Michelle,

    Which NSAID are you taking? You should see a doctor and get some blood tests done. You need to make sure that your kidneys are working OK.

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #456262
    Spiffy
    Participant

    My eGFR was back up to 97 last time. I can’t blame kidneys. Maz had mentioned thyroid as a possibility.

    DR4/DQ8 HLA, bio toxin illness
    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes
    Positive RA factor was 71 in January 2015 down to 28 as of September 2016
    IGG food allergies wheat, egg, dairy
    supplements: C and D, probiotics, milk thistle, Turmeric, cod liver oil, methyl b 12 & folate, digestive enzymes, Moducare, chlorella, berberine, LDN, monolaurin, Triphala, Patriot Greens
    MTHFR compound heterozygous
    Igenex IGM Lyme positive
    Minocycline 100 BID MWF

    #456265
    CMS12
    Participant

    That’s funny. I have what I call Minnie Mouse feet. Figured that was RA. I’ve noticed my ankles are slightly swollen too but again thought that was RA related. Didn’t occur to me it could be fluid retention.

    I too followed your story, Michelle, and would love an update on how your doing on AP.

    Cindy.

    #456266
    Maz
    Keymaster

    In case it helps, it is worth reading through the Dr. Brown speech transcript on the site as he talks about the puffiness in RA that can occur and how to treat it. You’ll find that section in bold type at the following link:

    http://www.roadback.org/resources/journal-articles/guidelines-for-infectious-hypersensitivity-approach-to-the-treatment-of-rheumatoid-arthritis/

    Severe, swift onset RA as a result of Lyme disease
    Current Meds: Biaxin (500mg BID), Tetracycline (500mg BID), Tirosint (88mcg), Liothyronine (10 mcg), Compounded Liposomal Artemisinin, LDN (3mg), Topical Progesterone,
    Current Supps: Curcumin, Bovine Colostrum, ALA. NAC, Milk Thistle, Super Liquid Folate/B12/B-Complex, Probiotics, Vit D3
    Supportive Measures: IV Myer's Cocktails, IV Glutathione, FIR Sauna, Gluten-free diet, Gym.

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