Swelling in hands

[Lisa35]

How long after starting AP therapy did it take for swelling to go down? My daughter has Scleroderma(crest) and I notice some improvements after 2 weeks but now it seems like improvement has stop. No herx, just twice she c/o headache. Any advice? I cut out dairy, most gluten, and sugar. Any suggestions? Any supplements?

[richie]

This is a long term therapy —that there is some improvement in 2 weeks is remarkable –it took about two years for swelling inhands to go down and about 4 years for contractures to completely reverse –improvements will be gradual and long term –use patience !!!

[JeffN]

As Richie says this is a long term process. My first improvements were noticed three weeks into AP, my digital ulcers were beginning to heal. I should have kept some sort of written log but did not unfortunately. I do remember that my swelling and other SD issues did stop getting worse almost immediately after beginning AP. What is your daughters dosage?

[Lisa35]

Her dosage is 50mg twice daily… She’s 75 pounds and 11 years old. She’s going back soon to Md I’m going to request he increase her dose

[JeffN]

I am not advocating a particular dosage. Just curious, I am way older and larger ;). Very happy she has seen improvement.

[Pinkmoth]

I saw some hints of improvements within the first couple weeks of starting antbiotics as well, so I don’t think it’s that unusual that your daughter is seeing changes already. But I do think it will probably be a long while until her hands are normal again. It took about 6 months of AP for my hands to be back to normal and my symptoms werent too advanced when I started.
Hang in there! She will get her hands back.

Autoimmune: ANA positive speckled. Probable MCTD with SD overlap. Hashimoto's. Possible Erlos Danlos. Mold Illness.
Infections: Bartonella, toxoplasmosis, mycoplasma, EBV
Meds: minocycline (Zydus generic) 100mg 1x daily,
Supps: digestive enzymes, Monolaurin, Betaine hydrochloric acid, iron, quercetin, biocidin

[Lisa35]

Thanks Pinkmoth

This is very challenging and hard to explain and accept as a mother of a child dealing with this hortible disease. I pray daily for God to cover her through this storm. Her little muscles feels so weak.

[Author]

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