Home Forums General Discussion RBF SUPPORT FORUM MESSAGE

This topic contains 27 replies, has 22 voices, and was last updated by  Kim 8 years, 10 months ago.

Viewing 15 posts - 1 through 15 (of 28 total)
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  • #301993
    RBFV
    Moderator

    Please join us in welcoming Kim to the Road Back Foundation's volunteer team. Kim is a longtime support forum participant with extensive personal knowledge of Scleroderma, RA and Mixed Connective Tissue Disease (as well as Lyme disease). RBF is very grateful that Kim will continue to share her experience in a volunteer role with the many that visit and participate here on the support forum.

     

    Thank you, Kim – the RBF support forum volunteer team extends a very warm welcome to you! Your ongoing efforts to support Road Back are greatly appreciated. ūüėÄ

     

     

    #327751
    JBJBJB
    Participant

    you go girl!

    Thank you for helping many others to get road back to good health, Kim. Your effort is greatly appreciated. JB

    #327752
    tainabell
    Participant

    AWESOME!¬† Thanks so much Kim…good to know even more people will be learning from you in the future.¬† You have helped me so much already.¬† You're going to be a great volunteer!¬†¬† :roll-laugh:

    #327753
    Randy
    Participant

    Wow! Congrats RBF.  What a special thread, and wonderful news, and a wonderful volunteer!

    Kim РThanks for all your terrific help, at least since I've been on the road back. You've been a huge help to me. 

    Commercial Break:

    By the way, ref your earlier suggestions to me about Neprinol and Rechts-Regulat,¬†I checked into how they differ in application compared to Lumbrokinase (Boluoke) and I¬†found out that for me Dr. F. uses Lumbrokinase as a “microclot buster” for the peripheral circulation”.¬†Apparently “it breaks down goo-like micro clots enzymatically in the distal circulation and optimizes circulatory health” and is therefore used (as a blood thinner) for blood thickening (due to SD) and Raynauds. Furthermore, “it is not directly breaking down fibrotic scar tissue as Neprinol and Rechts-Regulat may do.”

    Now, returning to¬†this¬†Special¬†News Alert thread…

    Kim – With as much help as you are already used to giving, this will be no sweat (pun intended, as you are …”Miss Sauna, RBF”)

    Again, “Yea for the RBF!”

    Diffuse SD since Apr '07
    AP since Feb '08
    100mg Mino twice daily + 1200mg Clindamycin IV's 5 days/Mo
    "No one should profit over someone else's illness"

    #327754
    Kim
    Participant

    Thanks everyone for the encouragement. ūüôā¬†

    Really, how could any one of us¬†say “No” when asked to help out¬†with this board?¬† In my darkest early days I was lucky enough to find this¬†place and quickly learned that I had all sorts of options in fighting¬†SD (didn't know I had Lyme then)¬†and that I probably¬†wasn't going to¬†die a very painful and cruel death way too soon.¬† My doctors were telling me they were sorry, but there wasn't much they could do other than manage pain as in increased!¬† Oh, please!¬† People around here¬†weren't talking about dying — they were talking about managing their conditions and living.¬† We all know how this stuff can drag us down and sometimes the hardest fight is within our own head.

    I think it was hairy/sweaty Randy who said, “giving up is not an option.”¬† Never, never give up, there is¬†always¬†something you can do to be healthier.

    Hugs………kim

    #327755
    davew
    Participant

    Yay Kim! Awesome selection!

    Dave

    #327756
    Mumof3
    Participant

    That is great news! You've already helped me so much (as well as many others) with all of your advice. Thank you for taking the time to volunteer. Your time and advice is really appreciated!

    #327757
    Trudi
    Participant

    This is great news, Kim!!  Thanks for taking the time to volunteer!

    Trudi

    Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

    #327758
    Todd WI
    Participant

    Wow, I thought Kim was already a volunteer.  I'm sure somewhere in her 700 posts she's helped a couple of people.    Thanks Kim!

    #327759
    Maz
    Keymaster

    [user=67]Todd WI[/user] wrote:

    Wow, I thought Kim was already a volunteer.  I'm sure somewhere in her 700 posts she's helped a couple of people.   

    Todd, your words couldn't be more true! Kim has always been a volunteer here – like an earth angel so many just turn to naturally –¬†and I couldn't be more grateful for her always being around, helping us out in so many practical ways with her¬†'only Kim' humor that just has me beaming from ear to ear some days.¬†You're an amazing person, Kim! :dude:¬† Thank you so much!!!

    Peace, Maz

    Severe, swift onset RA as a result of Lyme disease
    Current Meds: Biaxin (500mg BID), Tetracycline (500mg BID), Tirosint (88mcg), Liothyronine (10 mcg), Compounded Liposomal Artemisinin, LDN (3mg), Topical Progesterone,
    Current Supps: Curcumin, Bovine Colostrum, ALA. NAC, Milk Thistle, Super Liquid Folate/B12/B-Complex, Probiotics, Vit D3
    Supportive Measures: IV Myer's Cocktails, IV Glutathione, FIR Sauna, Gluten-free diet, Gym.

    #327760
    Susan LymeRA
    Participant

    Kim,

    What a joy to have yet another great RBF volunteer!  This website is such a great source of support, education and inspiration and you have been all of that for me.

    Susan

    PS.  We are waiting for the Humaworm to arrive and my husband (for him) is hoping he does not have a worm come out his nose!

     

    #327761
    Kim
    Participant

    Y'all are really sweet and it means a lot to me. 

    This will have to be quick because I'm due for more baby therapy soon.  I'm in Chicago and the three little ones will be up from naps soon.  Three year old twins and a 5 month old can wear you out, but oh, so fun!

    Susan, I can't wait for a report on the Humaworm. ūüėȬ† It helps to do a little research and look at some of the disgusting pictures so you'll know what you're looking for. I only have a few days left out of my 30 and it's still working very well.¬† The horrors that have been going on in my gut¬†are unbelievable so I'll be ordering more in a few months.¬† Lord knows how many mouths I've been feeding! ¬†ūüėĮ¬† Oh, and for anyone curious, I switched up my husband's remaining¬†pills with mine and the results are the same.¬† I'ts all me…….he's fine.

    Back to grandma duty……..kim

    #327762
    lynnie_sydney
    Keymaster

    Wholeheartedly agree, Todd, Kim has long been a volunteer here in everything but the label. And I've always loved her wonderfully frank and wryly humourous posts. You're a treasure, Kim. Enjoy your 3 little ones today. Lynnie  

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #327763
    Marie
    Participant

    Kim, I'm delighted that you made your de facto volunteer status official.¬†¬†ūüėȬ†

    Thanks so much for your presence on this board.

    Marie

    #327764
    Parisa
    Participant

    We're very lucky to have your help!

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