Potaba vs Neprinol

[rlane19]

My Doc suggested Potaba over Neprinol since I have some GERD issues.  Anyone have any experience with Potaba?

[Maz]

[user=2234]rlane19[/user] wrote:

My Doc suggested Potaba over Neprinol since I have some GERD issues.  Anyone have any experience with Potaba?

Hi Rlane,

Just did a search using the box above and came up with a thread where someone was using Potaba:

http://rbfbb.org/view_topic.php?id=517&forum_id=1&highlight=potaba

Haven't seen these members for a while, but you could trying PMing them to see if you get a response perhaps?

Peace, Maz

[Denyse]

Just updated my other thread.

But yes I had good success with potaba through a prescrition from my family doctor. And it is coveered by health plans, it is very expensive.

Very important to take on a full stomach or while eating as it can be hard on the stomach.

The prescription comes with the recommended dosage, I could not take that much. As I ended up with a side effect that is not always mentioned but after hours of googling it I found that it can cause anxiety. But it will go away if the dose is lowered and gradually ramped up again.

I had severe muscle and tissue hardening on my hands and arms all the way to my shoulders, chest, back, pretty much my whole trunk and patches on my left leg. Facial involvement as well. Potaba and minocin together has helped alot. My skin is slowly softening and the biggest improvement was with my face, I can open my mouth alot wider to eat properly now. I am starting to see wrinkles once again.

And my joints feel alot better, I am riding my bike again and gardening a little as well.

CANADIAN LIVING IN CANADA
Diagnosis/ Diffuse Scleroderma since 05/2006
Current Meds: Methotrexate, Minocin, Zantac, Rabeprozale, Zopiclone
Current Supp: Nattokinase, Serrapeptase, COQ10, Milk Thistle, Folate,, B12, D3, Melissa, UP4 probiotics, N-A-C
medical MJ
Current Extras: FIR

[Kim]

Hi Denyse,

So happy you're turning things around and getting your life back from this dreadful disease. 🙂  Keep doing whatever you're doing that's working. 😉  Crazy that we get excited to see our wrinkles return, eh?

Have you tried using an infrared sauna?  It does wonders for thinning blood and improving circulation, especially for SD skin.

Take care…..kim

[ickyvicky]

hi 😯

 

how and where du u gt to use infrared sauna??

thx ickyvicky

[ickyvicky]

hi :roll-laugh:

im gonna try the mino and potaba c how it works 4 me…:shock:

[richie]

Hi-Have you considered using the brand instead of generic –there have been instances where no response on generic –change to brand and results obtained —Many many folks in New York train or drive up to Canada – if cost is a factor -just over into Montreal and obtain a 90 or 180 day supply with a prescription and bring it down —
richie

[Kim]

[user=451]ickyvicky[/user] wrote:

hi 😯

 

how and where du u gt to use infrared sauna??

thx ickyvicky

My sauna came from http://www.saunex.com, but there are many models available on Ebay for reasonable prices.  I soooooo recommend it for SD. 😉

Take care…..kim

p.s. you can use the “search” button and read many previous posts on what models people around here are using and their comments.

[Maz]

[user=451]ickyvicky[/user] wrote:

how and where du u gt to use infrared sauna??

Hi Vicky,

Here is the model I got, but it was a gift and I might not have spent this much on one if I'd bought it myself, as there are less expensive portable ones out there, too.

http://www.evolutionhealth.com/Infrared_Saunas/fibercarbon/infrared-sauna-1personCarbon.html

The carbon-panelled ones seem to be really good, as they heat up a bit faster than the ceramic heater ones, so I understand. Also important to ensure the sauna is contructed with non-toxic materials (like glues).

Peace, Maz

[ickyvicky]

Hi Richie =)
Which generic brand r u referring to the potaba or minocycline?
Thx viki..

[ickyvicky]

Hi every1 😯
I just got outaf riteaid they want 180.00$ for 180 tblets for POTABA!
(Brand)name
Duz ne1 noe of a brand my insurance mite cover?
Generic is 108.00
Thx a whole bunch

[PhilC]

Hi Vicky,

What do you normally pay for a 30-day prescription of a generic drug? I have BC/BS and I normally pay $10. That's what I've been paying every time I get my Rx for doxy filled.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[ickyvicky]

Hi , i have HIP(hEALTH iNSURANCE pLAN OF NY) VIP DUAL ELIGIBLE.I HAVE $0 COPAY AND $2.25 FOR GENERIC $6.20 FOR BRANDNAME THEY USUALLY ARE GOOD :crying:.

what state r u in?

I will call them , but what shud in say?

thx Vicky:roll-laugh:

[ickyvicky]

Hi Denyse, a pleaure to meet u.  My insurance company as per rite aid , doesnt cover Potaba at all!! i would like to call my insurance company but what shud i tell them???

I have HIP (Health Insurance Plan of NY) and i have a $0 copay for Dx visits, $2.30 for generic $6.20 Brandnames…Idk im confussed :headbang:

Thx Vicky

[PhilC]

Hi Vicky,

Are you saying that your health insurance doesn't cover either Potaba or the generic version, or just the Potaba? I can't see why they wouldn't cover the generic. Is there another pharmacy you could try? Maybe the problem is with Rite Aid and not with your insurance.

By the way, the price they charge for this drug is outrageous. I could easily make this drug in my kitchen for very little money (seriously). I could buy the ingredients I need to make it for less than $20.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[Author]

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