Home Forums General Discussion Need advice please

This topic contains 26 replies, has 7 voices, and was last updated by  lynnie_sydney 1 year, 3 months ago.

Viewing 12 posts - 16 through 27 (of 27 total)
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  • #456469
    Rockin Annie
    Participant

    Hi Aboyer, I am not really sure yet, I was flaring so bad the doctor put me on steroids and have started to wean with a week to go. I have upped my doxy to 100mgs with the Zith 125mgs and feel really well with minimal pain. I think my chest feels a lot better with the Zith but not really sure if it’s the steroids or not, I will know more when I am off the steroids completely and will let u guys know.
    What dose r u on?…..Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #456473
    aboyer
    Participant

    That’s so good that it’s working. Did you have any side effects when first starting the zithromax? I was on doxy also but the joint pain it caused was too much. I’m on zithromax now and hopefully add in doxy later. Any supplements that help you?

    Diagnosed with severe RA 12 years ago
    Tested positive for M. pneumoniae and C. pneumoniae

    Current meds: Kineret 100mg daily, plaquenil 100 mg daily, and just started on minocycline 50 mg m, w, f

    Supplements: fish oil, vitamin b12, folate, b6, iron, NAC, selenium, zinc, vitamin c, and biotin

    #456478
    Rockin Annie
    Participant

    No side effects at all with the Zith, although I am only taking 125mgs and the only side effect doxy has is dizziness even if I take with food, but a small price to pay ?
    I take heaps of supps, thisylin, turmeric,vit B, NAC, krill oil, magnesium, multi vit, oregano oil, vit c, no gluten, dairy, minimum sugar ? All help I think and exercise.
    Hope the Zith goes well for you ?

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #456481
    aboyer
    Participant

    I’m wondering with all the antibiotics i take, if I should take an anti yeast med along with probiotics.

    Diagnosed with severe RA 12 years ago
    Tested positive for M. pneumoniae and C. pneumoniae

    Current meds: Kineret 100mg daily, plaquenil 100 mg daily, and just started on minocycline 50 mg m, w, f

    Supplements: fish oil, vitamin b12, folate, b6, iron, NAC, selenium, zinc, vitamin c, and biotin

    #456483
    Rockin Annie
    Participant

    Sorry can’t help with that one as I only take probiotics and I am fine with the PB8, maybe someone else will chime in…..Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #456491
    Nikkoal
    Participant

    Aboyer, I have seen other users post that they use olive leaf extract in addition to a probiotic to help control/prevent yeast overgrowth. I actually bought some yesterday to add to my regimen. I started minocycline 12 weeks ago, and my AP doc added biaxin in about 8 weeks ago. Someone else posted recently that olive leaf extract helps decrease inflammation as well, so a double benefit there.

    #456492
    aboyer
    Participant

    Hey, how is the biaxin working? My dr said she would try that if I couldn’t tolerate the zithromax. I actually found a combination oil of olive leaf and oregano oil on Iherb. I’m gonna try that and see.

    Diagnosed with severe RA 12 years ago
    Tested positive for M. pneumoniae and C. pneumoniae

    Current meds: Kineret 100mg daily, plaquenil 100 mg daily, and just started on minocycline 50 mg m, w, f

    Supplements: fish oil, vitamin b12, folate, b6, iron, NAC, selenium, zinc, vitamin c, and biotin

    #456494
    Nikkoal
    Participant

    Biaxin is working great. About 5-6 weeks into AP I was feeling so strange, I thought I was having increase in symptoms, so I panicked and asked my Doc for the IV infusions, which I didn’t have before starting mino because my symptoms were mild and I was newly diagnosed. She explained to me why the IV clindy is used in some cases – and she recommended just adding another oral abx and pulse them, so she changed my protocol from mino BID every day to mino MWF, biaxin TThS. I think it’s worked out really well. My increasing symptoms halted, and I have definitely noticed small, but gradual improvements here recently. Still 2 steps forward, 1 step back.

    #456498
    lynnie_sydney
    Keymaster

    aboyer wrote

    I actually found a combination oil of olive leaf and oregano oil on Iherb. I’m gonna try that and see.

    I seem to remember that you have been very sensitive to medications? Just proceed carefully when you start the olive leaf/oil of oregano. Both are anti-microbial and anti-fungal and can have quite a powerful effect. I tried oil of oregano a few years ago and couldn’t tolerate it, even at 1 drop – I had a strong and immediate flu-like response that sent me to bed. Responses are very individualised of course, but sometimes people assume herbals are mild and that isn’t necessarily the case

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #456499
    Rockin Annie
    Participant

    Hi lynnie, thanks for that info, I didn’t realise how potent the two were, I was actually going to stop the olive leaf but will reconsider now.
    Just getting off that subject I am missing my cheese very much do u eat any alternative? ? Annie

    Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
    2015 changed to doxy 50mgs
    2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
    Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.

    #456500
    aboyer
    Participant

    Maybe I should just try the olive leaf then. Thanks so much for the info.

    Diagnosed with severe RA 12 years ago
    Tested positive for M. pneumoniae and C. pneumoniae

    Current meds: Kineret 100mg daily, plaquenil 100 mg daily, and just started on minocycline 50 mg m, w, f

    Supplements: fish oil, vitamin b12, folate, b6, iron, NAC, selenium, zinc, vitamin c, and biotin

    #456502
    lynnie_sydney
    Keymaster

    Rockin Annie wrote

    Just getting off that subject I am missing my cheese very much do u eat any alternative?

    Annie, I eat Goat’s cheese. There’s a different fat molecule in it and I have no problem with it (also tested ok for me). Which is great, because I’ve always been in love with the (soft) goat’s cheese. It probably depends on what you react to in cheese. See here for some more info.
    http://www.chowhound.com/food-news/53922/why-can-lactose-intolerant-people-eat-some-cheeses-and-not-others/

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

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