Minocycline question

[Kim]

Don't want to freak anybody out here, but those red spots are also a symptom of scleroderma — they are the “T” in the CREST form of the disease.  You can look up telangectasias.  I have some and try to cover them up with concealer.  They don't hurt, just ugly. :doh:

Kim

[Anonymous]

Hi is the telangectasias just red spots or actually capallaries that you can see on your face (little veins)?

 

Steph

[Dena]

The red spots I am talking about are tiny round ones which doctors have said are from capillaries–blood thinners can do that.  I think much younger people could help us understand these spots as well as veining, if they get them, because a lot of this seems to occur as we age.  I invite pre-menopausal women and young men out there to comment.

[Kim]

My doctor explained to me the Telangectasias was due to broken capillaries from the Raynayd's that accompanies the Scleroderma.  Was that convoluted enough? 😕

[Anonymous]

I'm just a little confused because I have little capallaries on my face but not little red spots. I have small veins that show on my face.

[Maz]

Hi Kim and Dena,

Hmmm, if memory serves, my derm guy called the red spots he zapped (one under one eye and one on my nose) “cherry angiomas” caused by sun damage and aging. My hubby has a few of them, too, on his chest and back, but is not bothered about them.

Peace, Maz

[Patrice]

Hi, me again.  My doctor and I visited about the pigmentation, and he did recommend that I stop the minocyline since it is affecting my face.  He is really a candida specialist that just has some experience with the antibiotic therapy.  So, he suggested that I do a little research and tell him which antibiotic I should try next.  Hmmm.

What would be a good place to research to see what the next “logical” drug might be?

 

I am amazed at how active this board is.  Thank you, everyone, for your input and support.

Patrice

[JeffN]

My red spots are the T's. Have them on my hands and face no big deal but when I think I have gotten ahead of the SD I may have the ones on my nose zapped. Those are the only ones that bother me, no pain just cosmetic but they bother me.

[richie]

Hi

Hope you folks are keeping sun exposure to a minimum–that will aggravate and bring on discoloration

richie

[richie]

Hi

Kim gave the exact explanation on the cause

richie

[Patrice]

I'd like to redirect the conversation.  I do not have the little red spots Kim is referring to.  This is a major pigment change on my face that I truly do believe is a side effect of the minocycline. 

From the article I read, doxycyline may be the next drug of choice.  Does anyone have experience with this?  Is it as effective?  What is the protocol?  I need to give my dr. some guidance and a decision on what I am willing to try.

[Maz]

[user=186]Patrice[/user] wrote:

From the article I read, doxycyline may be the next drug of choice.  Does anyone have experience with this?  Is it as effective?  What is the protocol?  I need to give my dr. some guidance and a decision on what I am willing to try.

Hi Patrice,

Here are a couple links with suggested abx alternatives:

On this RBF page, scroll down to “Alternatives”:

https://www.roadback.org/index.cfm?fuseaction=studies.display&display_id=183

On rheumatic.org, under FAQs, there is also some information about adding azithromycin to mino therapy or substituting with tetracycline or doxycycline under FAQ #2.  I have read about others who have substituted mino for doxy and added zith to the mix just to give it the extra kick. The doses/pulses suggested are mentioned at the link below.

http://rheumatic.org/faq.htm

If you click through the “Medical Histories” on this site, you may find others who tried doxy or tetracycline instead of mino.

My personal experience of tetracycline is that I did quite well on it, but I had to take high, continuous doses for Lyme (750mg bid) and never tried pulsing with it. Still got the brown hyperpigmentation on my arms, though, even with the tetracycline, but I think it was due to being out in the sun during the summer months as it's been fading since then.

Peace, Maz

[richie]

Hi

I think we have to determine the nature of the illness —as minocycline really is the first line for scleroderma

richie

[Patrice]

Maz,

As usual, you are a wealth of inormation.  Thank you so much!  I also saw the combination therapy when I read the MS articles for my sister.  Hmm . . .  I will read these articles very closely as well.

[Author]

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