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  • #458253
    lemons
    Participant

    My Grandpa was a Mason & just read on Arthritis Research UK, that the Masons have donated money to fund research into microbiome being connected to triggering the onset of RA.

    #458254
    whaleharbor
    Moderator

    I found the article. Here is the link http://www.arthritisresearchuk.org/news/press-releases/2017/february/masonic-charitable-foundation-awards-grant-to-microbiome-research.aspx Thank you for sharing. Very interesting!

    200mg Celebrex 1 times per day.
    100 mg Minocycline every other day (Actavis Brand)

    #458274
    lynnie_sydney
    Keymaster

    Interesting!
    There is a lot of new research into the microbiome and RA. Plus some interesting results and studies on fecal transplants:

    Controversially, Professor Borody believes the gut is the gateway for toxins to enter the body, triggering an array of seemingly unrelated diseases including rheumatoid arthritis, Parkinson’s and autism.He says he has been surprised many times when diseases far from the gut have eased or vanished following faecal microbiota transplantations.

    “We’ve had a young person with rheumatoid arthritis and it went away. It was classic rheumatoid factor positive RA,” he said.

    see 2014 article here

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #458276
    lynnie_sydney
    Keymaster

    As an additional point of interest (slightly different but connected to the whole microbiome topic), I’ve been having weekly acupuncture treatment for the last 8 months (a very highly regraded practitioner) and he has been focusing on improving my overall immune system (specifically microbiome).

    I’d had good results from some IV Clindamycin and from getting my hormones sorted out in terms of my joints, but was still feeling overall unwell with ongoing fatigue, night sweats and some gut issues after a 2nd bout of swine flu. I’d also had Bartonella Quintana picked up as IgG and HHV6 as IgM on testing (my Doc says almost certainly re-activated rather than recent infection). Thought it was now time to look at some options to address my immune system overall and I chose this guy after recommendation from a couple of different sources. I realised this would be a longish road and not to expect too much too soon. And I didn’t notice much difference for the first 8 to 10 weeks and then (interestingly) had a couple of mild herx-like responses (migrating pain in large joints). From around the 4 month mark, I’ve felt increasingly better and better in my overall wellbeing.

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #458323
    Maz
    Keymaster

    This is really interesting news! Thanks for sharing it, Lemons, and also adding the link, Whaleharbor. Finally, there will be some research looking at the whole rheumatic picture! Let’s hope whatever treatments may come of this study will be ones that help to rebalance the microbiome rather than used as a vehicle to block an expected response to what has been thrust into imbalance by a wonky microbiome. Let’s also hope that the study doesn’t take a decade to produce results or that any enlightening results aren’t blown into the plenum of lost information.

    Severe, swift onset RA as a result of Lyme disease
    Current Meds: Biaxin (500mg BID), Tetracycline (500mg BID), Tirosint (88mcg), Liothyronine (10 mcg), Compounded Liposomal Artemisinin, LDN (3mg), Topical Progesterone,
    Current Supps: Curcumin, Bovine Colostrum, ALA. NAC, Milk Thistle, Super Liquid Folate/B12/B-Complex, Probiotics, Vit D3
    Supportive Measures: IV Myer's Cocktails, IV Glutathione, FIR Sauna, Gluten-free diet, Gym.

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