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  • #461165
    PhilC
    Participant

    Here is some important Lyme Disease news that I felt compelled to pass along:

    Conflicts of interest make Wormser wrong choice for Lyme panel

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #461174
    Maz
    Keymaster

    It’s really astounding that this controversy still exists with over 700 peer-reviewed studies demonstrating the persistence of Lyme and other tickborne diseases. A complete list of these is posted by Dr. R.B. on the ILADs.org website, here, for anyone interested:

    Peer-Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases

    Even Dr. Steere, the rheumatologist who was the original CT Health Dept. investigator of the cluster of children with JRA in CT in the mid-70s (later found to have Lyme), suggested that rheumatic presentations will persist so long as even just a few spirochetes remain. This was before they even knew just how pleomorphic Lyme could be, shapeshifting into dormant cyst forms, blebs, and intracellular spheroplast forms.

    Clinical pathologic correlations of Lyme disease by stage. Ann N Y Acad Sci. 1988;539:65-79

    Report describing the immunologic damage caused by late stage manifestations of Lyme, suggestive of collagen-vascular diseases, such as scleroderma, lupus, polymyositis, and dermatomyositis, as seen on histologic examination of tissue samples. Dr. Alan Steere (rheumatologist) and Dr. Paul Duray (pathologist) suggest that this type of damage is in response to persistence of the causative organism of Lyme disease, a spirochete, called Borrelia burgdorferi (Bb), “… however few in number.”

    Even as far as in Australia, doctors are being told not to say the word, “Lyme” – a good or bad thing, considering how divisive the word, Lyme, has become?

    Australia: Health officials support removing ‘Lyme disease’ from discussions with patients–‘unhelpful and divisive’ Outbreak News Today (11/20/17)

    It’s beyond the point of making any rational sense that medical politics, in light of masses of science-based medicine pointing to the persistence of Lyme, has taken precedence over the suffering of chronically ill Lyme patients. Further to your shared article, Phil, it seems some patients have had quite enough and are taking a stand against the doc referenced, and other physicians who share his “medical politics.”

    Lyme Disease Patients File Federal Antitrust Suit Against Infectious Disease Specialists & Health Insurers. Huffington Post (11/15/17)

    Insurers Accused of Conspiring to Deny Lyme Disease Coverage Courthouse News (11/14/17)

    I guess one can only wait-and-see how all this will play out, but surely the science is getting increasingly difficult to ignore and deny.

    Severe, swift onset RA as a result of Lyme disease
    Current Meds: Biaxin (500mg BID), Tetracycline (500mg BID), Tirosint (88mcg), Liothyronine (10 mcg), Compounded Liposomal Artemisinin, LDN (3mg), Topical Progesterone,
    Current Supps: Curcumin, Bovine Colostrum, ALA. NAC, Milk Thistle, Super Liquid Folate/B12/B-Complex, Probiotics, Vit D3
    Supportive Measures: IV Myer's Cocktails, IV Glutathione, FIR Sauna, Gluten-free diet, Gym.

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