Tagged: transplant for IPF
November 23, 2017 at 3:54 pm #460870slberryParticipant
New to this forum..anyone know of someone having lung transplant for this and was it successful. Everything I read or talk to gives 1-5 yrs following transplant….November 23, 2017 at 4:47 pm #461102Lynne G.SDParticipant
This month marks my 19th year on AP.I did have light fibrosis in one lung but it left around year 3 of AP.Mino works in many more ways than just an antibiotic and is worth a try unless things are bad enough to warrant a transplant.If you are young and have many years ahead of you it will probably have to be done again at some time.Do a little reading on these links for the explanation of how mino controls things.Lots of info here and if you don’t have a good science background you will want to shake out your brain now and then. hehehe but a second reading should make things clearer..Mino/doxy/clindamycin/Zithromax will work IF you have an infectious cause,many do but your average doctors certainly will not take the time to find out.If you have an infection you will know because you will get a Herxheimer’s reaction.Everyone else will react well to just mino/doxy because it controls the Interlukins and Transfer Growth Factor -1b
Links on Interlukins involved in SD… our worst are 1,mostly 6 and 8 but 10 is your friend
Primer on SD and how Mino works as a very good anti inflammatory,not as an antibiotic.New drug hopefully to be here soon called Resunab will be a super duper anti inflammatory ,an artificial cannabinoid .It is becoming clearer every day that inflammation is the likely cause of all disease and getting it down is of most importance to feeling better.This is one of the reasons that good diet is so important.
Those of you that have a good science background will be able to understand all these links.Others will have to read slowly more than once but you will get the gist of it.I have years of medical training but still have to shake out my brain after reading too many
http://www.sciencedirect.com/science/article/pii/S0022202X15425217 NO5 Transfer growth factor/tissue factor
http://www.pnas.org/content/93/24/14014.short this refers to NO4
http://europepmc.org/abstract/med/23870534 refers to NO1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5075140/ refer to NO1
INFLAMATION is inflammation regardless of where it is,brain,finger,eyes etcNovember 23, 2017 at 7:26 pm #461105richieParticipant
If your lungs are so damaged that there is talk of transplant -this is a sure sign of long term scleroderma that has not been effectively treated —while antibiotic therapy should be tried -very frankly it is a long shot that it can be effective –its kind of late for antibiotic IMO –Unfortunately you should have found this site 10 years ago !!There most likely is much more damage besides fibrosis —November 25, 2017 at 8:31 pm #461127Spiffy1Participant
It makes me a little frustrated that the pharmaceutical companies are making artificial cannabis type drugs that they can charge like rip for and have ownership over it. I just watched the series called the Sacred Plant. We ought to all be growing our own cannabis plants legally and being told how to use it safely and effectively. It isn’t fair that some states allow this and others don’t. The rest of us just have to wait on an artificial cannabis with a long list of side effects and fillers. Sorry for the rant but they can’t patent nature so they change it is some way where it is missing some key components and is sold as something new.
Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWF
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